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Pernicious Anaemia Society

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All posts for September 2017

Started B12 injections, What else can I do to help?

So, about 2 months ago now I finally got blood work done and my b12 is extremely low, 132 ( I don't know the range but will get it from my doctor soon) My...

So, about 2 months ago now I finally got blood work done and my b12 is extremely...

Ashley193

•7 years ago

6 Replies

Painful feet and bruised legs

My legs used to bruise incredibly easily often when I was just sitting or standing for a while. Is that a problem anyone else had? I've noticed that I'm...

My legs used to bruise incredibly easily often when I was just sitting or standi...

Dewbuc

•7 years ago

10 Replies

Radio 4 Call You and Yours

Call You and Yours radio 4 programme has call in programme about ME/CFS right now 12.30pm I'm listening to see how often B12 is mentioned....

Call You and Yours radio 4 programme has call in programme about ME/CFS right no...

Sleepybunny

•7 years ago

11 Replies

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Are these tests for pernicious anaemia?

my doctor was looking at pernicious anaemia and celiac disease. I have no idea what these results are about. Any info gratefully received.. Tissu...

my doctor was looking at pernicious anaemia and celiac disease. I have no idea w...

sue_b

•7 years ago

1 Reply

Support for PA and B12 deficiency

Hi All, I thought it might be useful to have a list of all the support groups, conferences, events linked to B12 that people are aware of. Please add to this...

Hi All, I thought it might be useful to have a list of all the support groups, ...

Sleepybunny

•7 years ago

3 Replies

Newbie... advice please

Hi there, just popping over from thyroid UK for some advice and your thoughts please. I was diagnosed Hypothyroid by my GP in May 2016. I am currently on 75mcg...

Hi there, just popping over from thyroid UK for some advice and your thoughts pl...

Hyposucks

•7 years ago

17 Replies

Waiting to see a GP...

Hi, I'm new here, it seems amazing, although there's a lot to digest! I was diagnosed with MS earlier this year after suffering from really bad vertigo (which...

Hi, I'm new here, it seems amazing, although there's a lot to digest! I was dia...

ktwing

•7 years ago

4 Replies

B 12 deficiency

Hi Everyone I read the article below on the B12 deficiency site - it made me angry and rather tearful having just been told by a fully qualified doctor for the...

Hi Everyone I read the article below on the B12 deficiency site - it made me ang...

Alfabeta

•7 years ago

6 Replies

Started Folate yesterday, really off balance, worse when I move my head.

Any advice would be appreciated... Started folate and iron yesterday... I've been si every other day for 3 months now... Could this be the folate and iron...

Any advice would be appreciated... Started folate and iron yesterday... I've bee...

Frances55

•7 years ago

18 Replies

Folate levels

Managed to convince my doctors to give me an early blood test. They had to override the path lab as they didn't want to do it . Had my b12 injections a month...

Managed to convince my doctors to give me an early blood test. They had to overr...

Parkes

•7 years ago

2 Replies

supplements.

I would like to supplement my child with some B12 preferably patches and pref meth. Any advise. I did get him some lozenges but he used them to train the dog....

I would like to supplement my child with some B12 preferably patches and pref me...

Hidden

•7 years ago

7 Replies

Finally

Finally I can see light at the end of the tunnel. For a few years I’ve been feeling “not right “ head mushy lack of anything. Regular gym goer to I can’t be...

Finally I can see light at the end of the tunnel. For a few years I’ve been feel...

Lockett72

•7 years ago

50 Replies

Pernicious anaemia?

Hi everyone. I am new here. I have just had some bloods done privately and posted them on thyroid uk's site. After a partial thyroidectomy 25 years ago I was...

Hi everyone. I am new here. I have just had some bloods done privately and poste...

Hippiechick

•7 years ago

13 Replies

Complaint?

My gp recently referred me an nhs haematologist to get advise on my b12 and other levels. My b12 result 215ng/L range (180-2000. I have been told that they...

My gp recently referred me an nhs haematologist to get advise on my b12 and othe...

Hidden

•7 years ago

3 Replies

Leicestershire PAS Support Group: Meeting Thursday 28 September, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Hi All The Leicestershire PAS support group is holding its second meeting, as above. The group is open to all PAS members and also welcomes members from...

Hi All The Leicestershire PAS support group is holding its second meeting, as ab...

Foggyme

Administrator•7 years ago

2 Replies

Supplement help

So I've been dealing with Adrenal Fatigue symptoms and decided to get my vitamin levels checked through a cellular test and standard blood serum tests. I...

So I've been dealing with Adrenal Fatigue symptoms and decided to get my vitami...

LizHealth1

•7 years ago

6 Replies

Gastrointestinal symptoms anyone?

Hi just wondering how many B12/PA people have gastrointestinal problems? What are your Gastro symptoms, were they one of your first symptoms and have you found...

