Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2019

Why am I always tired!

Hi, I have had my b12 deficiency for over 10 years. I have become more tired and constantly feel exhausted. I do have my injection every 12 weeks. I have told...

Hi, I have had my b12 deficiency for over 10 years. I have become more tired and...

Shellz87

•5 years ago

8 Replies

Medicheck results - should I go back to GP?

Hi first post on here. I’ve been back& forwards to GP a couple of times a year for 5 yrs + with exhaustion, palpitations, brain fog, forgetfulness and lots of...

Hi first post on here. I’ve been back& forwards to GP a couple of times a year f...

Stichelb

•5 years ago

4 Replies

Could someone help me make sense of what I need to do now?

After several weeks of peculiar symptoms: numbness and tingling in arms and legs, weakness and pain I asked for a blood test at my GP surgery. According to...

After several weeks of peculiar symptoms: numbness and tingling in arms and legs...

Worriedatthemoment

•5 years ago

9 Replies

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Pernicious Anaemia - Fibromyalgia

Hello, I’m new here :) I was diagnosed with PA last month after being ill for what I would say forever.... doc says 6 years.... reason I am here is to...

Hello, I’m new here :) I was diagnosed with PA last month after being ill for w...

Christina1988

•5 years ago

26 Replies

How much time to lower b12levels

My b12level is 2000...I want to lower it..can anyone suggest how long should I not be taking shot to bring back my levels to normal?(I want to lower my levels...

My b12level is 2000...I want to lower it..can anyone suggest how long should I n...

Gunj_redjem

•5 years ago

9 Replies

Veggie vegan flexitarian and b12d

Hi All I became b12 deficient due to a vegetarian almost vegan diet coupled with my gp prescribing Omaprezole to restrict my stomach acid - I had recurring 6...

Hi All I became b12 deficient due to a vegetarian almost vegan diet coupled with...

Alfabeta

•5 years ago

12 Replies

New doctor declares I don't have B12 deficiency because my symptoms continue despite frequent SI

I don't know how to refute the doctor's conclusion when even I don't understand how it's possible that I can SI every day or so and yet still have irregular...

I don't know how to refute the doctor's conclusion when even I don't understand ...

Dopey-Grumpy-Sleepy

•5 years ago

4 Replies

Pernicious Anaemia, PVC's and Atria Fibrillation

I've been suffering with low B12, PVC's and AF for a number of years. I decided to switch to self injection around 3 years ago, due to the local GP's not...

I've been suffering with low B12, PVC's and AF for a number of years. I decided...

th3joker

•5 years ago

2 Replies

B12 injection reaction

I’m in the UK, I had my first B12 injection yesterday and today I’m feeling very dizzy and unstable on my feet! Any one else had that reaction, I’ve to have...

I’m in the UK, I had my first B12 injection yesterday and today I’m feeling very...

Marrob

•5 years ago

15 Replies

New publication on patient experiences.

From the PAS Facebook group. Good news! Dr. Heidi Seage, et. al., will be publishing an article about pernicious anaemia patients in the Journal of Patient...

From the PAS Facebook group. Good news! Dr. Heidi Seage, et. al., will be publis...

fbirder

•5 years ago

1 Reply

PA plus Ileostomy

Can anyone please tell me how often I should inject, Having PA and ileostomy it is virtually impossible for me to absorb

Can anyone please tell me how often I should inject, Having PA and ileostomy it ...

maggiemummy

•5 years ago

2 Replies

Correct needle and syringe for B12 injections

I ordered B12 ampules from Germany and they will be here in another 1-2 weeks. Can anyone recommend the least expensive place to order the supplies for this?...

I ordered B12 ampules from Germany and they will be here in another 1-2 weeks. C...

rosehill

•5 years ago

7 Replies

Canker Sores

Do any of suffer from canker sores. I do regularly. I have one one on my tonsil. I am 3 months into treatment. How long into monthly injections does this...

Do any of suffer from canker sores. I do regularly. I have one one on my tonsil....

CW12

•5 years ago

4 Replies

Poster

I've managed to get a poster on B12 accepted byour my doctors surgery and put up. Also the very good leaflet in the staff room !

I've managed to get a poster on B12 accepted byour my doctors surgery and put up...

Nackapan

•5 years ago

20 Replies

Understanding Test Results?

Hi all, I’m hoping somebody can help me make sense of my recent blood test results. I was told I had abnormally low B12 following a blood test about 2 years...

Hi all, I’m hoping somebody can help me make sense of my recent blood test resul...

Fierybiscuits

•5 years ago

3 Replies

Still waiting for results!

I had a blood test 4 weeks ago. My GP wanted a full blood count and also Intrinsic Factor test ( which I had to request) as my B12 levels have been steadily...

I had a blood test 4 weeks ago. My GP wanted a full blood count and also Intrins...

Fox123

•5 years ago

6 Replies

Can Neurological symptoms develop years after being treated for B12 deficiency

I have had PA for 20 years and have B12 Injections every 3 months but still have had over the year’s symptoms of PA such as constant tiredness, weakness,...

