Peripheral neuropathy in legs

[Meblue]

Want to hear from people with bad peripheral neuropathy in legs from this. How bad is your neuropathy? How long did you have it before you got treatment? Did the treatment help with the pain? Do you have trouble walking?

[Lorna12345]

Hello,I was diagnosed with low B12 deficiency 4 months ago (my result is less than 111). I have not been diagnosed with pernicious anemia.First I started to have tingling in my arms and legs and muscle fasciculations on my lega than arms than all over my body (thorax,neck,palms....). I had injections and have had one of 4 weekly in. The tingling seems to have improved, fasciculations have improved but they are still here. They Are small, brief and almost constant. They're not painful. I've read science articles abortus that. IT may take some time for them to go away, or they may not go away at all.Some symptoms may worsen before they got better. Im also vitamin D and folic acid defficient.

When ai started to have first symptoms I also Had EXTREEM PAIN (9/10) all over my body. Pain was deep. Like IT was in my bone marrow. Sometimes pain would appear in my arm, sometimes in my joints. Some studies showed that pain is beacause of peripheral neuropathy. Also pain can still be present during the B12 treatment as a result of nerve regeneration. Be prepare. Pain can be present for months. I still have pain. Try to take some analgetics.

[Meblue in reply to Lorna12345]

How long were you having the symptoms before you were diagnosed?

[Lorna12345 in reply to Meblue]

I think about five Years.but when I got needles and fasciculation (that was 4 months ago) than I was diagnosed. But I was always tired , my eye was twitching,i Had concentration problema,Memory loss, feeling kind of depressed during those 5 Years. I tought I was under a lot of stress. And I was. I thought IT was “normal” for strees living.

[Meblue in reply to Lorna12345]

Do you think you were that low the whole time? Do you know how you got that low?

[Lorna12345 in reply to Meblue]

I think I was. In my country there is no rutine check of B12. GP can’t check b12 without neurologist. I don’t know how I got that low. I eat and drink everything. I don’t drink alchohol. I am not a vegetarian. Some studies showed that anti baby pills can lower your vitamin status. I was taking them for 7 years.

[fbirder]

Be aware that normal painkillers, paracetamol, aspirin, ibuprofen, diclofenac, etc., will do nothing at all for neuropathic pain.

I found that gabapentin does a good job of reducing it to manageable levels. Others use pregabalin or amitriptyline. Opioids also work, but are addictive. I used to have to take codeine some evenings when it felt as if I was walking on broken glass. But I've been able to quit them since I started taking 900 mg of alpha lipoic acid a day.

[Lorna12345 in reply to fbirder]

I agree. Tramadol can help. Or you can try duloxetine. IT is used for depression and chronic pain. Opiodids as tramdol can be used for month every day. After that time they Are addictive. Some People used them more than month.

[PArforThecourse in reply to Lorna12345]

I take duloxetine fir muscle pain. I still get it but not nearly as often. Pain Gone Gel with Noriceptor has been my lifeline. It works in minutes and stops the pain. I wouldn’t go away overnight without it.

[Gambit62 Administrator in reply to Lorna12345]

strictly speaking tramadol isn't an opioid but it works in a similiar way to opioids and can be addictive - isn't addictive for everyone but as there is no way of knowing who will respond in that way and who won't it's best to only use it for short periods of time to minimise the risk.

[Lorna12345 in reply to Gambit62]

Tramadol is an analgesic pain medication that is indicated to treat moderate to moderately severe pain. Tramadol is indeed an opioid and a narcotic, though its exact mechanism of action is slightly different than other opioids. In short, it acts on the brain to change how the body feels and responds to pain.