Hi just wondering how many B12/PA people have gastrointestinal problems? What ar...

Alesia

•7 years ago

37 Replies

Monthly injections

Hi all, I was recently diagnosed with pernicious anaemia, by my consultant who is treating me for vasculitis. I feel very fortunate that I have this consultant...

Hi all, I was recently diagnosed with pernicious anaemia, by my consultant who i...

HFox

•7 years ago

17 Replies

Contraceptive pill

Have come off my contraceptive pill for this first time in years and my symptoms have all got a lot worse, particularly blood pooling, numbness and itching...

Have come off my contraceptive pill for this first time in years and my symptoms...

Katys1981zzz

•7 years ago

2 Replies

Pernicious Anemia

Hi everyone. I'm new here. My story is kind of long, but will try to be as brief as possible. About 5 years ago, I had pain in my right foot. Long story short,...

Hi everyone. I'm new here. My story is kind of long, but will try to be as brief...

Wowo23

•7 years ago

23 Replies

Metal taste in mouth

Today I had quite a strong metalic taste in my mouth? I wonder does anyone know what this could be? Am I lacking in a vitamin. I am taking all my co-factors...

Today I had quite a strong metalic taste in my mouth? I wonder does anyone know ...

mdoh1918

•7 years ago

5 Replies

so exhausted / foggy I can't feed myself - what is impact of overactive thyroid plus b12d?

feeling awful - the only new factor is GP says my thyroid is a bit overactive (which surprised me as I'm on the plump side, say 10lbs overweight). Can anyone...

feeling awful - the only new factor is GP says my thyroid is a bit overactive (w...

Mashie44

•7 years ago

6 Replies

Sublingual b12

Hi again I have just been looking on Amazon for sublingual b12. There is such a range of brands, and prices! Can anyone recommend one that is good? I don't...

Hi again I have just been looking on Amazon for sublingual b12. There is such a...

Dee215

•7 years ago

8 Replies

Heart arrhythmia - Ventricular Ectopics

Hi all Just needed to share the latest. My GP still categorically states I DO NOT have PA. He can't explain how he knows that, he accepts all the symptoms...

Hi all Just needed to share the latest. My GP still categorically states I DO N...

Dee215

•7 years ago

33 Replies

Long term symptoms of Pernicious anemia.

H everyone, I want to start off by saying, I truly understand what your going through living with Pernicious anemia. I've been living with this disease for...

H everyone, I want to start off by saying, I truly understand what your going th...

winkyzeek2

•7 years ago

8 Replies

Constantly hungry

Since having B12 jabs I find I am always starving no matter how much I eat. I used to always have a very light lunch but recently have had to up my intake -...

Since having B12 jabs I find I am always starving no matter how much I eat. I us...

Rheadster72

•7 years ago

8 Replies

Normal full blood count

Can you still have pernicious anaemia with a normal full blood count level ?

chrissytipps

•7 years ago

3 Replies

Is it worth me getting supplements or just wait?

Hello again ;) So I had my 1st of 6 of my second lot of loading doses yesterday but due to no nurse time the next one isn't until 3rd Oct. Meanwhile I've...

Hello again ;) So I had my 1st of 6 of my second lot of loading doses yesterday ...

Hidden

•7 years ago

19 Replies

Wonderful New Doctor

I changed from the guy who was convinced an extra shot of B12 would kill me and saw the most brilliant NHS GP today -- she didn't blink when I said I was...

I changed from the guy who was convinced an extra shot of B12 would kill me and ...

Pingo

•7 years ago

8 Replies

Blood test results advice needed!

Hello All My name is Michelle and I am hoping someone can help me I have been having symptoms of fatigue, dizziness, headaches, forgetfulness!! and just low...

Hello All My name is Michelle and I am hoping someone can help me I have been ha...

Michelle-82

•7 years ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2017

Started B12 injections, What else can I do to help?

Painful feet and bruised legs

Radio 4 Call You and Yours

Are these tests for pernicious anaemia?

Support for PA and B12 deficiency

Newbie... advice please

Waiting to see a GP...

B 12 deficiency

Started Folate yesterday, really off balance, worse when I move my head.

Folate levels

supplements.

Finally

Pernicious anaemia?

Complaint?

Leicestershire PAS Support Group: Meeting Thursday 28 September, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Supplement help

Gastrointestinal symptoms anyone?

Monthly injections

Contraceptive pill

Pernicious Anemia

Metal taste in mouth

so exhausted / foggy I can't feed myself - what is impact of overactive thyroid plus b12d?

Sublingual b12

Heart arrhythmia - Ventricular Ectopics

Long term symptoms of Pernicious anemia.

Constantly hungry

Normal full blood count

Is it worth me getting supplements or just wait?

Wonderful New Doctor

Blood test results advice needed!

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive