Strange nocturnal pain

[Pixielula]

Hi guys, in may this year I started having pain in my lower back and sort of down the front of my legs. It was a hot burning pain that only happened at night, I was at centre parcs when it started and had to take paracetamol and diclofenac for pain relief but was unable to lie down or sit as the pain was so bad. I got home and did a b12 injection then again the next morning and the pain subsided then went away. Spring forward to a few weeks ago and the same thing happened. We were due to fly to cypress and a few nights before we flew I started getting low grade pain overnight in my lower back/hips and down the front of my legs. I did a b12 shot the day before on Friday and took two with me. Loaded up on pain relief for the flight. The first two nights I was not too bad and was using the paracetamol diclofenac Combo, then the pain stepped up a gear My own medication didn’t seem to be helping so I went to the local pharmacy and they sold me some very powerful diclofenac and a muscle relaxant. I did my two b12 shots on Tuesday and Wednesday and by the Friday night all pain had once again gone. What I can’t understand is this ....... I only got the pain at night! It would start around 7:30-8pm and go away at 7-8am. During the day I needed no pain relief at all and didn’t have any pain or ache or even a twinge to say the pain had been there. It was so strange to have horrendous pain at night to the point I was only getting three hours sleep and taking some pretty powerful pain killers, yet nothing during the day! Has anyone else experienced this!!!

[Sunshine1932]

I have similar pain and I put mine down to the B12 doing its thing.

Sometimes the pain is so bad I end up in a childs pose to get some relief.

I find if I do my b12 every other day then it gets really bad but if I stick to once a week then it eases off.

So my theory is that it's the b12 working and I have to be patient.

I an still experimenting with my b12 shots as I have a lot of neuro symptoms to the point at one stage I couldn't even feel boiling water on my hand.

However like most in this site, symptoms creep up and we dont put it all together in one go and as most of us on here our GP's dont seem to know how to help.

Most of my pain I will admit is on my right side from head to toes but at night it does include both legs.

I am to see a neuro dr next month and ot has taken 3 months to see them and that was an urgent appointment I have been told.

I have had so many tests done and the only thing that ever came back negative was a b12 reading of 142 and that was 18 months ago.

B12 shots are amazing as I'm now able to exercise again, my skin is less wrinkled as it was hideous for a woman in the 30's and I have less brain fog.

For me my symptoms now are muscle weakness, bone decay in my jaw, cramps, electric pain, temperature sensitivity, forgetfulness but not as bad and I can easily pick up a virus or two.

My lower spine and head also give me a lot of pain at times.

I hope my ramble gives you some comfort and always best to get things checked out that you are not sure about.

🙏

[Pixielula in reply to Sunshine1932]

Do you get pain during the day also? Or only at night? I’m not sure that it is b12 related or that it is coincidental that perhaps the pain was going away on its own. I have only experienced three episodes so far so it’s to early to tell. I have to say I cannot imagine dealing with this at the age of 30.... you poor thing. What an insidious disease this is

[Sunshine1932 in reply to Pixielula]

I only have the pain at night and it comes in waves. I may have it for a few nights and then nothing for a week or so.

I find that mine is worse when I first get to bed and after a few hours it settles down.

I stopped taking anything other than paracetamol as I found stronger pain medicine didn't really do much more to help and would cause other unwanted symptoms.

It really does come in waves and I think mine could be due to the bottom of my spine but I wont know anything until next month.

Good yoga stretching helps me at times and why I can end up in a childs pose in bed.

The pain is not bone or muscle but more electric pain if that makes sense.

Fingers crossed it's just our bodies healing

[Miss-guineapig]

I read your post with great interest. I too have pain in my legs, mainly top femur area. Always at night and it's an ache pain, difficult to describe but it's hard to get comfortable and it disrupts sleep. I'm always fine during the day. I try to think if it's because I did a lot of walking during the day, then I wonder if it's because I didn't walk enough that day. The strange thing is Pixie, some nights I'm totally fine. I then wondered if I need to drink more, but it's not a cramp feeling like dehydration may cause. I started drinking more anyway, but it makes no difference. No rhyme or reason but I most certainly put it down to PA. I also tried taking some oral VitB12 3x 1000 to see if that helped but no luck there either. I haven't mentioned this symptom to my GP yet, mainly because I feel she must think I moan all the time. Please let us know how you get on or if you find a reason or solution. X

[Baggy8]

Have you considered asking your GP to investigate and rule out back issues? I experienced excruciating pain and subsequent numbness which ended up being a cauda equina. It’s sometimes a temptation to lay everything at the door of PA or B12 deficiency.

[Pixielula in reply to Baggy8]

So my biggest problem with my doctors is firstly I don’t seem to have one it’s normally the pharmacist that I see.... it is incredibly hard to get an appointment the last app I made took 49 phone calls and two visits to the practice and then it was the pharmacist I ended up seeing. My doctors surgery have never given me a b12 injection as they insisted on a blood test my b12 was over 1500 so I was told I didn’t need one. They are pretty much worse than useless so I try not to go. I feel they would try to blame it on my very well controlled type 2 diabetes. Due to where we live they are the only GP practice I was allowed to join. They do however prescribe my T3 for me so I always feel like I have to pick my battles with them........ the pain started again on Sunday this week same pain but very low grade so mon, tues, wed I gave myself a b12 shot and by wed night all pain had gone it’s very strange. But it seemed to stay low grade so maybe the three shots stopped it progressing

[MarsBarKid]

"Strange pain" is one thing I have had and it led me to finding out that when I got pernicious anemia at age 15 in UK at time - it was for life. GP back then from birth on list etc didn't tell me . Looking as to how to stop this pain - burning pain that stopped me sleeping in left heel and ache up the leg at times - read on American Site to eat blackberries daily so did and have along with raspberries, & blueberries as all black fruit is good seemingly for ridding us of radicals and then found out there, B12 is for life. So also started taking B12 sublingual tabs and still do today - some 10 or more years later.

Forget to defrost the berries which buy frozen, grown in Chile fm supermarket and back it comes tiny pain at first but go 2 days and wow. Also GP I have now when I mentioned this did a blood test and said B12 too high was 942 and should be in 440 range and to take it 3 days a week - that brought back pain - so now take 1000 mcg of B12 daily and eat the berries which are delicious Give them a try and'or B12 sublingual saves trips to docs and that usually long wait. Got a shock recently - road works held me up and was 10 mins late and girl said - I have to ring the doc and see if he will see you as late!

Honestly what a cheek - was gobsmacked into silence !

Also dont forget to take a supplement of CO Q 10 if approaching or past 50 - as diminishes and it does so much, keeps the heart muscle healthy for a start - its in every cell in body and needed for whole body to work efficiently. Never get told this at GP -I always feel they are pushing the envelope to learn more as allocate us around 8 mins a visit and always running late due to it not being enough time IMHO. Thankfully forums like this help us out - thanks Admin!

[Pixielula in reply to MarsBarKid]

I do eat blueberries not every day though. Thank you all for taking the time to respond