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Pernicious Anaemia Society

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All posts for January 2018

B12 advice migraines

If b12 deficiency is cause of migraines.how much time it will take to last. Please give the advice.all the symptoms which I had is gone except headaches.

If b12 deficiency is cause of migraines.how much time it will take to last. Plea...

RaJender9666

•6 years ago

12 Replies

side effects of actemra

I need to find out if others who have taken Actemra to reduce Prednisone dosage have had any side effects from this drug? I have read of some pretty...

I need to find out if others who have taken Actemra to reduce Prednisone dosage ...

phopmann

•6 years ago

3 Replies

Hypochondria?

Saw my GP today and was told all my bloods are fine. Asked him about the "bad" days i have now and then and he said that a lot of people with PA tend to blame...

Saw my GP today and was told all my bloods are fine. Asked him about the "bad" ...

sarahjaneR

•6 years ago

20 Replies

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High B12 circa 900

Got my bloods back today with a trainee GP. He spent a lot of time listening to me but had to seek opinion fro a fully served GP. In a nutshell, he showed me...

Got my bloods back today with a trainee GP. He spent a lot of time listening to...

BlueBoyMico

•6 years ago

22 Replies

Extremely low B12 level

Hi All I am new to this page and have myself today just been for second blood test to check for myself if I am B12 deficient - had bloods taken last week but...

Hi All I am new to this page and have myself today just been for second blood te...

Christiecarl

•6 years ago

20 Replies

B12 itchy back

Hi my son is 21 and non verbal and has b12 defiency but suffers really bad from an itchy back is this a sign of anything please help its been such a battle to...

Hi my son is 21 and non verbal and has b12 defiency but suffers really bad from ...

Billybass

•6 years ago

6 Replies

Painkillers - The cure all answer

4 months ago, i reported to my GP with 90% of the symptoms of PA. I had already done some online researching (as you do) and regardless of the diagnosis b12...

4 months ago, i reported to my GP with 90% of the symptoms of PA. I had already ...

Dan10

•6 years ago

30 Replies

Injections

Is it a good idea to self inject on a daily basis with b12 injections?

ADELESAXBY

•6 years ago

9 Replies

My b12 level is 68. My doctor has prescribed 4 weekly shots and to be retested. It’s been steadily decreasing for two years. Suggestions?

B12

Labg501

•6 years ago

6 Replies

Active b12

Please can anyone tell me the normal range for active b12 test. Thank you

mocr

•6 years ago

2 Replies

Advice please

Hi I'd like some advice please? I'm looking to self inject and would welcome any advice on this. I believe there is somewhere in Germany I can buy this?...

Hi I'd like some advice please? I'm looking to self inject and would welcome a...

Jojo197

•6 years ago

12 Replies

New test results! And the GP said that is nothing to worry about...

Hi all, I have my new test results: B12 - 233 (191-663) Folate - 2.8 (3.90-26.80) Ferritin - 73 (10-150) Gastric parietal cell antibodies - positive Intrinstic...

Hi all, I have my new test results: B12 - 233 (191-663) Folate - 2.8 (3.90-26.80...

Ioana_17

•6 years ago

8 Replies

Anxiously awaiting diagnosis

Hi all, Firstly, apologies for the rambling post, but it really helps to write things down sometimes. I’m new and found my way here through the PAS webpage,...

Hi all, Firstly, apologies for the rambling post, but it really helps to write ...

Fierybiscuits

•6 years ago

5 Replies

advice please vit B12 and vit D

Hi,could anyone tell me if I need to top up these vitamins? my results-- Vit D Total 46.1 Vit D3 46.1 Vit D2 5 Vit B12 386 Folate 5.2 Thanks for any replies.

Hi,could anyone tell me if I need to top up these vitamins? my results-- Vit D ...

cassie17

•6 years ago

4 Replies

Intrinsic Factor

Does anyone know how long the test for IF takes? My GP has said if I don’t have IF I can have injections every 8 weeks instead of the 10 weekly that I’m on. Is...

Does anyone know how long the test for IF takes? My GP has said if I don’t have ...

SharonH68

•6 years ago

9 Replies

B-12 might not be the problem

Hi All - I'm having ongoing investigations for what feels like chronic fatigue syndrome and looks like it may be some sort of auto-immune syndrome. I've been...

Hi All - I'm having ongoing investigations for what feels like chronic fatigue s...

Pingo

•6 years ago

3 Replies

Ho-hum I feel another fight coming on

I was diagnosed with P.A. just over a year ago, and although I feel much better, I keep going back to my G.P. with tingling in my arms and legs, muscle...

I was diagnosed with P.A. just over a year ago, and although I feel much better,...

topazrat

•6 years ago

21 Replies

Thoughts please. Hypothyroid and ? B12 issue

please can someone have a look at my results.... had B12 done with GP early Jan, unhappy that GP/Endo weren't interested. Medicheck Active B12 today........

please can someone have a look at my results.... had B12 done with GP early Jan,...

