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Pernicious Anaemia Society

32,058 members • 23,207 posts

All posts for January 2018

Anyone please help me

Is this ever going to get better I'm losing hope . I felt awful the week before my b12 injection which was last week . Very down and exhausted . It wrote a...

Is this ever going to get better I'm losing hope . I felt awful the week before ...

Andypandy30

•6 years ago

32 Replies

Which tests can be done to see if there is an absorption problem, without having to stop supplementing?

I've been taking sublingual for months now. I would like to know WHY I'm always low in range (between 150 and 200) without supplementing, but would prefer to...

I've been taking sublingual for months now. I would like to know WHY I'm always...

Laura221

•6 years ago

3 Replies

Diagnosed with b12 deficiency 80pg/ml how long will it take to feel better?

Diagnosed with b12 deficiency 80pg/ml how long will it take to feel better? The doc has given me optineuron injections for 4 weeks. I have Vitamin d3 at...

Diagnosed with b12 deficiency 80pg/ml how long will it take to feel better? The ...

Anayak27

•6 years ago

8 Replies

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HAIR LOSS!!!!!!!!!

Morning all ☺... My hair is still falling out after 6 months of every other day si... Has anyone else experienced this?... Has anyone lost all thier hair?......

Morning all ☺... My hair is still falling out after 6 months of every other day ...

Frances55

•6 years ago

8 Replies

Absorption and vitamins deficiency?

I do have some questions for you all that are so knowledgeable. Can an absorption problem like I don't know, celiac disease, stomach ulcers, chronic or...

I do have some questions for you all that are so knowledgeable. Can an absorpt...

Ioana_17

•6 years ago

11 Replies

ask doctor for further blood work?

As of one year ago, my B12 normal serum levels were at 836 and my folate was indicated as high- over 20. However, I have all of the symptoms of low B12 and/or...

As of one year ago, my B12 normal serum levels were at 836 and my folate was ind...

moni4moni

•6 years ago

6 Replies

Going abroad

I've been self injecting for just over a year now and inject once a week to keep me ticking over. I haven't been on a holiday longer than 1 week since I...

I've been self injecting for just over a year now and inject once a week to keep...

Mr_E

•6 years ago

12 Replies

Reply please Bout B12

Thank you. I have a comment on pernicious Anaemia. Need advice. Kitty. Edit by Admin: please respond on this post...

Thank you. I have a comment on pernicious Anaemia. Need advice. Kitty. Edit by...

Kittykat50

•6 years ago

4 Replies

About my B12. Help!

I've been on b12 injection for 40yrs I chose to stop having them 6 month's ago coz the lost of my 26 yr old son. I should have them every 4 weeks. I do feel...

I've been on b12 injection for 40yrs I chose to stop having them 6 month's ago c...

Kittykat50

•6 years ago

34 Replies

Vitamins and sleep disorder (VitD)

Hello all, In my desperate research about me not able to sleep and lots of other symptoms like fast heart rate and headaches, dizziness and numbness, pins and...

Hello all, In my desperate research about me not able to sleep and lots of other...

Ioana_17

•6 years ago

13 Replies

Can B12 IM injection products also go sub cutaneous?

As the title, can I use the injectable products to either go under the skin or into the muscle or do I need to get two different products?

As the title, can I use the injectable products to either go under the skin or ...

BlueBoyMico

•6 years ago

13 Replies

low b12/folate- liquid

Hi guys... Brand new here. 23 female. After years of research and trying so many vitamins and seeing so many doctors I think I've finally narrowed down my...

Hi guys... Brand new here. 23 female. After years of research and trying so many...

moni4moni

•6 years ago

8 Replies

Folic Acid causing damage until B12 levels restored?

A member has commented on a thread here that the above can happen until you're at least 80% topped up, and to NOT take Folic until that time. This really...

A member has commented on a thread here that the above can happen until you're a...

BlueBoyMico

•6 years ago

5 Replies

B12 deficiency and peri menopausal

Hi I'm new here I'm 45 and for the past 6 months I've went through loads with my health I have psoriatic arthritis and 6 months ago was diagnosed with b12...

Hi I'm new here I'm 45 and for the past 6 months I've went through loads with my...

Kirstiet

•6 years ago

13 Replies

Burning feet/legs, tingling, breathlessness, Raynauds b12 normal

Has anyone experienced similar symptoms? After a virus last January triggered symptoms of Raynauds tingling hands/legs/feet and juddering sensations &through...

Has anyone experienced similar symptoms? After a virus last January triggered sy...

angelic1952

•6 years ago

7 Replies

Blood test results 6m on

So blood test six months after loading injections with no top up injections has come back B12 400, serum foliate 3.8, serum ferritin 15. 3 months ago B12 was...

So blood test six months after loading injections with no top up injections has ...

mesadies

•6 years ago

6 Replies

How long for B12 level to rise

Hi, Without telling my whole story, I found out my B12 was 143 this past July 2017. I have been getting injections monthly since then (weekly for the first...

Hi, Without telling my whole story, I found out my B12 was 143 this past July 2...

Vitamingirl

•6 years ago

3 Replies

Is it me or the 5 doctors refusing treatment who are wrong?!

