Burning feet/legs, tingling, breathle... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

Burning feet/legs, tingling, breathlessness, Raynauds b12 normal

angelic1952 profile image
7 Replies

Has anyone experienced similar symptoms?

After a virus last January triggered symptoms of Raynauds tingling hands/legs/feet and juddering sensations &through body inc. Brain esp at night. Have brain shocks and feel exhausted often with pulling muscles on slightest exertion. Got normal thyroid results but low free t3 at 3.7 (3.10 to 6.8). My full blood test was normal except neurophils out of rane 1.6. Wondefing if symptoms could be possibly thyroid or b12 connected. My active b1w done privately is only 40.5 pmol/l (25 to 165) although normal. St thomas hospital info says those over 65 with my result need further investigating. My b12 level has reduced since august despite good diet and b12 sublingual supps.folate and ferritin ard normal.been tested for peripheral neuropathy which is normal.

Written by
angelic1952 profile image
angelic1952
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Fudgemanjim profile image
Fudgemanjim

If its any reassurance im PA and get all of those symptoms especially before jab.. and on rarer occasions after, im no Dr but sounds same as me

Jotk9 profile image
Jotk9

I had same symptoms... After three injections on alternative days gave some relief. Do nitric oxide in vegetables or in herbs can effect the treatment?

Gambit62 profile image
Gambit62Administrator

angelic1952, are you being treated for a hypothyroidism. If so would suggest that you post on the TUK forum with your last set of blood tests.

healthunlocked.com/thyroiduk

I believe, most people being treated for hypothyroidism won't feel better unless their T3 levels are towards the top of the scale.

There's a huge overlap of symptoms between thyroid and B12 deficiency

angelic1952 profile image
angelic1952 in reply toGambit62

I have symptoms for b12 def and believe thyroid. Im seeing neurologist in march so hoping something will be sorted. Ive been on to thyroid uk website. Their ranges are different to nhs. No GP so far wants to hear re b12 active results or take notice of my free t3. Thanks.

Corrieann profile image
Corrieann

I feel like you are preaching to the choir. I’m sitting in the same boat. I find the raynauds the most painful.

angelic1952 profile image
angelic1952 in reply toCorrieann

Do you know raynauds can ve primary or secondary and a cause of other medical problems. Rheumatologist thought i may have rheumatoid arthritis.some suggest garlic, omega 6 and other treatments. Have you looked at raynauds uk website? I started supplements and the symptoms have reduced a lot.

Corrieann profile image
Corrieann

They haven’t found the direct cause. I seem to have a lot going wrong at the same time. It started a few years ago. I’ll check out the site thanks.

Not what you're looking for?

You may also like...

Normal range b12

Hi my b12 test came back at 240 normal range 200-900, ferritin 20 but was taking iron supplements...
Ald1 profile image

Is B12 196 normal?

Hi everyone, I'm just after a bit of advice please. About 6 weeks ago I went to my GP because I had...
MikeD1969 profile image

tingling feet and hands

I have a tingling/buzzing feeling in feet and hands. I also get a burning leg sensation at night in...
lolajone profile image

Normal B12 levels?

Hello, Have some suspicion that I might have a B12 problem. The symptoms are feeling tired/falling...
Uneasy10 profile image

Normal B12 levels?

63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet,...

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.