Bexg

•6 years ago

7 Replies

Need to re confirm basics please.

Ok, I'm making progress at the moment but this morning have terrible brain fog and have woken up feeling knackered. 4th maybe 5th day off Lansoprazole-the...

Ok, I'm making progress at the moment but this morning have terrible brain fog a...

BlueBoyMico

•6 years ago

5 Replies

Sense of smell.

Are there many others that have lost their sense of smell? I have never been so excited to cry over cutting an onion today!

Are there many others that have lost their sense of smell? I have never been so...

Plucky1976

•6 years ago

6 Replies

Serious anxiety!

Someone please put my mind at ease and tell me palpitations and serious anxiety is normal for a couple days at a time at times. These last 2 days have been a...

Someone please put my mind at ease and tell me palpitations and serious anxiety ...

Plucky1976

•6 years ago

18 Replies

B12 neuro signs

Hello everyone, can anyone tell me if they had b12 deficiency with out the pins and needles, I have on and off stabbing in feet and legs and knees and warm...

Hello everyone, can anyone tell me if they had b12 deficiency with out the pins ...

Ldhall

•6 years ago

23 Replies

Caffeine! Do you find it makes symptoms worse? Specifically Coke.

Think this may interfere with brain issues. Can anyone relate? Like brain zap ? Stuff. Brain cracking in half.

Think this may interfere with brain issues. Can anyone relate? Like brain zap ? ...

Fl17

•6 years ago

8 Replies

Relevence of repeat b12 after loading doses

Hi knowledgable people. Briefly I joined the group after visiting my GP in September with peripheral neuropathy probably for at least a year. Blood tests...

Hi knowledgable people. Briefly I joined the group after visiting my GP in Septe...

Melowmaz

•6 years ago

7 Replies

Goldpharma china based?

Hi I have just ordered b12 from Goldpharma but I notice that it is goldpharma.cn which means it is based in China! I dont feel confident with chinese stuff....

Hi I have just ordered b12 from Goldpharma but I notice that it is goldpharma.cn...

joerillibee

•6 years ago

5 Replies

B12 deficiency and the role of the gall bladder

Just occurred to me, I had y gall bladder removed several years ago, and various articles including some threads on here mention the 'storage' of B12 in the...

Just occurred to me, I had y gall bladder removed several years ago, and various...

BlueBoyMico

•6 years ago

4 Replies

PA and Ulcerative colitis

Hi all. Been sick for a few months. Stomach pain, bleeding, nightsweats, fatigue and worrisome bloodwork. While waiting for oncology appts, I started taking...

Hi all. Been sick for a few months. Stomach pain, bleeding, nightsweats, fatigue...

Wowo23

•6 years ago

3 Replies

QUICK ONE FOR ALL US NEW MEMBERS ! ! !

Just saw the pinned posts to the right hand side of the home screen, the one on information about b12 deficiency from Stichting-b12-Tekort. If you're taking...

Just saw the pinned posts to the right hand side of the home screen, the one on ...

BlueBoyMico

•6 years ago

16 Replies

B12 deficiency and peri menopausal

Hi I've written a post below I've been peri menopausal and b12 deficient for 6 months I'm on esttette duo 1mg for menopause and had the 6 loading b12 shots due...

Hi I've written a post below I've been peri menopausal and b12 deficient for 6 m...

Kirstiet

•6 years ago

2 Replies

Query B12 and Folic acid amounts to take.

To cut a long story short. I am 58 and I have been suffering from depression and am on sertraline. But, my head is sorted with a combination of tablets and a...

To cut a long story short. I am 58 and I have been suffering from depression and...

Irishonly

•6 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2018

B12 advice migraines

side effects of actemra

Hypochondria?

High B12 circa 900

Extremely low B12 level

B12 itchy back

Painkillers - The cure all answer

Injections

My b12 level is 68. My doctor has prescribed 4 weekly shots and to be retested. It’s been steadily decreasing for two years. Suggestions?

Active b12

Advice please

New test results! And the GP said that is nothing to worry about...

Anxiously awaiting diagnosis

advice please vit B12 and vit D

Intrinsic Factor

B-12 might not be the problem

Ho-hum I feel another fight coming on

Thoughts please. Hypothyroid and ? B12 issue

Need to re confirm basics please.

Sense of smell.

Serious anxiety!

B12 neuro signs

Caffeine! Do you find it makes symptoms worse? Specifically Coke.

Relevence of repeat b12 after loading doses

Goldpharma china based?

B12 deficiency and the role of the gall bladder

PA and Ulcerative colitis

QUICK ONE FOR ALL US NEW MEMBERS ! ! !

B12 deficiency and peri menopausal

Query B12 and Folic acid amounts to take.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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