Requesting advice: Can heart problems... - Pernicious Anaemi...

Pernicious Anaemia Society

32,244 members23,422 posts

Requesting advice

Sita505USA profile image
18 Replies

Can heart problems be part of B12 deficiency? I am having constantly noticeable heart beats which spike easily. My resting heart rate should be in the 60s, but is 85+. I can’t help but feel that this is part of a bigger issue, since my digestive/elimination system is sluggish and slowing and I feel terrible all over. I have no energy, no appetite, am extremely pale, shaky, weak, congested, confused, clumsy, etc.

I am to be scheduled to see a cardiologist, who knows when..I will get some labs today, my iron was fine in September. Any suggestions are welcome and appreciated! Sita

Written by
Sita505USA profile image
Sita505USA
To view profiles and participate in discussions please or .
Read more about...
18 Replies
Nackapan profile image
Nackapan

Have you had a standing bp done? Do you feel faint on standing. I only s

ay this as a family member suffered for some time before POTS was diagnosed. B12 defiency too with gastric problems.

Drinking lots of water helped.

I have had heart palpitations and thudding heart at the start of b12 defiency and treatment. That I seldom have now.

Hope the cardiologist finds the cause.

Sita505USA profile image
Sita505USA in reply to Nackapan

Hi

No, I haven’t had a standing BP. I hate to get anything else, but I don’t think I get a choice. I am feeling very miserable physically and down emotionally. Thanks for responding!

Nackapan profile image
Nackapan in reply to Sita505USA

It must be very difficult. Lets hope a transient problem. Didn't want to worry you but just wanted you to ask cardiologist to rule things out.

Take care

Sita505USA profile image
Sita505USA in reply to Nackapan

Thank you! I will ask that if I ever get to see one. I appreciate your caring!

YogiGreg profile image
YogiGreg

Hi Sita505USA . Yes, I had heart palpitations and arrhythmia with B12 deficiency. So bad in fact that twice I went to Emergency thinking something more sinister was going on only to be told my heart was all good. One of my B12 deficiency symptoms was also anxiety and panic attacks which also contributed to my heart palpitations. I've been 6 months on treatment now and the anxiety and heart palpitations have eased but not fully gone yet.

All the best.

wedgewood profile image
wedgewood

Before treatment for diagnosed P.A. , I used to get what I called “ funny turns” , when my heart would suddenly beat very fast , and I felt like fainting. They lasted about 5 minutes . Doctors told me there was nothing wrong . Since treatment ( and I have to self -inject weekly ) the “ funny turns” have disappeared . This is since treatment started , 4 years ago . I assume therefore that the B12 has fixed the problem .

P.A. also affected my gut , with bloating , burping and stomach pain . Since treatment with B12 , and helping the lack of stomach acid which comes with PA , ( probiotics and other means ) this problem has also gone . I do hope that you manage to get good treatment . Best wishes .

Sita505USA profile image
Sita505USA

Thanks for responding. Yes my stomach is bad too!

HeartyGilly profile image
HeartyGilly

My heart problem (paroxysmal atrial fibrillation) and B12 deficiency were diagnosed at exactly the same time. Co-incidence?

Sita505USA profile image
Sita505USA in reply to HeartyGilly

Thanks for responding. I am hoping that my symptoms are only B12, not some heart issues, time will tell. I wish you the best! Sita

Frank77 profile image
Frank77

Hello Sita505USA, Yes heart problems can be B12 related. Chest pain and palpitations are not discussed here as often as certain other symptoms, but for me they have been some of the most disturbing. My experience is similar to that of YogiGreg: over the past two years I have been in ER (Emergency) twice with severe chest pain and palpitations. The first time was just after I learned I had PA and I did not know much about B12d symptoms. It turned out that the doctors in ER knew even less than I did: they could find nothing wrong with my heart. On the second occasion - only 3 weeks ago - it was exactly the same: ECG, X-ray, blood tests etc revealed absolutely nothing. Once again the doctors could provide no explanation and would not comment on my suggestion that it might be b12 related as they simply had no knowledge of this. On the second occasion I was at first convinced that this time it could not be B12 as I have been self injecting for over a year. I was wrong. When I came home from the hospital 3 weeks ago I decided to go immediately onto a daily B12 injection regime. The chest pain disappeared on day 3 and has not returned. What I have learned from this experience is that I need more b12 than I thought. I have now changed to a twice weekly SI regime and so far feel fine - not only has the chest pain stayed away but I also haven't had the brain fog, balance problems, muscle pain that I would occasionally experience on my previous one-jab-a-week regime. Why I need injections so often to keep symptom free, when other people can get by on one jab every two months, is a mystery to me. One of the many riddles with this awful disease... My advice to you is to rule out other possible causes of the chest pain (obviously) but if there is no obvious reason, and you already know that you have a B12 problem, then it is almost certainly B12 related. The good news is that it can be treated easily with a regime of injections - trick is to find a frequency that works for you :) Good luck to you.

