Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for June 2019

First SI advice pls - what not to eat (peaches / stone fruits ?) and prolong initial loading doses period?

Hello All, I've come across a couple of posts that mention not eating peaches, it seems to refer to stomach acids and other stone fruits as well (?), but I...

Hello All, I've come across a couple of posts that mention not eating peaches, ...

_Rose

•5 years ago

9 Replies

Blood testing Whilst on B12 Jabs 🤷‍♀️

So I have now been told I have to have a blood test to check my B12 levels. I refused last year as I have regular 8 weeks jabs so pointless testing. I have...

So I have now been told I have to have a blood test to check my B12 levels. I re...

Meggymoo63

•5 years ago

24 Replies

MCV increasing / folate levels

Just a quick question. When my daughter was first diagnosed with vit b deficiency her MCV was 92.5. She has been on every other day injections for a few...

Just a quick question. When my daughter was first diagnosed with vit b deficienc...

Vicky2822

•5 years ago

4 Replies

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B12 patches

I saw mention of B12 patches, have anyone used them? Do they work? Where do you get them?

I saw mention of B12 patches, have anyone used them? Do they work? Where do you...

Essence49

•5 years ago

8 Replies

B12 Advice needed

Last few weeks I have been very tired, a bit like flue but without the other symptoms, Completely unrelated I was booked into the doctors for a well mans...

Last few weeks I have been very tired, a bit like flue but without the other sym...

UncleChip

•5 years ago

4 Replies

Half-life b12

Hi, i was wondering the following;”: 1. What is the half-life of a b12 (hydro) in plasma? 2. How long can the body use the remaining b12 (of the injection) for...

Hi, i was wondering the following;”: 1. What is the half-life of a b12 (hydro) i...

GC010

•5 years ago

5 Replies

Suggestions, guidance, compassion

One doctor tells me I have lymphedema. Another says not. I am diagnosed with peripheral neuopathy. I have not had cancer and am not diabetic. My foot, ankle...

One doctor tells me I have lymphedema. Another says not. I am diagnosed with pe...

roosevelt4

•5 years ago

5 Replies

B12 treatment progress advice

My b12 treatment started more than 3 months ago. First 10 injections in 2 weeks as loading dose. Followed by 2 weekly injections for 2 months. Since 3 weeks...

My b12 treatment started more than 3 months ago. First 10 injections in 2 weeks ...

GC010

•5 years ago

11 Replies

Blood test results

Hi. Can anyone explain the result difference in the private blood test I had done and the NHS one. NHS (June) Vitamin B12 - 324ng/L (180.0-914.0) Folate...

Hi. Can anyone explain the result difference in the private blood test I had don...

katrina100

•5 years ago

6 Replies

Tingly tongue?

I was wondering if anyone has experienced a tingly, numb-feeling tongue as part of low B12 symptoms? I have been having tingly mouth and tongue, especially...

I was wondering if anyone has experienced a tingly, numb-feeling tongue as part ...

annielou19

•5 years ago

34 Replies

Online B12 & syringes? I'm in the U.S.

Posted 6 days ago about my B12 issues & got some great replies! Monday, I got the 1st 1mg injection at the doc's, and a prescription for 6 x 1mg vials with a...

Posted 6 days ago about my B12 issues & got some great replies! Monday, I got th...

SouthSounder

•5 years ago

7 Replies

PA and heat intolerance

Hi all. I use to be a summer girl. Loved the heat. The last few years I just can't stand it. I get sick when the temp goes up. I'm also a right leg amputee and...

Hi all. I use to be a summer girl. Loved the heat. The last few years I just can...

Wowo23

•5 years ago

7 Replies

I thought it was just me

I’m mid loading dose for B12 injections (4) I can’t believe how terrible I feel. I feel 100 times worse than before and I still have 2 to go . They told me I...

I’m mid loading dose for B12 injections (4) I can’t believe how terrible I feel....

Lis74

•5 years ago

27 Replies

Loading Dose Advice

Hi can you tell me if loading doses can be given over 3 weeks rather than 2 weeks? Thank you Debbie

Hi can you tell me if loading doses can be given over 3 weeks rather than 2 week...

dabs17

•5 years ago

8 Replies

Mean corpuscular hemoglobin

Hi everyone! My MCH is now 33.6, it’s raised from 29 over 3 years. I’ve been having B12 injections for 2 years now, I self inject once a week: I’m also taking...

Hi everyone! My MCH is now 33.6, it’s raised from 29 over 3 years. I’ve been hav...

Sophieelizabeth

•5 years ago

6 Replies

Medichecks have a special offer for an ACTIVE B12 blood test —£29.00 . Combined Active B12 and folate blood test £59.00

Thought this might be of interest .

wedgewood

•5 years ago

3 Replies

IV B12

Hi All, I would like to ask has anybody tried B12 by IV. Beauticians seem to be offering them now

Hi All, I would like to ask has anybody tried B12 by IV. Beauticians seem to be...

