Pernicious Anaemia Society
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Really desperate to start feelin better

Hi, I have just joined and your posts make for interesting reading.

After suspected Addisons result came back negative I have Vit B12 and Vit D tests

Results are B12 206

D 32

Doctor is ringing me to discuss after Christmas

I have auto immune type 1 diabetes, auto immune hypothyroid

Contact with anyone would be grateful

17 Replies
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Hi alisonma both your diabetes and thyroid problems may put you at risk of developing a Vitamin B12 deficiency. Although you don't quote the range <from to> your level is on the low end of the scale.

Symptoms of B12 deficiency tend to develop slowly and may not be recognised immediately. As the condition worsens, common symptoms include:

Weakness and fatigue

Light-headedness and dizziness

Palpitations and rapid heartbeat

Shortness of breath

A sore tongue that has a red, beefy appearance

Nausea or poor appetite

Weight loss

Diarrhoea

Yellowish tinge to the skin and eyes

If low levels of B12 remain for a long time, the condition also can lead to irreversible damage to nerve cells, which can cause the following symptoms:

Numbness and tingling in the hands and feet

Difficulty walking

Muscle weakness

Irritability

Memory loss

Dementia

Depression

Psychosis

Your doctor may decide to give you a series of B12 injections in accordance with the N.I,C.E, Guidelines. Click on the link, then on "Scenario: Management" and scroll down to "Treatment for B12 deficiency"

google.co.uk/url?sa=t&rct=j...

It is also important that your Folate level is monitored as this is essential to process the B12.

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

Symptoms of a folate deficiency can include:

symptoms related to anaemia

reduced sense of taste

diarrhoea

numbness and tingling in the feet and hands

muscle weakness

depression

Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body.

Some of the symptoms of a Vitamin D deficiency are similar to those of B12.

I am not a medically trained person but I've had P.A. (a form of B12 deficiency) for more than 45 years.

I wish you well

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You need the ranges next to your B12 and Vit D results.

Ranges are usually on your blood test results.

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What is your GP doing about your low VitD & B12 ? Do you have any recent thyroid test results you could post - with ranges ? There is a Thyroid UK Forum here on HU. Your thyroid meds will not be well utilised with low levels of B12 - Folate - Ferritin - VitD.

Are you gluten free ?

Happy to help 😊

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Just back from docs. 1st B12 injection done. 5 more booked for next week. More blood tests booked for next week. Vitamin D prescribed. Awesome doctor!

B12 206 (220-700)

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Great news :-) Do you have thyroid tests booked for next week ? - do you know which ones ? - are you gluten free to reduce anti-bodies - or at least help to reduce them ....

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Hi Marz, Im having T3 and T4 in addition to the TSH; they stopped doing T3 and T4 some time ago but this time I am having them .. I had anti-bodies blood test many years ago which was throughthe roof at that time. No suprise really as I am have Type 1 diabetes

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Not sure the Thyroid anti-bodies are linked to Diabetes. Going gluten free can help to heal the gut and calm down auto-immune issues. How much VitD have you been prescribed ? You need quite a hefty dose to bring the level up too 100 if you are in the UK or up to at least 60 if you are in the US ....

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Fultium D 3,200IU One per day.

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You could double your dose during the winter and test again in the spring. I live in Crete - yes lots of sunshine - I take 10,000 IU's daily - when I remember !

Are you taking the co-factors ? - Magnesium and VitK2-MK7 ?

vitamindcouncil.org

grassrootshealth.net

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Not taking anything else

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Maybe a good idea to do so when taking large doses of VitD - have posted links for you so have a good read ... :-)

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My Vit D is 23 nmol/L.

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So it has dropped - as it says 32 in your opening post .... you definitely need to be taking more if you wish to get it to a good level.

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I got the numbersthe wrong way round. I got a print out today

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The Grassroots website I have posted for you tells you how much to take according to your results. Ensure you have the correct measurement as it is American and can be in ng/L - there is also a chart for nmol/L ....

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also . I dont know anything about gluten free issues

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thyroiduk.org The main website of the Thyroid UK forum here on HU. There are over 70,000 members and gluten free is often discussed with very helpful links to information and books.

I have Hashimotos - Crohns - B12 issue - so learn a great deal from others that know more than me :-)

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