B12 leukemia: I posted a while ago... - Pernicious Anaemi...

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B12 leukemia

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I posted a while ago regarding distant relative who had pneumonia in hospital being diagnosed with b12 deficiency, (P.A.) last week told he had leukemia (terminal) last night heard he had between one week to a few months.

Again one has to question is it b12 or not ? As when you look online bone marrow biopsies can be interpreted as leukemia.

all very concerning ?

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16 Replies
Sleepybunny profile image
Sleepybunny

Hi Sallyannl,

So sorry to hear about your relative.

Is he getting any B12 treatment?

May be worth his family contacting PAS and B12 Deficiency Info to see if they have any info on links between B12 deficiency and leukaemia.

B12 Deficiency Info website

b12deficiency.info/

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

I searched online for "misdiagnosis of B12 deficiency as leukaemia" and found some interesting research articles.

Here's one and there are others.

pubmed.ncbi.nlm.nih.gov/150...

Unhappy with Treatment (UK info)

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

I also came across research articles about people with high serum B12 levels but with B12 deficiency symptoms (functional B12 deficiency). Some articles said this could occur in people with leukaemia.

Search online for "above range serum B12".

in reply toSleepybunny

Yes has had b12 injections !

Just feel like hibernating at the moment, just seems one thing after another. Should expect these things when we

Are getting older ! Just too much at once !

Morning. I have PA and my little sister passed away from leukaemia when she was 13, but I’mnot aware of any connections. But I’m going to look into it a bit….

in reply to

All I have read was vitamin b12 deficiency mimicking acute leukemia. We know he was diagnosed shortly before this diagnoses. Maybe just a coincidence!

Moggy1234 profile image
Moggy1234

Hi Sallyannl, my father died of leukaemia many years ago and, as I had been diagnosed with B12 deficiency, he was checked and found to have pernicious anaemia. Dad thought he had contracted leukaemia from lots of x-rays during the War but it could have been due to working with asbestos or for some other reason. Not sure that helps but I thought I would let you know. Best wishes.

in reply toMoggy1234

I just googled b12 and leukemia, and it said about bone marrow aspirations that can mimic leukemia BUT was found to be B12 deficiency. Who knows !

The only thing I can say is several people have been diagnosed with cancer and for some reason its suddenly disappeared. It's very difficult to say one way or another, just a coincidence that this medical paper highlights it.

pitney profile image
pitney

so sorry to read this Sallyannl , one of my neighbors was originally told she had a B12 diff and went onto B12 injections but did not improve and after further investigations was told she had a type of Leukemia that had to be treated with a type of chemotherapy + blood transfusion , she has been having Chemo 3 weeks out of four and a transfusion once a month on a rolling basis for about 2 years now and dispite spending a lot of time at the hospital is still managing to stay fairly active and getting out on short trips , I wish you and your relative all the best treatment possible and send you a virtual hug, take care my thoughts are with you.

in reply topitney

Pleased to hear your neighbour is coping well, she obviously has the determination to fight her condition.At the moment he has been discharge from hospital,

I do not know if, or what treatment he has had other than b12 injections, I do know they talked of chemo but whether they think its futile I dont know.

pitney profile image
pitney

Take care and hope you get all the help you need

Sleepybunny profile image
Sleepybunny

Hi,

I wondered whether there might be something helpful on website below.

Leukaemia UK (charity)

leukaemiauk.org.uk/

Cherylclaire profile image
CherylclaireForum Support

Very sorry to hear about your relative, Sally.What frequency of b12 is he getting ? Would it be worth an every other day injection trial ?

I have no idea if this would help, but at the worst would be ineffective.

Take care of self, too. So much happening.

Sorry too to hear of the loss of your sister, Hidden .

I had not heard of a link before either.

in reply toCherylclaire

I dont know how many injections he is having.Yesterday was reading pleaforsanity and his recovery

And another person writing by the name of Ernest2 who has leukemia, is it connected to b12.? I have read about bone marrow from b12 difficient can mimic leukemia.

Strange several people on the website re b12 deficiency have a relative or they have the condition.

Cherylclaire profile image
CherylclaireForum Support in reply to

I'm not sure. I know that B12 deficiency could in some cases be evident in bone marrow tests as this is where red blood cells are produced.

In Martyn Hooper's book, What You Need to Know About Pernicious Anaemia and B12 Deficiency, four causes of anaemia (literally not enough red blood cells or haemaglobin):

inadequate production of red blood cells because of dysfunctional bone marrow,lack of B12 or lack of folic acid

Destruction of red blood cells due to an autoimmune condition

Blood loss from serious injury/surgery

Inadequate production of haemaglobin- usually due to iron deficiency

I'm not a medical professional, so cannot offer much here. My thoughts are with you.

in reply toCherylclaire

Yes.. I had bone marrow done, was all clear, but the fact my doctor at the time had given me b12 injection 24 hours prior to this obviously affected the results. When the specialist found out he was livid. I did have abnormal large blood cells though, folic ok ... so he put it down to b12 after nerve function tests and MRI Scan !

in reply toCherylclaire

Bless you thank you Cherylclaire

RoseFlowerDew profile image
RoseFlowerDew

Hi, I know I shouldn’t post off the top of my head but if it helps I think there is science around severe B12 deficiency link to bone displasia(?) and from that all kinds of blood disorders????

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