Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,205 members • 23,370 posts

All posts for June 2021

B12 level not moving

I am new here and a new PAS member. To be brief: Diagnosed in 2017/8 and on 12 weekly injections. No B12 injections - nothing - for one month due to Covid....

I am new here and a new PAS member. To be brief: Diagnosed in 2017/8 and on 12 w...

Cerura

•3 years ago

10 Replies

Can B12 injections cause acne outbreak?

Has anyone else experienced an outbreak of acne following a B12 injection? I have never had acne before, not even as a teenager, but my face is now covered. No...

Has anyone else experienced an outbreak of acne following a B12 injection? I hav...

Mashu17

•3 years ago

17 Replies

Can anyone explain?

Intrinsic factor antibody 1.01 u/mL 0 - 1.19 Normal I thought it would say negative or positive, so I’m confused. Thanks

Intrinsic factor antibody 1.01 u/mL 0 - 1.19 Normal I thought it would say negat...

Jaiday

•3 years ago

2 Replies

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Menopause and P.A??

Menopause and P.A? Any advise please as starting to need to SI more frequently??

Menopause and P.A? Any advise please as starting to need to SI more frequently??...

Vitb12___

•3 years ago

9 Replies

B12

Hi everyone, My second round of blood results are back and my B12 is now 119 pmol/L (previously 95 pmol/L) I haven’t had any treatment and haven’t changed my...

Hi everyone, My second round of blood results are back and my B12 is now 119 pmo...

Jaiday

•3 years ago

12 Replies

afraid of scar tissue IM b12

I've been getting many IM injections in my arms. I usually alternate arms but overall my left arm has received more injections. I was not told by anyone that I...

I've been getting many IM injections in my arms. I usually alternate arms but ov...

Purplegirl2

•3 years ago

12 Replies

rotexmedica

I read somewhere that rotexmedica vitamin b12 depot 1mg/1ml hydroxocobalaminacetat is no longer available. is this true? if so what should i use instead...

I read somewhere that rotexmedica vitamin b12 depot 1mg/1ml hydroxocobalaminacet...

joecash

•3 years ago

10 Replies

Phosphate supplementing

Hiya everyone, Just want to say what a lifeline this place is. I was wondering if anyone could explain the phosphorus supplement need for me. I’m self IM...

Hiya everyone, Just want to say what a lifeline this place is. I was wondering ...

Duncan80

•3 years ago

4 Replies

new to the group and in need of guidance please

Good afternoon everyone! I am looking for some guidance as to how to gain some control over my health again. My story is that i practiced as a midwife from...

Good afternoon everyone! I am looking for some guidance as to how to gain some c...

klb7572

•3 years ago

15 Replies

Storage confusion

How long, if ever, does it take the liver to begin storing B12 from injections after extreme depletion? My level was 52 on diagnosis Feb 2020. I had weekly...

How long, if ever, does it take the liver to begin storing B12 from injections a...

Nana321

•3 years ago

8 Replies

Should I be taking Choline Supplements (as well as my B12 injections and Folate supplements)

I have been taking Folate supplements and B12 injections (every 2nd day) for 2 month now - but nor feeling much better - should I add Choline supplementation...

I have been taking Folate supplements and B12 injections (every 2nd day) for 2 m...

Silvershine

•3 years ago

4 Replies

B12 deplete faster with more activity?

Good Morning :) Is it possible that injections don’t last as long when physical activity increases? I have been increasing my activity level and pushing my...

Good Morning :) Is it possible that injections don’t last as long when physical...

Ctadds1

•3 years ago

27 Replies

Hi, is it possible to still have PA even though my parietal cell and intrinsic factor antibody are negative and my b12 is low?

Low b12 and negative parietal cell antibody and intrinsic factor. Can it still be pernicious anaemia

Low b12 and negative parietal cell antibody and intrinsic factor. Can it still b...

Rocky213

•3 years ago

6 Replies

Newbie

Hi I'm new on here can anyone help with blood results on here as I am awaiting to speak to dr on Monday regarding my results I've looked online at them and I'm...

Hi I'm new on here can anyone help with blood results on here as I am awaiting t...

Jaye75

•3 years ago

4 Replies

Update on Husbands lack of treatment!

Husband had another conversation with a Dr who again dismissed his concerns regarding his b12 levels dropping by half as they still within normal range. Now...

Husband had another conversation with a Dr who again dismissed his concerns rega...

zista

•3 years ago

3 Replies

Beatrix Potter - the Pernicious Anaemia connection

Just searched for Mrs Heelis (as BP became) and happened across this sad paragraph: Her first chance at a life of her own ended in 1905 with the sudden...

Just searched for Mrs Heelis (as BP became) and happened across this sad paragra...

helvella

•3 years ago

3 Replies

Apohealth Germany hydroxo B12

Has anybody ordered Hydroxo B12 ampules from this website and knows if it is safe and reputable? I’m new to IM self injecting and wanting to try/find which...

Has anybody ordered Hydroxo B12 ampules from this website and knows if it is saf...

