Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,086 members • 23,232 posts

All posts for March 2018

You are all very kind with your advise but since my bravery yesterday I am feeling very poorly today .

I feel so weak and the brain fog is terrible I am going to order what I need but for now the only thing I gave is the b12 boost spray ? Which I just bought a...

I feel so weak and the brain fog is terrible I am going to order what I need but...

Andypandy30

•6 years ago

24 Replies

Nightmare ordering my B12 from Versandapo

So I placed my first order for my B12 from Versandapo on 22 February, I have since had nothing but trouble getting it delivered via UK Mail, they say they have...

So I placed my first order for my B12 from Versandapo on 22 February, I have sin...

Debs281172

•6 years ago

3 Replies

The isolation of Self Injecting

I have been self injecting weekly since the middle of August 2017. This was to deal with neurological symptoms which developed in the months following the...

I have been self injecting weekly since the middle of August 2017. This was to d...

Hidden

•6 years ago

6 Replies

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How do you feel between doses

Hi. I began my loading protocol with 3 shots over 5 days. My shots were comprised of a B Complex mix that included 1000mcg of Cyanocobalamin (which...

Hi. I began my loading protocol with 3 shots over 5 days. My shots were comp...

vision2reality

•6 years ago

1 Reply

low normal b12 pregnancy

Hi again everyone, I have just found out unexpectedly that I am pregnant my last b12 test was 223 in uk my folate was 9 will being pregnant affect me

Hi again everyone, I have just found out unexpectedly that I am pregnant my last...

Ldhall

•6 years ago

2 Replies

I'm ready to start my own treatment advice please

I have had enough I want my life back and want to start self injections . I am in the U.K. And a little scared about ordering correct things . I also need to...

I have had enough I want my life back and want to start self injections . I am i...

Andypandy30

•6 years ago

16 Replies

Unable to test for Intrisic factor?

Hi everyone. A week ago I finished my loading doses of hydroxycobalamin injection which was every two days for two weeks. I then had a blood test to test my...

Hi everyone. A week ago I finished my loading doses of hydroxycobalamin injectio...

Schristie1992

•6 years ago

14 Replies

Low stomach acid,

Can anyone explain how low stomach acid impacts on B12 absorption? I have carried out the home experiment using bicarbonate of soda first thing in the morning...

Can anyone explain how low stomach acid impacts on B12 absorption? I have carrie...

jointpain

•6 years ago

14 Replies

Benefits of foods high in B12

Hi everyone, I need to eat a healthier diet and wondered if it was any ways beneficial to eat foods high in B12 although I have pernicious anaemia.

Hi everyone, I need to eat a healthier diet and wondered if it was any ways ben...

Margaret-S

•6 years ago

11 Replies

Need advice! Don’t know where to turn anymore

I was diagnosed with pernicious anemia a couple years ago. Since August of last year I have been on B12 injections. It was a battle to get those injections as...

I was diagnosed with pernicious anemia a couple years ago. Since August of last ...

Ashley8

•6 years ago

4 Replies

Thank you

Hello all. Just wanted to take a moment to say thank you for being there. I was a healthy active person my whole life until about a year and a half ago when I...

Hello all. Just wanted to take a moment to say thank you for being there. I was...

Cwilli

•6 years ago

4 Replies

B12 deficiency?

I had blood tests a few weeks ago as I'd been feeling exhausted all the time. I was told My b12 is the lower end of normal and my red blood cells are...

I had blood tests a few weeks ago as I'd been feeling exhausted all the time. I ...

kbel88

•6 years ago

16 Replies

Small purple lump on penile shaft

Hi iv had a slight pea sized purple lunp on the shaft of my penis for quite some time now I originally thought it was a burst blood vessel but it will not...

Hi iv had a slight pea sized purple lunp on the shaft of my penis for quite so...

Cleaver01

•6 years ago

3 Replies

Folic acid

I self inject .should I be taking a folic acid supplement as well Any advice please

I self inject .should I be taking a folic acid supplement as well Any advice pl...

Julesjules

•6 years ago

2 Replies

Newly diagnosed

Hello. Just received a diagnosis of PA two weeks ago. My primary symptoms are weakness and nausea. I'm taking shots every week (4 weeks then review of...

Hello. Just received a diagnosis of PA two weeks ago. My primary symptoms are ...

tray52

•6 years ago

15 Replies

How much liquid iron needed to fix iron deficiency

Hi Was wondering has anyone with iron deficiency here taken a liquid iron? Im now consuming floradix 20ml morning 20ml at night. Both with vit C 1000mg to...

Hi Was wondering has anyone with iron deficiency here taken a liquid iron? Im ...

mhrmzi

•6 years ago

6 Replies

PAS news item Education and PA

Hi All, PAS news item about PHD student looking at how long term conditions including PA affect a person's studies....

Hi All, PAS news item about PHD student looking at how long term conditions incl...

Sleepybunny

•6 years ago

Be the first to reply

Alcohol intolerance. Is alcohol dehydrogenase causing our continued issues even after b12 injections?

