Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for December 2017

Really desperate to start feelin better

Hi, I have just joined and your posts make for interesting reading. After suspected Addisons result came back negative I have Vit B12 and Vit D tests Results...

Hi, I have just joined and your posts make for interesting reading. After suspec...

alisonma

•7 years ago

17 Replies

Self Injecting

Hi all, So I have been having B12 injections every 3 months for a while. I always have to book in with the Nurse at my practice. I am due the 22nd this month...

Hi all, So I have been having B12 injections every 3 months for a while. I alwa...

2231anna

•7 years ago

4 Replies

New here! B12 HELP

Hi Hoping someone can help! hyperthyroidism - 75mg thyroxine B12 deficiency - 10 weekly injections for past 16 months Haemochromatosis – no blood letting I...

Hi Hoping someone can help! hyperthyroidism - 75mg thyroxine B12 deficiency - ...

mc88

•7 years ago

7 Replies

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Had appointment...

So I saw my GP today. He said my results (posted in previous email) show I am no longer anaemic as it's now 12.7 after my iron infusion a few weeks ago. I...

So I saw my GP today. He said my results (posted in previous email) show I am ...

MrsO2510

•7 years ago

1 Reply

Hypokalemia with high frequency B12 injections

Has anyone experienced low potassium levels while injecting every other day? Recent visit to haematologist and he has advised that I shouldn't inject so...

Has anyone experienced low potassium levels while injecting every other day? Rec...

Rheadster72

•7 years ago

15 Replies

*Gargling for brain + gut health. Dementia? The like

Please check out Dr. Datis Kharazzian. A very dear person posted about him. Check out my post on dementia please. Will try 2 write more info on here later....

Please check out Dr. Datis Kharazzian. A very dear person posted about him. Chec...

Fl17

•7 years ago

5 Replies

Self injections

Hey again. So my GP wants to stop my weekly injections. I still have symptoms (am seeing a neurologist in Jan for MRI- see previous post) I want to self...

Hey again. So my GP wants to stop my weekly injections. I still have symptoms (...

Mahliii

•7 years ago

4 Replies

B12

Never found out why my b12 got so low. Had 3 tests for pernicious anemia all came back negative and had a test for celiac disease which also cane back...

Never found out why my b12 got so low. Had 3 tests for pernicious anemia all cam...

Elleeee

•7 years ago

8 Replies

Counselling for PA..advice anyone?

Hi guys, I hope you are all well as can be. I was wondering whether anyone has tried counselling to help with PA? I've talked to my friend who suffers from it...

Hi guys, I hope you are all well as can be. I was wondering whether anyone has t...

Raven321

•7 years ago

24 Replies

Anyone know about ferritin?

I have haemochromatosis and have to go for blood letting every 3 months. I was due to go today but the hospital rang me to say I didn't need to go as my...

I have haemochromatosis and have to go for blood letting every 3 months. I was ...

flibertygibert

•7 years ago

4 Replies

B12 deficiency

I had b12 232pg.ml 45 days back. I have got checked yesterday it was 1164.but still feeling like sleepiness all the time.i have stopped supplements...

I had b12 232pg.ml 45 days back. I have got checked yesterday it was 1164.but st...

RaJender9666

•7 years ago

8 Replies

MRI

Hi guys I haven’t posted for a while, but as you’ll see from precious posts I believe I have symptoms although my level is on the lower end of normal. My GP...

Hi guys I haven’t posted for a while, but as you’ll see from precious posts I b...

BluebellPettle

•7 years ago

1 Reply

Really don't know what to do about B12

Hi I was diagnosed in 2011 after years of symptoms getting progressively worse with no explanation. My B12 level was 154 and I felt horrible. I didn't test...

Hi I was diagnosed in 2011 after years of symptoms getting progressively worse w...

Hayley31

•7 years ago

15 Replies

Advice regarding recent blood results please.

I am part of the thyroid community and a fellow member suggested that you lovely folks might be able to advise regarding some bloods I have recently sent off....

I am part of the thyroid community and a fellow member suggested that you lovely...

SarahG76

•7 years ago

16 Replies

B12 and folate

Ferritin 11 (30 - 400) Folate 1.7 (4.6 - 18.7) Vitamin B12 144 (190 - 900) Vitamin D total 10 (<25 severe) Ferrous fumarate taken since 2013 (3 tablets)...

Ferritin 11 (30 - 400) Folate 1.7 (4.6 - 18.7) Vitamin B12 144 (190 - 900) Vi...

Anya1993

•7 years ago

1 Reply

Push for an endocrinologist referral?

Hi everyone, Just a quick question. I’m about to receive some results of vit D, b12, ferritin and folate tests and I think bone density? I am autoimmune...

Hi everyone, Just a quick question. I’m about to receive some results of vit D,...

Saya85

•7 years ago

3 Replies

b12

i have a doubt that are there anyone who have successfully recovered from b12 defieciency completely?

i have a doubt that are there anyone who have successfully recovered from b12 de...

Sandhya_rani

•7 years ago

2 Replies

Doctor Hilary’s advise on PA

I love Sundays having fresh coffee and reading the papers until I read this in the magazine . It really upset me and spoilt my Sunday chill time .

I love Sundays having fresh coffee and reading the papers until I read this in t...