I have had PA for 20 years and have B12 Injections every 3 months but still have...

Lilac03

•5 years ago

30 Replies

Well I wasn't expecting that 😳

I ordered a MMA urine test from medichecks, the kit arrived today. In it was a 5 litre container!!! I thought it was the weedkiller I had ordered from Amazon...

I ordered a MMA urine test from medichecks, the kit arrived today. In it was a 5...

miravet

•5 years ago

21 Replies

Transferrin saturation index was tested and I’m confused!!

Hello I was wondering if anyone could help, I’ve had a couple of iron infusions and need to keep an eye on my levels Incase it’s needed again, normally I get...

Hello I was wondering if anyone could help, I’ve had a couple of iron infusions ...

Kahlan_tf

•5 years ago

8 Replies

IV Fluids & Test Results

Anyone know if IV fluids received today, (like a bag of saline) would affect blood test results taken tomorrow? If that makes sense. Especially iron, iron...

Anyone know if IV fluids received today, (like a bag of saline) would affect blo...

esteloca

•5 years ago

6 Replies

B12 deficient but negative PA test

Hi, I would like some advice. I have just finished loading Jabs for b12 deficiency and I have been told I will receive no more injections. My red blood...

Hi, I would like some advice. I have just finished loading Jabs for b12 defi...

BlueTurtles

•5 years ago

9 Replies

Co supplements to b12 injections

Hello there I’m fairly new. Have led life of tiredness - had low b12 many times and had loading injections to then be told I’m ok now. Every six years or so...

Hello there I’m fairly new. Have led life of tiredness - had low b12 many times ...

Adddi

•5 years ago

6 Replies

Bitter taste

2014 noticed my taste changing. Now everything tastes bitter. Numerous blood tests. Many scans of head, neck, stomach. ENT identified blocked sinuses. Had...

2014 noticed my taste changing. Now everything tastes bitter. Numerous blood tes...

Bitter1957

•5 years ago

11 Replies

Advice on daughters blood tests please

Hi there My daughter recently had some bloods after go appointment. Can anyone advise please? Her B12 and folate is coming up abnormal and I’m wondering if...

Hi there My daughter recently had some bloods after go appointment. Can anyone...

joleen19832

•5 years ago

4 Replies

Recent GP appointment

Doctors appointment last week, I delivered Dr.Chandy’s book!! Went down ok(ish) he said thank you I will have a read. He went on to ask how I was as it’s...

Doctors appointment last week, I delivered Dr.Chandy’s book!! Went down ok(ish) ...

SMXX

•5 years ago

3 Replies

Warning about high dose B12 and B6.

From the PAS. A study published in JAMA Network Open discovered that “Older women who take high doses of vitamin B6 combined with high doses of B12 are at...

From the PAS. A study published in JAMA Network Open discovered that “Older wo...

fbirder

•5 years ago

12 Replies

Massive spasms? Almost Seizure but awake. Could it be B-12?

Does anyone else have spasms so bad you can’t stand and flop around on the floor? It’s engaging my full spine and arching me up then slamming me down....

Does anyone else have spasms so bad you can’t stand and flop around on the floor...

5vejil

•5 years ago

22 Replies

Withdrawal of B12 injections

Hi, I'm new here, although not new to B12 deficiency or the PAS site. I'll give you some background before I explain my current dilemma. I'm a 36yo female,...

Hi, I'm new here, although not new to B12 deficiency or the PAS site. I'll giv...

F1lligree

•5 years ago

14 Replies

MTHFR gene

Does anyone else have MTHFR gene mutation? How does it affect your PA treatment? And Diet? Any suggestions for managing PA and MTHFR

Does anyone else have MTHFR gene mutation? How does it affect your PA treatme...

CW12

•5 years ago

37 Replies

Night sweats

Does anyone find they get night sweats ,from the b12 jab ,I dont no if my nightsweats are from b12 ,I dont no what else it could be ,I have it every two months...

Does anyone find they get night sweats ,from the b12 jab ,I dont no if my nights...

Alice70

•5 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2019

Why am I always tired!

Medicheck results - should I go back to GP?

Could someone help me make sense of what I need to do now?

Pernicious Anaemia - Fibromyalgia

How much time to lower b12levels

Veggie vegan flexitarian and b12d

New doctor declares I don't have B12 deficiency because my symptoms continue despite frequent SI

Pernicious Anaemia, PVC's and Atria Fibrillation

B12 injection reaction

New publication on patient experiences.

PA plus Ileostomy

Correct needle and syringe for B12 injections

Canker Sores

Poster

Understanding Test Results?

Still waiting for results!

Can Neurological symptoms develop years after being treated for B12 deficiency

Well I wasn't expecting that 😳

Transferrin saturation index was tested and I’m confused!!

IV Fluids & Test Results

B12 deficient but negative PA test

Co supplements to b12 injections

Bitter taste

Advice on daughters blood tests please

Recent GP appointment

Warning about high dose B12 and B6.

Massive spasms? Almost Seizure but awake. Could it be B-12?

Withdrawal of B12 injections

MTHFR gene

Night sweats

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