Duncan80

•3 years ago

15 Replies

How long it takes to feel an improvement after a Vit B12 shot?

Hi. I have recently been diagnosed with vitamin b12 deficiency. My last test was: Vitamin B12 = 140 pg/mL (200 -1000) My PCP prescribed me cyanocobalamin...

Hi. I have recently been diagnosed with vitamin b12 deficiency. My last test was...

Praga

•3 years ago

17 Replies

Folate and Active B12

Good evening I have just received a test back saying my Folate level is very low 6.84 Ref range was - 8.7 - 62.62 Can someone please advise, do I take the...

Good evening I have just received a test back saying my Folate level is very low...

Claire67

•3 years ago

9 Replies

Hydroxocobalamin - migraines

Hi, I’m hoping someone may be able to offer some advice. I’m not sure if it’s the Hydroxocobalamin or PA symptoms but I’ve been SI Hydroxocobalamin EOD for 6...

Hi, I’m hoping someone may be able to offer some advice. I’m not sure if it’s t...

User2020-1

•3 years ago

27 Replies

Do parietal cell antibodies mean autoimmune gastritis and should you get regular endoscopy?

Hi, I'm new to posting here and this is my first post. I was diagnosed with hashimoto's (under-active thyroid) in 2004 and the doctor investigating at the...

Hi, I'm new to posting here and this is my first post. I was diagnosed with has...

thisisme255

•3 years ago

3 Replies

Not all dietary related.

Hi all , so in January last year my b12 was 124, done again in march last year it was 150. For many years I have been going in with symptoms like palpitations...

Hi all , so in January last year my b12 was 124, done again in march last year i...

Darcey14

•3 years ago

5 Replies

Pregabalin, gabapentin, AED, epileptic drug interactions with B12 processes

Hiya, Does anybody have information on why long term use of AEDs like Pregabalin and gabapentin affect B12. I am deficient as a result of ileum and large...

Hiya, Does anybody have information on why long term use of AEDs like Pregabalin...

Duncan80

•3 years ago

5 Replies

I need help ordering from Vesandapo.de

Hi, I tried to place an order from Vesandapo.de half the page is in English, the rest is in German. I logged on as a guest and it asks for an email address (in...

Hi, I tried to place an order from Vesandapo.de half the page is in English, the...

amberprincess

•3 years ago

13 Replies

Advice on grandsons results please

My 18 year old grandson has just received his blood test results from gp. He is to start b12 injections next week after a blood draw for further tests which I...

My 18 year old grandson has just received his blood test results from gp. He is ...

Auntyp62

•3 years ago

7 Replies

Possible coeliac?

I’ve just had some blood results back due to iron deficiency. I also had my first booster jab after loading dose for low B12. Iron is just back in range but...

I’ve just had some blood results back due to iron deficiency. I also had my firs...

MrsBRE

•3 years ago

6 Replies

Confused

I guess my question is how many mills can I inject daily.. because isn't it just excreted? Being water soluble also how much do you actually get from the...

I guess my question is how many mills can I inject daily.. because isn't it just...

Vitbpa

•3 years ago

5 Replies

Help w dosing please?

Is there any problem with say..injecting 0.5 mil a day of methyl B12..will it be beneficial..as opposed to 1mil 3x a week? I have yet to be diagnosed with PA...

Is there any problem with say..injecting 0.5 mil a day of methyl B12..will it be...

Vitbpa

•3 years ago

2 Replies

Is it completely legal to import B12 ampoules from abroad if you don't have a PA diagnosis?

Strictly for personal use. Trying to figure it out but getting a bit confused...

Strictly for personal use. Trying to figure it out but getting a bit confused.....

Violette

•3 years ago

6 Replies

oxford bioscience email

i need oxford bioscience email adress . i do't find it at their website.

KS38

•3 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2021

B12 level not moving

Can B12 injections cause acne outbreak?

Can anyone explain?

Menopause and P.A??

B12

afraid of scar tissue IM b12

rotexmedica

Phosphate supplementing

new to the group and in need of guidance please

Storage confusion

Should I be taking Choline Supplements (as well as my B12 injections and Folate supplements)

B12 deplete faster with more activity?

Hi, is it possible to still have PA even though my parietal cell and intrinsic factor antibody are negative and my b12 is low?

Newbie

Update on Husbands lack of treatment!

Beatrix Potter - the Pernicious Anaemia connection

Apohealth Germany hydroxo B12

How long it takes to feel an improvement after a Vit B12 shot?

Folate and Active B12

Hydroxocobalamin - migraines

Do parietal cell antibodies mean autoimmune gastritis and should you get regular endoscopy?

Not all dietary related.

Pregabalin, gabapentin, AED, epileptic drug interactions with B12 processes

I need help ordering from Vesandapo.de

Advice on grandsons results please

Possible coeliac?

Confused

Help w dosing please?

Is it completely legal to import B12 ampoules from abroad if you don't have a PA diagnosis?

oxford bioscience email

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