Thank you

[LauraJane2]

I just wanted to say a huge thank you to the members of this forum for sharing your experiences and expertise, you have really saved my sanity over the years since I joined. I’m not sure what I have done without it so THANK YOU x

[Nackapan]

Hoes your sight and light sensitivity now? Did you up your b12 frequency?

Always good to get progress reports

[LauraJane2 in reply to Nackapan]

It’s much better most of the time thank you, it does dip a bit when I’m due a Jan. I think I did up the frequency of injections - sorry, my memory is appalling!Thanks for asking.

[LauraJane2 in reply to LauraJane2]

I’ve just checked back and yes, I did increase the frequency. My eyes do still get worse again occasionally but it’s much better than it was.

[Nackapan in reply to LauraJane2]

Good to hear you are getting on okay. I remember you having light sensitivity .

Mine is less severe but have 25w bulbs in corners rather than overhead.

My vision goes down badly at tines

However I can watch bit of TV now which is amazing .

What frequency did you settle on ?

Love to hear about others

[Lowblow in reply to Nackapan]

Hi

I’m new to this forum but just been reading through and came across this post !! I too suffer from vision deterioration and light sensitivity.. I have an appointment with the ophthalmologist next week .. it’s been noted by the opticians twice that I have a haemorrhage behind my eye and tortuss blood vessels in both eyes .. does this ring any bells for anyone ? And does anyone know how you can find out if your optical nerve has been damaged .. I’ve been complaining to doctors about vision deterioration for nearly 2 years as well as hardly being able to walk and still they didn’t pick up until about 3 months ago xx

[Cherylclaire Forum Support in reply to Lowblow]

I had a good optician just up the road from me. When I was concerned about my eyesight because of B12 deficiency, he showed me on his computer what the back of eyes looks like in B12 deficient patients, what he might be looking for. He then checked the back of my eyes to reassure me and ensured that it was added to my record to get this checked at every regular check-up.

Unfortunately, this opticians closed down during covid -and has re-opened as a private optician with different staff. But it is possible that there are still more like him.

By the way, I did not have anything wrong behind eyes.

My only sight problem now seems to be night vision not good enough to be able to paint - colours wrongly mixed - so roll on lighter evenings. Also ability to inject hampered in evenings - as blue/ green needles indistinguishable !

[LauraJane2 in reply to Cherylclaire]

That’s interesting Cherylclaire, I’ll ask about that next time I go.

[cocoa in reply to Lowblow]

The last time I went to the optician, I was told I had a haemorrhage behind one eye. He wrote to my GP but it has not been followed up. My eyesight has gone downhill and rely on good light to do things.

I will mention it next time I have a neurologist or optician appointment. If we all keep asking and sharing, between us we may get some answers.

👓

[Nackapan in reply to Lowblow]

I had my eyes checked by s high Street optician. Then z hospital one. Then z professor who prescribed a tinted ldnse.Hd wrote yo the Gp advising to refer me to z neuro opthalmology.

I had to wait 18m.

I sti have light sensitivity ( les srverd now) to artificial lights. Still need a hat in a shop.

Pattern glare so only plain vlithed friends seen!

Text disappears from thd right after fading.

Someone's text jumps about

I've been tol my eyes are healthy .

Optic nerve okay.

Only one neurologist gave a maybe readin of s migraine cobtsnyjg there in the background.

One thought it from z fall.

I've even been told it could be psychological???

It isn't .

I've had b1e injrctikbx fof ovef e yesterday now.

I've improved bug nowhere near functioning at an acceptable level

Say to cycle or walk a mile

Or read a book.

On this phone I have it kn the dullest setting with a anti blue guard.

I cxn nowook at the bookshelf.

To busy before.

Listen to the radio briefly bug it does set off tinnitus.

Still can't use the landlines or hoover.

My pupils were noted as large in a bright room in a and e .

Their conclusion I was on recreational drugs-

I wasn't.

There next suggestion z panic attack .

Looking back if sounds unreal me cracking to the toilet.

Needing s wheelchair to get to the entrance.

I've had bloodshot eyes badly twice bug were checked.

Do let us know how yoh get on snd how you cope with the light sensitivity

[LauraJane2 in reply to Nackapan]

I went from 10 weekly down to 8 weekly and it seems to be sufficient for now.Glad to hear you have seen an improvement too.

[Nackapan in reply to LauraJane2]

Good to hear

[Sleepybunny]

Link to article about optic neuropathy and B12 deficiency (aimed at researchers)

ncbi.nlm.nih.gov/pmc/articl...

[Sleepybunny]

I have visual migraine symptoms and think that the migraine process was triggered by B12 deficiency. I'm mentioning this as I think light sensitivity may due to migraine.

Search online for "migraine B12 deficiency" for more info if interested....