Tigger62

•5 years ago

9 Replies

B12 - Starting Injections [June'19]

Cytamen Injection - Cyanocobalamin BP is prescribed by G.P. Starting on this today and followed by every three months - Shall report the results to compare...

Cytamen Injection - Cyanocobalamin BP is prescribed by G.P. Starting on this tod...

baboigeorge83

•5 years ago

9 Replies

Understand results

Hi All, I am attaching my blood test results on transferin and ferritin. I asked my doctor and he says all ok. But there seems to be some out of range from...

Hi All, I am attaching my blood test results on transferin and ferritin. I aske...

Thulasi1

•5 years ago

5 Replies

B12/ Vasculitus-----

WHAT IS GP---????? ALSO WHAT IS PA------I HAVE ALOT TO SAY ABOUT THIS B12 DEFICIENCY THANKS EVERYONE

WHAT IS GP---????? ALSO WHAT IS PA------I HAVE ALOT TO SAY ABOUT THIS B12 DEFI...

IMINHIM

•5 years ago

14 Replies

Beefy red tongue?

Hi Everyone, This is my first post and although not diagnosed with PA, I have alot of the symptoms i.e. breathlessness, lump in throat/chest area, chronic...

Hi Everyone, This is my first post and although not diagnosed with PA, I have al...

JayKay66

•5 years ago

16 Replies

Raising awareness in Wales in June.

Hopefully Wales will have more educated "Professionals" after this https://pernicious-anaemia-society.org/awareness/help-us-help-you/

Hopefully Wales will have more educated "Professionals" after this https://pern...

Ritchie1268

•5 years ago

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Could this be PA? And side effects of B12 shots?

Hi, I am new here. I have a Vit B12 deficiency but no anaemia, and because I am symptomatic, my GP has prescribed VitB12 injection 1 x month for 3 months. I...

Hi, I am new here. I have a Vit B12 deficiency but no anaemia, and because I am...

chicolini

•5 years ago

4 Replies

My jabs

Hi all. I realize I'm very blessed to have prescribed b12 injectables at the rate that works best for me. Right now I SI 3 times per week. Its suppose to be...

Hi all. I realize I'm very blessed to have prescribed b12 injectables at the rat...

Wowo23

•5 years ago

8 Replies

Fake high b12 levels?

Hello lovely people Again with more confusion... I have yet another Gp appointment tomorrow morning ( I think she's as fed up with me as i am with her). I am...

Hello lovely people Again with more confusion... I have yet another Gp appointme...

Gumball77

•5 years ago

2 Replies

Best Form of B12 for Injection

There has been some talk about B12 resistance, so I am writing to give my two cents regarding the form of B12 I use. I had my physician write a Rx for...

There has been some talk about B12 resistance, so I am writing to give my two ce...

garretttimson

•5 years ago

8 Replies

Online websites for b12injections

Hi has anyone used the b12 from vitamin b12 online web site?

1970s

•5 years ago

12 Replies

PAS talk to Welsh Assembly

Hi, PAS have asked PAS members in Wales to contact their AMs to attend event on Thursday 6th June 12 noon - 1.30pm....

Hi, PAS have asked PAS members in Wales to contact their AMs to attend event on ...

Sleepybunny

•5 years ago

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Help

Hi, I am new to the site and was diagnosed with B12 deficiency (level was 122mg) in March this year. Was told by GP I had the deficiency, another blood test...

Hi, I am new to the site and was diagnosed with B12 deficiency (level was 122mg)...

3spanners

•5 years ago

2 Replies

test results

My serum folate is 9.83 My B12 is 265 do these results mean borderline anaemia ? My Nephrologist has suggested some oral iron. My B12 is in range, but...

My serum folate is 9.83 My B12 is 265 do these results mean borderline anae...

bowler

•5 years ago

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2019

First SI advice pls - what not to eat (peaches / stone fruits ?) and prolong initial loading doses period?

Blood testing Whilst on B12 Jabs 🤷‍♀️

MCV increasing / folate levels

B12 patches

B12 Advice needed

Half-life b12

Suggestions, guidance, compassion

B12 treatment progress advice

Blood test results

Tingly tongue?

Online B12 & syringes? I'm in the U.S.

PA and heat intolerance

I thought it was just me

Loading Dose Advice

Mean corpuscular hemoglobin

Medichecks have a special offer for an ACTIVE B12 blood test —£29.00 . Combined Active B12 and folate blood test £59.00

IV B12

B12 - Starting Injections [June'19]

Understand results

B12/ Vasculitus-----

Beefy red tongue?

Raising awareness in Wales in June.

Could this be PA? And side effects of B12 shots?

My jabs

Fake high b12 levels?

Best Form of B12 for Injection

Online websites for b12injections

PAS talk to Welsh Assembly

Help

test results

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How Often do you feel you actually need your B12 injection?

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