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Pernicious Anaemia Society

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Forewarned is Forearmed

Narwhal10 profile image
6 Replies

This is all new to me, I’m in the middle of having my loading doses and was told I’d have them for two weeks then in 3 months. I knew I was ill, as breathless, tachycardia (high heart rate) and most amazing vertigo were the worst of my symptoms. I asked for print outs for B12, ferritin and folate from March and August.

I have gluten intolerance - coeliacs needs a biopsy but as I was lactose intolerant and had symptoms of fructose malabsorption then it’s not rocket science. Anyway, the big problem I encounter is because I also have a mental health diagnosis (bipolar) I have not received proper care for many years. I know lots of others here haven’t.

I do have neurological symptoms, I’m familiar with the BNF, NICE guidelines and I will be asking for the injections to continue until my symptoms dissipate. Now how not to come across as a ‘hysterical hypochondriac’. I’ve joined PAS and I have kept a diary of symptoms. Any advice gratefully received.

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Narwhal10 profile image
Narwhal10
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6 Replies
Nackapan profile image
Nackapan

You seem very well informed. Hope the loading doses start to do their work. Yrs a diary of symptoms a very good idea ti submit to your Gp in writing if you need the every other day injections s to continue. Or if you feel you dont 2 monthly not 3 monthly as neurological symptoms . Letters cant be ignored.

Narwhal10 profile image
Narwhal10 in reply to Nackapan

Thanks - it’s from reading on here. 😀

Bellabab profile image
Bellabab

I have been diagnosed with bipolar affective disorder type 2 after a lifetime of episodes of severe depression. After 8 months of injecting every other day the symptoms have gone as have many other symptoms, such as ageing. It is not a hypochondria nor is the benefit due to a imagination.

Narwhal10 profile image
Narwhal10 in reply to Bellabab

Hi Bellabab,

I’m sorry to hear about your diagnosis, years of severe depression and dare I say it, being mismanaged. It’s wonderful to hear that your symptoms have gone after the proper treatment.

I am going to play nice, smile and nod but it’s all being noted. 😉

wedgewood profile image
wedgewood in reply to Narwhal10

I’m sure that your depression will disappear when you get sufficient treatment with B12 injections . So many P.A. patients can become seemingly depressed before treatment. , and are prescribed anti-depression tablets. We often hear of that .

Narwhal10 profile image
Narwhal10 in reply to wedgewood

Thanks Wedgewood,

I have also experienced mania/hypo mania. 😱

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