Kapat1

•7 years ago

22 Replies

Low b12

My b12 is 107.7 i aam having tinglings in legs especially 25year women i am,i dont feel that i will have a energetic life as i was having...

My b12 is 107.7 i aam having tinglings in legs especially 25year women i am,i ...

Sandhya_rani

•7 years ago

4 Replies

Clusters of tiny bruises. Is this b12 related?

Does anyone else get these clusters of dot like bruises? They start of like purple dots then they turn yellow then fade. I have been getting them for about...

Does anyone else get these clusters of dot like bruises? They start of like purp...

mesadies

•7 years ago

6 Replies

My motivation to manage my PA...

I’ve finally gotten my life back! Took a long hard year but it’s all come together, especially the past 2 weeks. My goal was to XC Ski again this winter after...

I’ve finally gotten my life back! Took a long hard year but it’s all come togeth...

CH52

•7 years ago

11 Replies

Out of options

Hi everyone, I've been having neurological symptoms for 8 months now. It all started with numb patches all over my body (back, hands, hips) small ones, that...

Hi everyone, I've been having neurological symptoms for 8 months now. It all sta...

Cordelia22

•7 years ago

16 Replies

Symptoms PA? advice please

Hi, I am new to posting on here. I had my first B12 injection in June 2017 and have not had another one since. How long does it take for low B12 symptoms to...

Hi, I am new to posting on here. I had my first B12 injection in June 2017 and h...

Pixie1718

•7 years ago

9 Replies

Where do you SI?

Just a quick one, (im at family home and the internet here seems to have its heart set on blocking this website ) ive only got a few days left of loading jabs...

Just a quick one, (im at family home and the internet here seems to have its hea...

Fudgemanjim

•7 years ago

6 Replies

Getting my ducks in a row ahead of GP appointment - NICE Guidance etc

Hi Guys I was diagnosed B12 deficient in July with a result of 106 (198 or less being deficient) and given a high dose of iron tablets as my ferritin level was...

Hi Guys I was diagnosed B12 deficient in July with a result of 106 (198 or less ...

Sozza

•7 years ago

5 Replies

My GP refused to give me referral to cardiologist

Hi Everyone, As the title says, my GP refused to give me a referral to a cardiologist for a second opinion because I was told its anxiety. I had an...

Hi Everyone, As the title says, my GP refused to give me a referral to a cardiol...

terrybraden

•7 years ago

9 Replies

First use of the patches ☺

So pleased with the patches. Put my first one on yesterday and it comes off now after 24 hours. The difference it has made is astonishing. I only bought a 6...

So pleased with the patches. Put my first one on yesterday and it comes off now ...

Margaret-S

•7 years ago

27 Replies

Back down to earth with a bump.

After my excellent experience with the haematologist the other day, this morning I came face to face with what I suppose is the true level of medical knowledge...

After my excellent experience with the haematologist the other day, this morning...

JJ1314

•7 years ago

30 Replies

Update

Ill do my best not to repeat myself from a prior post and bore you all but without a little repition theyll be no context to the update, so here goes my best...

Ill do my best not to repeat myself from a prior post and bore you all but witho...

Fudgemanjim

•7 years ago

6 Replies

Levels of B12 in blood still very low after 6 weekly injections

I’ve found out today that my b12 levels in my blood are still only just above the minimum even though I have hydroxybalim every six weeks. What can I do?...

I’ve found out today that my b12 levels in my blood are still only just above th...

Paulaw22

•7 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2017

Really desperate to start feelin better

Self Injecting

New here! B12 HELP

Had appointment...

Hypokalemia with high frequency B12 injections

*Gargling for brain + gut health. Dementia? The like

Self injections

B12

Counselling for PA..advice anyone?

Anyone know about ferritin?

B12 deficiency

MRI

Really don't know what to do about B12

Advice regarding recent blood results please.

B12 and folate

Push for an endocrinologist referral?

b12

Doctor Hilary’s advise on PA

Low b12

Clusters of tiny bruises. Is this b12 related?

My motivation to manage my PA...

Out of options

Symptoms PA? advice please

Where do you SI?

Getting my ducks in a row ahead of GP appointment - NICE Guidance etc

My GP refused to give me referral to cardiologist

First use of the patches ☺

Back down to earth with a bump.

Update

Levels of B12 in blood still very low after 6 weekly injections

Search posts

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Latest poll

How Often do you feel you actually need your B12 injection?

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2017

Really desperate to start feelin better

Self Injecting

New here! B12 HELP

Had appointment...

Hypokalemia with high frequency B12 injections

***Gargling** for brain + gut health. Dementia? The like

Self injections

B12

Counselling for PA..advice anyone?

Anyone know about ferritin?

B12 deficiency

MRI

Really don't know what to do about B12

Advice regarding recent blood results please.

B12 and folate

Push for an endocrinologist referral?

b12

Doctor Hilary’s advise on PA

Low b12

Clusters of tiny bruises. Is this b12 related?

My motivation to manage my PA...

Out of options

Symptoms PA? advice please

Where do you SI?

Getting my ducks in a row ahead of GP appointment - NICE Guidance etc

My GP refused to give me referral to cardiologist

First use of the patches ☺

Back down to earth with a bump.

Update

Levels of B12 in blood still very low after 6 weekly injections

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive

*Gargling for brain + gut health. Dementia? The like