I posted previously in regards to having issues with being able to drink any amount of alcohol without feeling like I got run over by a truck. Several others...

I posted previously in regards to having issues with being able to drink any amo...

KimberinUS

•6 years ago

6 Replies

Advice re Passing the Word re B12 Around Please

Hi I've just seen this article in our local newspaper and immediately thought 'Will someone there be aware of the Vit B12 implications?' Clearly, this aspect...

Hi I've just seen this article in our local newspaper and immediately thought '...

JMN2017

•6 years ago

7 Replies

New Job!

Its 6 months plus of being out of work (was pretty nad for much longer had to be forced out really as bit of work addict at expense of health) the scaryiest...

Its 6 months plus of being out of work (was pretty nad for much longer had to be...

Fudgemanjim

•6 years ago

13 Replies

MCV98

Suffering with nausea. I am now on a treatment for a recurring h-pylori infection. I had a complete blood done and MCV is 98. I am at wits end. Any advise...

Suffering with nausea. I am now on a treatment for a recurring h-pylori infectio...

Yiayia74

•6 years ago

4 Replies

PAS support at Employment Tribunal

Hi All, Blog post from Martyn Hooper's blog about PAS support at tribunal. https://www.martynhooper.com/2018/03/01/another-employment-tribunal/

Hi All, Blog post from Martyn Hooper's blog about PAS support at tribunal. http...

Sleepybunny

•6 years ago

1 Reply

Can you be cured or misdiagnosed? Symptoms still the same!

I was diagnosed in UK with pernacious anaemia three yrs ago last yr have struggled to get Dr to give me injection here since moving back t9 Ireland, app my...

I was diagnosed in UK with pernacious anaemia three yrs ago last yr have struggl...

clare-f

•6 years ago

2 Replies

Help please. Need direction.

Hi for 15 yrs I have been B12 def. I've been on monthly injections this whole time. I also have to very often have loaded injections. My Gp has never been...

Hi for 15 yrs I have been B12 def. I've been on monthly injections this whole ti...

Jaylou82

•6 years ago

26 Replies

Intrinsic factor antibody test result

Hi all those who can understand results and what they mean. My Intrinsic factor antibody blood test result was 0.99 U/ml which was described as Normal - No...

Hi all those who can understand results and what they mean. My Intrinsic factor ...

jointpain

•6 years ago

5 Replies

B12 levels

In canada the b12 levels of normal is 138-652. Mine is 215. dr says this is normal. What's your take on this?

In canada the b12 levels of normal is 138-652. Mine is 215. dr says this is norm...

Shirley7144

•6 years ago

1 Reply

First order of B12 from Versandapo.de

I placed my first order with Versandapo for my B12 on 22 February got my tracking number and apparently it was attempted delivery last Friday 23rd. It was...

I placed my first order with Versandapo for my B12 on 22 February got my trackin...

Debs281172

•6 years ago

17 Replies

B12 deficiency - can I still be deficient with a normal blood level?

Could somebody please help me get to the bottom of what is wrong with me? I have had raised MCV on my FBC for several years now (5-6+), my MCH has been in...

Could somebody please help me get to the bottom of what is wrong with me? I have...

MADAMMAZDA

•6 years ago

5 Replies

Positive intrinsic factor result

Hi,I I posted a few weeks ago due to having low b12 and involuntary twitching, Since having the loading doses my moods have improved significantly the...

Hi,I I posted a few weeks ago due to having low b12 and involuntary twitching, ...

Natalie99999

•6 years ago

9 Replies

Is this a normal Vitb12 ‘loading phase’.

Hi everyone, I have just recently been supplementing with B12. Started with oral VitB Complex with a small 200 mcg of cyanoCabalamin. The was switched to...

Hi everyone, I have just recently been supplementing with B12. Started with oral...

vision2reality

•6 years ago

8 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Providing advice on safe sources for self injection

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All things Pernicious Anaemia Society(77)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2018

You are all very kind with your advise but since my bravery yesterday I am feeling very poorly today .

Nightmare ordering my B12 from Versandapo

The isolation of Self Injecting

How do you feel between doses

low normal b12 pregnancy

I'm ready to start my own treatment advice please

Unable to test for Intrisic factor?

Low stomach acid,

Benefits of foods high in B12

Need advice! Don’t know where to turn anymore

Thank you

B12 deficiency?

Small purple lump on penile shaft

Folic acid

Newly diagnosed

How much liquid iron needed to fix iron deficiency

PAS news item Education and PA

Alcohol intolerance. Is alcohol dehydrogenase causing our continued issues even after b12 injections?

Advice re Passing the Word re B12 Around Please

New Job!

MCV98

PAS support at Employment Tribunal

Can you be cured or misdiagnosed? Symptoms still the same!

Help please. Need direction.

Intrinsic factor antibody test result

B12 levels

First order of B12 from Versandapo.de

B12 deficiency - can I still be deficient with a normal blood level?

Positive intrinsic factor result

Is this a normal Vitb12 ‘loading phase’.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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