Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for March 2022

How often do you self-inject B12?

I'm interested to know how often the average person on this group that self-injects does so.

I'm interested to know how often the average person on this group that self-inje...

Dea11

•2 years ago

89 Replies

NHS surgery website video - how to do your own B12 injections

Just wow! You’re lucky if this is your surgery. Sorry if I’m late to the party and it’s been posted before, I came across it when I was trying to find out...

Just wow! You’re lucky if this is your surgery. Sorry if I’m late to the party ...

rogergee

•2 years ago

22 Replies

Veterinary B12

Hi. Can anyone advise me if I can use veterinary cyanocobalamin b12 for IM? The reason I ask is that I have pa and b12 cyanocobalamin ampoules are currently...

Hi. Can anyone advise me if I can use veterinary cyanocobalamin b12 for IM? The ...

patez

•2 years ago

21 Replies

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Statins

I have a gp appoinment today to discuss starting statins as my cholesterol is high. This was at the request of a specialist, not gastro or neuro. I have...

I have a gp appoinment today to discuss starting statins as my cholesterol is hi...

Luac

•2 years ago

8 Replies

Query about B12 and Folate blood test result

Hi I wonder if anyone here can help. I've looked online and can find no answers. I need B12 injections periodically and my blood test results have always given...

Hi I wonder if anyone here can help. I've looked online and can find no answers....

Endielle

•2 years ago

18 Replies

High Active B12

Thanks everyone for your posts. I feel a little easier now!

MrsHappy

•2 years ago

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Sharps box

I have just started self injecting B12 and was wondering how to dispose of the contents of my sharps box x

I have just started self injecting B12 and was wondering how to dispose of the c...

Bluegeranium

•2 years ago

40 Replies

Active B12 levels

Hi everyone. I hope someone can advise me as my dr just brushes everything under the mat. I have PA and get injections every 3 months. I feel fine most of...

Hi everyone. I hope someone can advise me as my dr just brushes everything und...

MrsHappy

•2 years ago

11 Replies

I’m looking to purchase b12 methyl injectables

Hello, I’m trying to find a good site to purchase methyl b12 injectables or ampules. I’m located in the US Ann’s wondering where’s the best place to purchase...

Hello, I’m trying to find a good site to purchase methyl b12 injectables or ampu...

CanaryHound

•2 years ago

8 Replies

Folate Deficient (3rd time since October 2019)

Evening everyone I’m just wondering if anyone has any advice/experience with folate deficiency please? This is the third time my folate has dropped <2 I’m on...

Evening everyone I’m just wondering if anyone has any advice/experience with fol...

Shazy-B

•2 years ago

8 Replies

B12

Can I feel lightheaded when coming close to being due for next b12 injection ?

Annab124

•2 years ago

4 Replies

Update no ?

My 2 weekly Injections are to continue on an NHS prescription. A new entry had been made on my medical notes to say this . The 'random' neurologist the Gl...

My 2 weekly Injections are to continue on an NHS prescription. A new entry had ...

Nackapan

•2 years ago

11 Replies

Post injection fatigue

Anyone else feel wiped out shortly after b12 injections? I’ve been injecting for a few months now - trying to find the right interval. Anyone know what might...

Anyone else feel wiped out shortly after b12 injections? I’ve been injecting fo...

SigNi

•2 years ago

13 Replies

Self injecting B12

Hi wanted to ask which sites/companies are best to purchase B12 for self administration. Is it supplied in preloaded syringes or pens like insulin. Which...

Hi wanted to ask which sites/companies are best to purchase B12 for self admini...

Polo22

•2 years ago

10 Replies

Oral B12 Update

I last wrote a post about 11 months ago in which I was exploring the use of oral B12 while waiting for a specialist appointment. A lot has happened since then...

I last wrote a post about 11 months ago in which I was exploring the use of oral...

Pleaforsanity

•2 years ago

60 Replies

B12 leukemia

I posted a while ago regarding distant relative who had pneumonia in hospital being diagnosed with b12 deficiency, (P.A.) last week told he had leukemia...

I posted a while ago regarding distant relative who had pneumonia in hospital be...

Hidden

•2 years ago

16 Replies

Is that true the most important difference between MS and B12 d symptom is random symptoms in MS but in b12d develop symmetrical?

As I learned from doctor' Chandy's book. Ms first off is mostly in relapsing remitting fashion and in rare cases progressive form it doesn't remit and...

As I learned from doctor' Chandy's book. Ms first off is mostly in relapsing rem...

Hamayeshguy

•2 years ago

6 Replies

High serum gastrin levels

Hi I have pernicious anaemia which I manage with monthly B12 injections. I have been diagnosed with intestinal metaplasia and autoimmune atrophic gastritis ....

