Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for October 2019

4months on - still dizzy - B12 and anemia!

Hello! Having just found this page, I couldn't be happier. I've been B12 deficient and anemic for around 4months now. Before my diagnosis, I was under a lot...

Hello! Having just found this page, I couldn't be happier. I've been B12 defici...

TheBee1Sharps

•5 years ago

25 Replies

haemoglobin

Is hb 107 anything to be worried about? Thank you.

foxglove

•5 years ago

17 Replies

Follow up ,,, gp wants to reduce my b12shots to only 2 a year!!

Hello, Just a follow up to my previous enquiry for those who followed . I came out of my Gp just now..in tears and my stomach is in knots. He basically...

Hello, Just a follow up to my previous enquiry for those who followed . I came o...

Gumball77

•5 years ago

12 Replies

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Sympathetic Neurologist

A few weeks ago I read a posting where a member commented about finding an informed and sympathetic Neurologist. I believe that this Neurologist is based in...

A few weeks ago I read a posting where a member commented about finding an infor...

Retteacher

•5 years ago

3 Replies

Skin biopsy to detect peripheral neuropathy

I came across an interesting article called The Fire Within from John Hopkins about peripheral neuropathy. It only mentions b12 briefly but what I found...

I came across an interesting article called The Fire Within from John Hopkins ab...

palmier

•5 years ago

2 Replies

Potassium supplement

I recently started B12 injections. I read somewhere on this forum that I require to monitor my Potassium levels and potentially add Potassium supplement....

I recently started B12 injections. I read somewhere on this forum that I require...

lucldh

•5 years ago

4 Replies

Eyes/Very interesting article

I've been having some issues with my eyes, and while idly consulting Dr. Google I came across this rather good article, not just on optic neuropathy but B12...

I've been having some issues with my eyes, and while idly consulting Dr. Google ...

Curlygal

•5 years ago

9 Replies

Vision technology update

Well I've got my new tinted glasses. No eureka moment unfortunately. However when I put them on my head was so much quieter. Amazing how you get to tolerate...

Well I've got my new tinted glasses. No eureka moment unfortunately. However w...

Nackapan

•5 years ago

5 Replies

Any test in the U.S.?

Hi I'm 36 and these are the symptoms I deal with.. anxiety, heart palpitations, heart pain (chest pain), shortness of breath, fatigue, dizziness, no appetite,...

Hi I'm 36 and these are the symptoms I deal with.. anxiety, heart palpitations, ...

Autumn11

•5 years ago

20 Replies

Liver Pain from Too Much B12?

Hey guys, Can too much b12 supplementation cause liver pain? Gave myself a b12 injection twice in one week (more than normal for me) and now I'm having some...

Hey guys, Can too much b12 supplementation cause liver pain? Gave myself a b12 ...

lownskater52

•5 years ago

7 Replies

I wonder if anyone can help re: old forum

This is a long shot, but in approx 2013 I posted the results of an Active B12 test result on the old forum, since I got the result I changed my email from ntl...

This is a long shot, but in approx 2013 I posted the results of an Active B12 te...

miravet

•5 years ago

4 Replies

B12 Symposium in Rotterdam 10th Oct

Anyone else in the Netherlands going to this? Martyn Hooper will be giving a presentation there too. Not sure my Dutch is up to it but i'll give it a go :)...

Anyone else in the Netherlands going to this? Martyn Hooper will be giving a pre...

Hidden

•5 years ago

2 Replies

Query about symptoms

If you suffering from peripheral neuropathy linked to low b12, can it be in hands and feet and can it be variable week to week? Can it flare during a virus?...

If you suffering from peripheral neuropathy linked to low b12, can it be in hand...

haggisplant

•5 years ago

10 Replies

Strange nocturnal pain

Hi guys, in may this year I started having pain in my lower back and sort of down the front of my legs. It was a hot burning pain that only happened at night,...

Hi guys, in may this year I started having pain in my lower back and sort of dow...

Pixielula

•5 years ago

8 Replies

Burning sensations

Does anyone get predominantly burning sensations all over the body? I get them in my legs, arms and back. I was taking injections every week but my doctor...

Does anyone get predominantly burning sensations all over the body? I get them i...

Coonass1

•5 years ago

9 Replies

Buying B12 from Germany

I decided this morning, after hearing Angela Merkel's remarks to our PM, it would be prudent to buy a stock of Hydroxocobalamin ampoules. This will give me a...

I decided this morning, after hearing Angela Merkel's remarks to our PM, it woul...

Hidden

•5 years ago

11 Replies

Injection frequency for Vitamin B12

I have been diagnosed with severe deficiency of B12 a month ago. My B12 level was 95 pmol/l (which is 42.27 ng/ml) and Active B12 level was 18 pmol/l (8.01...

