Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2020

Link Between B12 levels and a sulphite sensitivity?

I'm just curious as to whether there's a link between B12 deficiency and a sensitivity to sulphites in food? I think I read something somewhere on the...

I'm just curious as to whether there's a link between B12 deficiency and a sensi...

Hedgeree

•4 years ago

4 Replies

P.A. and periods

Hi there I wonder if I can ask a couple of questions on behalf of my daughter (she’s just 18) - you’ve all been so helpful and I feel there is nowhere else to...

Hi there I wonder if I can ask a couple of questions on behalf of my daughter (s...

SAM2608

•4 years ago

7 Replies

Burning legs

Is burning sensations in legs a symptom of B12 deficiency

Johnmartyn

•4 years ago

2 Replies

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Collected b12 today

I’m just back from docs I had to collect my script for b12 but it was already at pharmacy so my appointment with nurse is booked for next week. Before I went I...

I’m just back from docs I had to collect my script for b12 but it was already at...

Hidden

•4 years ago

2 Replies

Self treatment for PA

Like so many PA sufferers I now do my own IM jabs. For me this has been very easy on a practical level. I have enough medical knowledge being a retired...

Like so many PA sufferers I now do my own IM jabs. For me this has been very eas...

Bobonut

•4 years ago

5 Replies

Hibiscus

On a very rainy day . Thought I'd post this.

Nackapan

•4 years ago

2 Replies

Iron infusion

Hi I had an iron infusion 4 weeks ago as my ferritin level was 34(11-307)Could it have affected my t3 level ?I had a thyroid test and it came back that my t3...

Hi I had an iron infusion 4 weeks ago as my ferritin level was 34(11-307)Could ...

sylus_911

•4 years ago

2 Replies

Link between B12 and exercise

Hi, despite daily injections giving me my quality of life back so I can work and generally function, I am finding getting back to running much more difficult....

Hi, despite daily injections giving me my quality of life back so I can work and...

Jengastar

•4 years ago

13 Replies

Self injecting and toxicity ??

I joined a group on FB during the pandemic....I was quite shocked by how many people were self injecting and how frequently. A couple of the posts were about...

I joined a group on FB during the pandemic....I was quite shocked by how many pe...

JOLLYDOLLY

•4 years ago

10 Replies

Increase in injections

I get my b12 injection every 8 weeks but still struggle through the last two or three weeks, do I have to get the GPs agreement to get my neice who is a nurse...

I get my b12 injection every 8 weeks but still struggle through the last two or...

Nancy38

•4 years ago

16 Replies

PA, can it just go away ?

Hi, I’ve been having B12 injections every 3 months for the last 14 years, however, just changed to a new medical practice and they tell me I no longer need it,...

Hi, I’ve been having B12 injections every 3 months for the last 14 years, howeve...

NigelG66

•4 years ago

37 Replies

Pins and needles in foot

I’ve had the 6 loading injections and now I’m on a 3 monthly B12 top up. I don’t have my B12 blood sample result but I remember the doctor saying that it...

I’ve had the 6 loading injections and now I’m on a 3 monthly B12 top up. I don’t...

Bialystok

•4 years ago

3 Replies

Pernicious Anaemia treatment .

I really believe that if Pernicious Anaemia could be treated with a patentable pharmaceutical drug , we would have no difficulties in getting treatment . The...

I really believe that if Pernicious Anaemia could be treated with a patentable p...

wedgewood

•4 years ago

46 Replies

Not an easy write.... (bowels affected by b12)

Hey guys sorry for the subject but my doctors seem clueless as usual.... has everyone's bowels been affected with having pernicious anemia? I've always had...

Hey guys sorry for the subject but my doctors seem clueless as usual.... has ev...

Ljbillo

•4 years ago

25 Replies

Something I noticed

In my opinion, in the minds of doctors, there is a big difference between being B12d and having Pernicious Anaemia. For some reason people who are B12d seem...

In my opinion, in the minds of doctors, there is a big difference between being ...

Tubbylardo

•4 years ago

3 Replies

Children: unusual symptoms? Is it possible PA?

Good evening. I wonder if i could get some guidance from this community. My 12 year old son has been struggling for years with his stomach nausea and low...

Good evening. I wonder if i could get some guidance from this community. My 12 y...

jimckeown

•4 years ago

4 Replies

111 answer to my b12 injection issue after calling today to say how I was feeling and blurred vision and now tremours

I called 111 today and eventually had a doctor call me and again explained the whole situation and again they told me same thing. They cannot get involved and...

I called 111 today and eventually had a doctor call me and again explained the w...

Debmac123

•4 years ago

2 Replies

My Doctor has stopped my b12 injection after 7 years!!

