Fir how long muscle weakness takes to get revived?

[Hamayeshguy]

Now about ten months I'm injecting but in last four months I started to stick a firm regime and now injecting for every other day for almost a month. But still have too much muscle weakness which was started a year ago. Now I take high dose slow release and also inject, but still no tangible improvement. I had improvement and my sever muscle weakness in my hands improved a lot and now I can sleep well, but this muscle weakness in my back and stomach and as well as thighs are really unbearable.y stamina is so low. On and off I have dizziness but this muscle weakness is still far away of being normal. After how long I can see normal. life again

[Nackapan]

Keep seeing every doctor you can.

It took my daughter years and years to get any quality if life.

Any diagnosis or proper understanding

She is on medication as well as b12 injections folate and a very restricted diet .

Also now being a wheelchair user has changed her life for the better .

She stillsays she's s work 'in progress '

[Jillymo]

Many on here are asking the same question including me.

As I have said before we are all different and it depends on how long the symptoms were left untreated.

Like you I have also changed from cyanocobalamin to hydroxocobalamin which seems to be helping with some of my symptom's but not all. I am still getting the bouts of dizziness and still have the stinging and burning sensations in my legs. It seems to be trial and error with some days better than others.

So long as we get to a stage where we can function then that has to be our target. Be patient and try and keep stress levels as low as possible, stress makes the symptoms worse.

What you describe is what I am feeling but we can only carry on with the injections and hope we soon see some light at the end of the tunnel.

[Hamayeshguy in reply to Jillymo]

Exactly we just hope to see light at the end of the tunnel. I wish I could go back in time and taking B12 after my GP told me I need monthly injection. I wish I knew this horrible disease. I gave promised myself after getting healed to shout in loud in media and warn people with this painful disease and help people for preventing. We should urge governments to fix healthcare system and required tests and supplements be also covered. More research is required and also doctors update on this matter. I have good information regarding supplements but I was never knew there is a such fearful disease. I spent lots if energy and time to even convince my family about this disease because they were thinking about mental issues since I was healthy in all if my life and just I tried to push beyond if my limits that's why I have to many bad symptoms. I hope just all of our efforts ends in good results

[Jillymo]

I agree that we all need to shout and be heard this suffering can not be aloud to go on. I sign all goverment petitions in regard to B12.

I sent my Dr some blood test results from over two years ago the MCHC which was low and the RDW which was high but were not acted upon at the time. She is now looking into those results after two years !

I am now having to inject every day just to be able to function.

It is not only a painful illness it affects our mood and mental health., there are far two many other symptom's to mention which I am finding difficult to live with.

Keep aiming for the light and pray we see it soon. 💡

[Hamayeshguy in reply to Jillymo]

It's awesome that you can tolerate everyday injection. But I have problem in even buying from Germany. I have friends in there to buy for me but it's really not solution to buy from other countries. Why our country don't cover these supplements and be available for affected people. Healthcare system spends lots of money for lots of not necessary tests and unnecessary medication but not for the culprit if all diseases which is lack of proper supplementation. Unfortunately these healthcare systems are broken and corrupt. Even dental problems are mostly related to supplements. Many cancers and even infection. Now I know my gum infection is related to lack of enough sativa and I need to wash with salt water and baking soda after each meal along with sift brush and soft flossing. Drinking plenty of water. I have to get away from inevitable stress which returns my symptoms to somehow and now my hands have numbness again and can't sleep more than five hours. I know it get back to normal again but I'm suffering a lot because of broken system. I hope soon we get rid of this dreadful disease