Hi I have pernicious anaemia which I manage with monthly B12 injections. I have ...

Knittingcat123

•2 years ago

17 Replies

Advice before discussing private blood result with doctor please

Hi, I am trying to get to the bottom of a list of unusual symptoms. GP ordered various blood tests, notable results as follows: Serum Folate 1.7 (4-26)...

Hi, I am trying to get to the bottom of a list of unusual symptoms. GP ordered ...

BERTIE4500

•2 years ago

6 Replies

Red meat

Appetite, does anyone else crave red meat with pernicious anemia???? I know that I can't absorb the B12 from it but the craving is driving me mad !!

Appetite, does anyone else crave red meat with pernicious anemia???? I know that...

Musiclover72

•2 years ago

48 Replies

Folate

I am confused about how much folate to supplement with when taking B12 injections. These were my labs were done a year ago (when B12 deficiency was...

I am confused about how much folate to supplement with when taking B12 injection...

lambuth_eagle

•2 years ago

11 Replies

Where can I order B12 for injections?

I am having trouble ordering from Mycare and Versandepo. Are they not delivering to the UK right now? I would be over the moon if someone could please point me...

I am having trouble ordering from Mycare and Versandepo. Are they not delivering...

e66--

•2 years ago

3 Replies

Folate

Does anyone know if folate above range causes problems please?

Nackapan

•2 years ago

11 Replies

Who delivers to the US?

Hi All Looking for a online source for Cyanocobalamin that delivers to US. Have previously used Canada Drug Superstore but would like another option. Thanks...

Hi All Looking for a online source for Cyanocobalamin that delivers to US. Have...

Nana321

•2 years ago

2 Replies

Vit B12 readings OK but have symptoms of PA

Can you have pA if you vit B 12 is OK? (424) I have all the symptoms of PA/Vit B12 deficiency & my grandmother died of PA. Thyroid problems run in our family I...

Can you have pA if you vit B 12 is OK? (424) I have all the symptoms of PA/Vit B...

PolyannaYorkshire

•2 years ago

12 Replies

Best Ampoule Snapper

Good morning. Wonder if anyone van advise me on above please? I am relatively new to SI. Started 8 weeks ago and have been using NHS loading ampoules that were...

Good morning. Wonder if anyone van advise me on above please? I am relatively ne...

Libuse

•2 years ago

22 Replies

What's the best place to get hydroxycobalamin from to send to the US?

I was getting the brand Panpharma/Rotexmedica from mycare.de, but I guess they no longer ship to the US. I saw this brand (see pic) from Amazon.de, but I...

I was getting the brand Panpharma/Rotexmedica from mycare.de, but I guess they n...

kngswim

•2 years ago

21 Replies

What kind of foods are required for nerve repair?

As nerves sheath namely myelin lipids are composed of f high amounts of cholesterol and enriched in glycolipid, in a ratio of 40%:40%:20% (cholesterol,...

As nerves sheath namely myelin lipids are composed of f high amounts of choleste...

mo2march

•2 years ago

8 Replies

B12 deficiency PA & alcohol

I'm no longer able to tolerate any alcohol, is this common? I was never a big drinker, but a couple if glasses of wine at a party was enough. Now I cannot...

I'm no longer able to tolerate any alcohol, is this common? I was never a big d...

Hidden

•2 years ago

12 Replies

District Nurse

After phoning gp. (Yes 45mjns) Pharmacy.(5 attempts busy line) Leaving a massage for district nurse service with an operator as no direct calls allowed...

After phoning gp. (Yes 45mjns) Pharmacy.(5 attempts busy line) Leaving a ma...

Nackapan

•2 years ago

7 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2022

How often do you self-inject B12?

NHS surgery website video - how to do your own B12 injections

Veterinary B12

Statins

Query about B12 and Folate blood test result

High Active B12

Sharps box

Active B12 levels

I’m looking to purchase b12 methyl injectables

Folate Deficient (3rd time since October 2019)

B12

Update no ?

Post injection fatigue

Self injecting B12

Oral B12 Update

B12 leukemia

Is that true the most important difference between MS and B12 d symptom is random symptoms in MS but in b12d develop symmetrical?

High serum gastrin levels

Advice before discussing private blood result with doctor please

Red meat

Folate

Where can I order B12 for injections?

Folate

Who delivers to the US?

Vit B12 readings OK but have symptoms of PA

Best Ampoule Snapper

What's the best place to get hydroxycobalamin from to send to the US?

What kind of foods are required for nerve repair?

B12 deficiency PA & alcohol

District Nurse

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