Sita505USA profile image
Sita505USA in reply to Frank77

Frank

May I ask how long you did daily injections before changing to your current schedule? And how did you make the decision to back off?

One of the problems I have is difficulty with no sensation and being able to tell that something is helping. I also have a terrible tendency to panic and change several things at once, then I haven’t a clue as to what may be helping or hurting. Thanks. Sita

Frank77 profile image
Frank77 in reply to Sita505USA

Hello Sita. I stopped the daily regime of jags after 3 days because the chest pain went away. I then thought that it is logical to increase the frequency of injections from my old regime (once a week) to something better. 2 a week seemed logical to begin with. Obviously none of us wants to inject more than we need to so it is a question of increasing frequency slowly until we reach the regime that works. 2 a week currently seems to be ok for me, but who knows? If I get symptoms returning I may have to go to daily jags.

Sita505USA profile image
Sita505USA in reply to Frank77

Thank you! I am having a tiny bit of chest pain, but mainly rapid heartbeats that I can feel and fatigue and an overall crummy feeling. I did my second SI in two days today, so I will see how it goes and experiment. If I can get to feeling better it will be easier to experiment. SIs leave me with bruises and sometimes lumps, so I would prefer to do as little as possible, but will put up with bruises, etc. to feel better! My best to you! Sita

Sita505USA profile image
Sita505USA

Frank

Thank you so much for your reply. I have been injecting every other day for over a year, so I was thinking it must be folate or Vitamin D, or something entirely different. I had blood work done on those yesterday, so I will be able to check those levels. I will do daily SI for awhile and I will have my heart checked out. I know some folks have to do daily SI, this is such a baffling disorder.

You are right, heart problems are not discussed much on this site, but I have found them to be the most difficult symptoms to deal with.

Thanks again for your response, I very much appreciate it. Sita

CAgirl profile image
CAgirl

The National organization for Rare Disorders cites that pernicious anemia may cause an abnormally rapid heartbeat (tachycardia). Here is the link: rarediseases.org/rare-disea....

This is one of the most challenging symptoms that I have. Please ask your physician to consider this and to ask what they suggest to do about this. For me personally on any heart palpitations on a daily basics, I use a magnesium supplement. Once again please ask your doctor for what will work for you.

Every two months in the middle of the night I am awaken to heart palpitations that range from 40 to 210 in a very quick manner. This may last for up to 6 hours. I am currently working on this right now.

I have not had this issue for over (15) weeks due to a daily doze of methylated B12 drops under my tongue.

Like others on this site, I may need B12 more often. I am hoping this is the solution for me!

For me, this is the most scary part of all this!

Any input from anyone else would be greatly appreciated.

Wishing everyone peace/love/wellness!

Sita505USA profile image
Sita505USA in reply to CAgirl

Thanks so much for your response and I am sorry you are having to go through this. Can you tell me the brand of methylated B12 drops that you use, and where you purchase them?

I take magnesium and try to be careful not to take too much of it.

I am glad you responded, maybe you and I and others having these symptoms can get good and helpful input that only members from this forum provide. I feel that I have already gotten good information, but this disorder is so different for each of us, that all information is helpful. Peace and good health to you! Sita

CAgirl profile image
CAgirl

The Methylated B12 drops that I use are from a compounding pharmacy. (LaVita Compounding in San Diego) I had them made without the peppermint flavor filler. (I used it once with the filler and had very strong allergic symptoms) A doctor has to order it for me. However I am able to refill whenever I want due to the fact that it is not a "controlled" substance. I hope this information helps! Take Care!

Sita505USA profile image
Sita505USA

Ok, thanks! I was hoping they were over the counter. Getting any doctors here to do anything with B12 is very hard!

You may also like...

Requesting help with Folate questions.

anxiety and heart palpitations increased and my digestive tract and elimination systems started to...

Blood tests to request as having brain fog …

I’d ask for a reminder of other tests …. I said iron ferritin and vit d ….. any suggestions please...

Blood results as requested on my other thread

Advice on sublinguals

but still having increased heart rate and out of breathe, seeing cardiologist atm but so far...

Blood Analysis Kindly Requested!

doctor. l've just started supplementing with oral iron capsules and they are helping too. P.S. My...