I have been diagnosed with severe deficiency of B12 a month ago. My B12 level wa...

lucldh

•5 years ago

17 Replies

Plantar fasciitis

Does anyone else suffer from foot pain? A nurse at work suggested it may be plantar fasciitis. Can it be connected to b12 deficiency? Tia

Does anyone else suffer from foot pain? A nurse at work suggested it may be plan...

Hidden

•5 years ago

49 Replies

Injection Site Rotation

A few years after a diagnosis for pernicious anaemia, I am still unwell. I‘m light headed, the fog hanging over me constantly, unable to keep my balance,...

A few years after a diagnosis for pernicious anaemia, I am still unwell. I‘m lig...

Themabinogion

•5 years ago

6 Replies

folate deficiency - strange aches

Hi everyone, I was recently told i have low folic acid and have been put on tablets for 4 months, i have been getting sore neck shoulders, collar bones and...

Hi everyone, I was recently told i have low folic acid and have been put on tab...

jojoful

•5 years ago

3 Replies

Requesting advice

Can heart problems be part of B12 deficiency? I am having constantly noticeable heart beats which spike easily. My resting heart rate should be in the 60s,...

Can heart problems be part of B12 deficiency? I am having constantly noticeable...

Sita505USA

•5 years ago

18 Replies

Just got diagnosis, what else should I be taking

Hi All I have coleliac's disease and had always believed that my low b12 was due to this. I was a little casual about getting my 3 monthly b12 shot as I've...

Hi All I have coleliac's disease and had always believed that my low b12 was due...

TFH1

•5 years ago

10 Replies

Up and down after loading injections. Misdiagnosis?

Hi everyone. After experiencing dizziness, headaches and pins and needles I went to the GP and they diagnosed low B12 ( level was 151), told me to eat more...

Hi everyone. After experiencing dizziness, headaches and pins and needles I went...

ODAAT77

•5 years ago

4 Replies

Do b12 injections really work

Being needle phobic I dread having my b12 injections every three months. I don’t feel any different having these and I asked my gp what would happen if I just...

Being needle phobic I dread having my b12 injections every three months. I don’t...

Londone16

•5 years ago

33 Replies

Help need a diagnosis

Okay I've done several blood test for vitamin b12 deficiency, all came up high. In the thousands. But I supplement with vitamin b everyday. I can't live...

Okay I've done several blood test for vitamin b12 deficiency, all came up high. ...

Autumn11

•5 years ago

20 Replies

Rib pain sometimes with swelling any ideas?

Hi wondering if anyone has had anything similar and can shed some light on what might be the cause. For about 18 months now I have had discomfort on my bottom...

Hi wondering if anyone has had anything similar and can shed some light on what ...

Clare184

•5 years ago

9 Replies

B12 Deficient Newby

Hi All. Having recently been diagnosed with B12 deficiency I have been reading the posts here with interest. I am learning quickly but still have a few...

Hi All. Having recently been diagnosed with B12 deficiency I have been reading ...

Wolf79

•5 years ago

4 Replies

Anybody have trouble with temperature/hydration regulation?

Hey everybody. I'm from Florida in the US and am currently in Arizona work work. Florida is the most humid state in the country and Arizona is the dryest....

Hey everybody. I'm from Florida in the US and am currently in Arizona work work...

lownskater52

•5 years ago

7 Replies

B12 Injections

Hi, I've been diagnosed with B12 Deficiency & am starting Injections at the GPs this Friday. I'm a little confused to be honest as the GP has prescribed me B12...

Hi, I've been diagnosed with B12 Deficiency & am starting Injections at the GPs ...

Hidden

•5 years ago

23 Replies

Do I have pa?

Hi all, I'm curious about pa . I have had aneamia my whole life due to thalleseamia trait I have hypothyroidism after removal via radio iodine. My b12 sits...

Hi all, I'm curious about pa . I have had aneamia my whole life due to thallesea...

Contra21

•5 years ago

4 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2019

4months on - still dizzy - B12 and anemia!

haemoglobin

Follow up ,,, gp wants to reduce my b12shots to only 2 a year!!

Sympathetic Neurologist

Skin biopsy to detect peripheral neuropathy

Potassium supplement

Eyes/Very interesting article

Vision technology update

Any test in the U.S.?

Liver Pain from Too Much B12?

I wonder if anyone can help re: old forum

B12 Symposium in Rotterdam 10th Oct

Query about symptoms

Strange nocturnal pain

Burning sensations

Buying B12 from Germany

Injection frequency for Vitamin B12

Plantar fasciitis

Injection Site Rotation

folate deficiency - strange aches

Requesting advice

Just got diagnosis, what else should I be taking

Up and down after loading injections. Misdiagnosis?

Do b12 injections really work

Help need a diagnosis

Rib pain sometimes with swelling any ideas?

B12 Deficient Newby

Anybody have trouble with temperature/hydration regulation?

B12 Injections

Do I have pa?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive