B12 deficiency : I had b12 232pg.ml 4... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

B12 deficiency

RaJender9666 profile image
8 Replies

I had b12 232pg.ml 45 days back. I have got checked yesterday it was 1164.but still feeling like sleepiness all the time.i have stopped supplements yesterday.any one please tell me on this.

Written by
RaJender9666 profile image
RaJender9666
To view profiles and participate in discussions please or .
Read more about...
8 Replies
clivealive profile image
clivealiveForum Support

hI RaJender9666 are you having the B12 injected? If so it is not surprising your level is high - it would be more worrying if it was low.

Are you also supplementing with folic acid? If not do you know what your Folate level is?

It is not uncommon for some symptoms to appear to get worse before they get better as the B12 starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.

I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.

A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery.

Some symptoms will "disappear" quite quickly whereas others may take months or even years. There is no set timescale as we are all different and you may just need to become a "patient patient" for a little while longer.

I am not a medically trained person but I've had P.A. (a form of B12 deficiency) for more than 45 years.

I wish you well

RaJender9666 profile image
RaJender9666 in reply toclivealive

i have got injected and had supplements also.

RaJender9666 profile image
RaJender9666 in reply toclivealive

Thanks for you well wishes.yes i had suplements with folic acid and donno the folate level and i was suggested anti vertigo supplements for dizziness by my nuerologist and i stopped taking them since 2 days when i got to know my b12 level is good.i will be patient and thanks for your support clivealive.

Jotk9 profile image
Jotk9 in reply toclivealive

@clivealive one of the best reply

Gambit62 profile image
Gambit62Administrator

I would advise you not to stop the supplements.

It isn't that your levels have risen. It is that your levels went up to astronomic after the injection and have now fallen. Levels don't really mean much after a loading shot - you need to go on symptoms and it sounds as if you are still symptomatic. It may be that you really needed a series of loading shots - not just one - and as Clivealive says - it does take time - many people don't really notice much for months.

I am assuming that you aren't a vegan.

RaJender9666 profile image
RaJender9666 in reply toGambit62

for how many months should i take.can i continue the anti-vertigo tablets also.still iam having headaches my doctor suggeted me migrabeta plus for migraines and nexito plus for anti anxiety.if i use it iam having breath problems in the middle of the sleep.what can i do now please tell me.

RaJender9666 profile image
RaJender9666 in reply toGambit62

i had 6 500 mcg shots for weeks and had 1500 mcg tablets for 40 days.is that not enough.i would like to follow your suggestion Gambit62. thanks for your help in advance.

Gambit62 profile image
Gambit62Administrator

Rajender - you seem to have a lot going on at the moment. On one level you can take more and more medication to treat/mask symptoms. Or you can focus on the B12.

Would you doctor consider giving you more injections. Tablets don't work for everyone. It may also be the type of B12 you are taking - particularly if everything is methyl-B12.

Please note that this site is not a substitute for good professional medical advice. You really do need to work with your doctor.

Not what you're looking for?

You may also like...

B12 deficiency

I have large red platelets and nearly every symptom of B12 deficiency. Dr stopped injections three...

B12 deficiency

New here as of today. I started 1000 mcg injections a week ago. I’ve had 5 injections so far but...
crushing profile image

B12 deficiency

Hi I've been advised to turn to this forum as I've reached desperation for answers and help! My mum...
Soph46 profile image

B12 deficiency?

I had blood tests a few weeks ago as I'd been feeling exhausted all the time. I was told My b12 is...
kbel88 profile image

B12 Deficiency

I have Peripheral Neuropathy and am being treated for B12 deficiency. Having just completed an 8...

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.