I been having B12 injections since 2013 every 85 days and my Doctor has told me she would not give them to me until she done blood test. My B12 came back 1028...

I been having B12 injections since 2013 every 85 days and my Doctor has told me ...

Debmac123

•4 years ago

37 Replies

Buzzing in my nuts

Last week and a half started getting a vibration or buzzing in my testicles read alot on other people with same issue anyone find out what it's from I have...

Last week and a half started getting a vibration or buzzing in my testicles read...

Jweeks22

•4 years ago

4 Replies

Lightheaded

B12 was 126 given cyanocobalmin tablet (1) and 1 injection had horrible reaction. Found out I have trouble methylizing. Took hydroxcobalim no reaction able to...

B12 was 126 given cyanocobalmin tablet (1) and 1 injection had horrible reaction...

CDALY474

•4 years ago

17 Replies

Confused

After reading several post below on folic I'm soooooo confused and concerned im PA and self inject twice a week what is the smount of folic should I be taking...

After reading several post below on folic I'm soooooo confused and concerned im ...

Pasjc

•4 years ago

14 Replies

Thyroid and b12 absorbtion link?

Good morning, Do thyroid levels affect B12 absorbtion? Im treated for hypothyroidism with 125(mg?) Recent bloods show high levels but gp says he doesn't want...

Good morning, Do thyroid levels affect B12 absorbtion? Im treated for hypothyro...

lesley12

•4 years ago

5 Replies

Buckwheat

Has anyone tried introducing buckwheat into their diet I’m reading some good stuff about it just now and like the fact it’s gluten free.x

Has anyone tried introducing buckwheat into their diet I’m reading some good stu...

Hidden

•4 years ago

18 Replies

This sounds like PA, right?

Several years ago I would occasionally get short of breath. I realized it might be B12, and specifically PA because I eat a lot of meat, and started getting...

Several years ago I would occasionally get short of breath. I realized it might ...

nikaoo

•4 years ago

2 Replies

Cyanocobalamin & Methylcobalamin Injections

Ive been taking cyanocobalamin injections for 6 weeks, once a week prescribed by the Dr. Ive noticed that mid week i feel it wearing off and want to start...

Ive been taking cyanocobalamin injections for 6 weeks, once a week prescribed by...

texans2002

•4 years ago

36 Replies

B12 deficiency few symptoms feels like returning

Hi Everyone, I was diagnosed with b12 deficiency in Dec and treated for it via cynocobalamine Injections. I have had my loading doses everyday for a week. Then...

Hi Everyone, I was diagnosed with b12 deficiency in Dec and treated for it via c...

psawant

•4 years ago

5 Replies

Can you test when suplementing?

I have been supplementing B12 and folate since March. Wondering if I could do test yo find out where my levels are? Would an active b12/folate and MMA be...

I have been supplementing B12 and folate since March. Wondering if I could do...

SuD7

•4 years ago

6 Replies

Where to buy?

I remember seeing details of a site in Australia selling B12 ampoules but can’t seem to find it now. I’m an Australian living in China, and I usually have a...

I remember seeing details of a site in Australia selling B12 ampoules but can’t ...

Lotus69

•4 years ago

6 Replies

B12 injection surprise. I can have it

I phoned my GP surgery this afternoon as I have to repeat an earlier blood test for thyroid levels as she thought my thyroxine dosage may be too high. I was...

I phoned my GP surgery this afternoon as I have to repeat an earlier blood test ...

carer999

•4 years ago

5 Replies

Buying B12

Hello everyone, I have searched all through both Bodfeld and Apotheke.de and cannot find Hydroxocobalamin anywhere. Is it sold under a different name? I did...

Hello everyone, I have searched all through both Bodfeld and Apotheke.de and can...

olivia07

•4 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2020

Link Between B12 levels and a sulphite sensitivity?

P.A. and periods

Burning legs

Collected b12 today

Self treatment for PA

Hibiscus

Iron infusion

Link between B12 and exercise

Self injecting and toxicity ??

Increase in injections

PA, can it just go away ?

Pins and needles in foot

Pernicious Anaemia treatment .

Not an easy write.... (bowels affected by b12)

Something I noticed

Children: unusual symptoms? Is it possible PA?

111 answer to my b12 injection issue after calling today to say how I was feeling and blurred vision and now tremours

My Doctor has stopped my b12 injection after 7 years!!

Buzzing in my nuts

Lightheaded

Confused

Thyroid and b12 absorbtion link?

Buckwheat

This sounds like PA, right?

Cyanocobalamin & Methylcobalamin Injections

B12 deficiency few symptoms feels like returning

Can you test when suplementing?

Where to buy?

B12 injection surprise. I can have it

Buying B12

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