Abdominal agony: Back in hospital again... - Pernicious Anaemi...

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Abdominal agony

Benji76 profile image
10 Replies

Back in hospital again a few days ago with acute abdominal pain. Not the first time. Could not move. Nothing touched it (painkillers etc). Following onset recently of disturbing neurological symptoms, asked them to check my B12 as I think there's a connection, as here: researchgate.net/profile/Ne...

They concluded all my bloods in normal range and shrugged when I talked about neuro stuff. I was discharged, my pain put down to constipation - which is not what I said. Still have pain, by the way, though it is much less. Very very tired. Feel a bit like I've been used as a punchbag.

My B12 levels are over 1000 apparently. Am I likely to get these symptoms from too much? Or is it safe to assume I need more and self inject?

Be interested to know if anyone else has had this.

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Benji76 profile image
Benji76
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wedgewood profile image
wedgewood

If you have PA. , then you are likely to have low/no stomach acid ( anti bodies attack parietal cells that produce the Intrinsic Factor and stomach acid .Hypochlorhydria/Achlorhydria) I was told this by a gastroenterologist who I consulted for abdominal pain and bloating . He only told me this after he had prescribed some useless drug (metoclopramide) which I took for 3months and didn’t help at all. When I asked for a stomach acid test,he said that there wasnt one . I found out that lack of stomach acid upsets the stomach flora , and bad bacteria takes over causing bloating and stomach pain . I then read about a probiotic called Symprove , which is recommended for IBS. . Any how I bought some and used it for 3 months -problems disappeared ! I even wrote to the gastroenterologist and told him . He responded that he could not prescribe probiotics . Symprove is very expensive . There are probiotic capsules called Bio-kult which are also good . Best and cheapest is to make your own sauerkraut . Get a fermentation jar ( Lakeland ) fill it with shredded organic cabbage and a bit of sea-salt ( recipe on Internet )

It can be purchased at health food shops and Amazon . —- must be organic and unpasteurised and eaten RAW to get full benefit of the probiotics . Look I don’t know if probiotics will help you , but it’s worth a try . Whatever -you will do yourself no harm with probiotics . Best wishes .

Benji76 profile image
Benji76 in reply towedgewood

Thanks Wedgwood. Sauerkraut eh? Blimey. I'll give anything a go...

Benji76 profile image
Benji76 in reply toBenji76

Also, jury's still out as to whether I have PA but so far it is walking and talking like it - just no positive intrinsic factor test. I am assuming, for now, that it is PA since no one can give me any other explanation.

wedgewood profile image
wedgewood

And no , you don’t get those symptoms from too much B12 .

pvanderaa profile image
pvanderaa

Did they check your gall bladder for gall stones? These can occur when low B12 causes high cholesterol.

Benji76 profile image
Benji76 in reply topvanderaa

Don't know what all the blood tests were for but no one mentioned gall bladder. I'll look it up. They only seemed concerned as to whether it was appendicitis at the time.

MoKayD profile image
MoKayD in reply topvanderaa

I was going to suggest checking for gallstones too. I had mine removed several years ago because I had a couple of agonizing gallbladder attacks. Except for childbirth, the worst pain I have ever experienced. A sonogram showed I had a very large gallstone bobbing around in my gallbladder.

Benji76 profile image
Benji76 in reply toMoKayD

Thanks MoKayD. I think gallstones might be right. I asked about scans when I was in. Registrar told me flatly that it was unlikely I'd a get a CT (ie. for gallstones) since it was the weekend. Spoke to my GP today who seemed to think this was not worth follow up as blood tests at the time would apparently have highlighted inflammation if there were an obstruction. Somehow we then went from there to getting an MRI done for possible MS. What's in their heads? If it happens again I won't wait to call the ambulance and I will put my foot down about gallstones.

pvanderaa profile image
pvanderaa in reply toBenji76

The scan for gall stones is an ultrasound and not CT

ShootingStars profile image
ShootingStars

If you are in that much acute pain that it sends you to the ER, you need complete diagnostics and possibly a colonoscopy. If you’re still having pain and have no idea why, those people aren’t doing their jobs. Did they do an abdominal ultrasound to check gall bladder and to look for abnormalities or masses? Did they do a stool sample to check for bacteria, fungi and parasites? If they didn’t do any of these things, find a doctor who will do these tests so you can cross them off your list. You’d hate for it to be cancer or something like Coeliac’s or something they can biopsy. Do you eat gluten?

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