Absolutely flabbergasted at this weeks events. Told on 28th Nov I’m B12 deficient (test result was 190). Put on tablets. Told since second blood test that...

Absolutely flabbergasted at this weeks events. Told on 28th Nov I’m B12 defici...

Turnerpie

•6 years ago

17 Replies

Quick one on pain meds?

Today is one of those bad days depite jab the other day... only another day till my next... but when symptoms are only mildly relieved (usually im like a new...

Today is one of those bad days depite jab the other day... only another day till...

Fudgemanjim

•6 years ago

11 Replies

How often is everyone getting a b12 injection and how long since being diagnosed?

Hi all. I'm not expecting miracles with this b12 but I am looking for some encouragement. Just wondering how long it has been for some since starting...

Hi all. I'm not expecting miracles with this b12 but I am looking for some enco...

Plucky1976

•6 years ago

2 Replies

Has my GP listened to me?

SO here's what the GP has ordered, anyone tell me if he as listened to me or just going through the motions to suppress a complaint? I've edited the...

SO here's what the GP has ordered, anyone tell me if he as listened to me or jus...

BlueBoyMico

•6 years ago

2 Replies

Vit b12 deficiency or not?

I saw doc in Dec because I am so (for me uncommonly) tired, ache, dizzy, forgetful (to the degree that I forgot to put pasta in a pasta bake!) My grandma, Mum...

I saw doc in Dec because I am so (for me uncommonly) tired, ache, dizzy, forgetf...

Ottobars

•6 years ago

9 Replies

Differing medical opinions? Hoping that this is positive outcome!

So today was the day of my neurology appointment, after waiting 9 months to be seen since referral in May 2017. I was holding so much hope that I would get...

So today was the day of my neurology appointment, after waiting 9 months to be s...

lc24

•6 years ago

11 Replies

Anemia making me feel like death

Iam a powerlifter how long before the b12 shots and iron tablets start to work this is killing me having no energy the doctors don't really care but to get so...

Iam a powerlifter how long before the b12 shots and iron tablets start to work t...

Tommy33

•6 years ago

7 Replies

Hydroxocobalamin IM Injection

Hello, I received my hydroxocobalamin to inject IM. Just wanted to make sure of a couple things. I have previously been self injecting the cyanocobalamin form...

Hello, I received my hydroxocobalamin to inject IM. Just wanted to make sure of...

Sunny560

•6 years ago

17 Replies

Levels before injection

Hi what should our levels be roughly before an injection? About 4 weeks before I start to feel gradually more sluggish (even when my thyroid levels are good)...

Hi what should our levels be roughly before an injection? About 4 weeks before I...

Salphy

•6 years ago

10 Replies

Cobro injection of vit b12

I receive 3 monthly injections of B12 in UK but as I have been struggling from week six, decided to get an injection while in Spain. I received it at a private...

I receive 3 monthly injections of B12 in UK but as I have been struggling from w...

Christine48

•6 years ago

16 Replies

B12 150 or 190 lower limit?

My B12 at 178 is way above the lower limit? Or is it? Hi there. I asked the Doctor to check my B12 because of some symptoms I was having, eg tiredness, joint...

My B12 at 178 is way above the lower limit? Or is it? Hi there. I asked the Doct...

jointpain

•6 years ago

7 Replies

Arm pain - given gabapentin

Hi All, I have 3 monthly Injections for my P.A. and I never feel any benefit from them. I am still constantly tired, have mood changes, fuzzy head (never...

Hi All, I have 3 monthly Injections for my P.A. and I never feel any benefit fro...

majorcafan

•6 years ago

8 Replies

Can you help me help myself? test results included

After 15 months off sick, I am going back to work on Friday on a phased return. I want to be as well as I can get myself, so would like some advice as my...

After 15 months off sick, I am going back to work on Friday on a phased return. ...

Cherylclaire

Forum Support•6 years ago

2 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2018

Anyone please help me

Which tests can be done to see if there is an absorption problem, without having to stop supplementing?

Diagnosed with b12 deficiency 80pg/ml how long will it take to feel better?

HAIR LOSS!!!!!!!!!

Absorption and vitamins deficiency?

ask doctor for further blood work?

Going abroad

Reply please Bout B12

About my B12. Help!

Vitamins and sleep disorder (VitD)

Can B12 IM injection products also go sub cutaneous?

low b12/folate- liquid

Folic Acid causing damage until B12 levels restored?

B12 deficiency and peri menopausal

Burning feet/legs, tingling, breathlessness, Raynauds b12 normal

Blood test results 6m on

How long for B12 level to rise

Is it me or the 5 doctors refusing treatment who are wrong?!

Quick one on pain meds?

How often is everyone getting a b12 injection and how long since being diagnosed?

Has my GP listened to me?

Vit b12 deficiency or not?

Differing medical opinions? Hoping that this is positive outcome!

Anemia making me feel like death

Hydroxocobalamin IM Injection

Levels before injection

Cobro injection of vit b12

B12 150 or 190 lower limit?

Arm pain - given gabapentin

Can you help me help myself? test results included

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Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

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