Hi everyone. I am new here. I have just had some bloods done privately and posted them on thyroid uk's site. After a partial thyroidectomy 25 years ago I was told I had autoimmune hypothyroid and have taken thyroxine ever since.
Anyway, my B12 result is 168 ug/L where <103 is deficient and 103-185 is insufficient. On thyroid uk I was told that could be indicative of P A.
Folate is 12.14 (2.91-50) and ferritin 238 (13-150).
My G P refused to test my B12 a few weeks back. Has anyone any suggestions? Should i be worried? Thank you.
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Hippiechick
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Flowchart outlines when PA and Antibody Negative PA can be diagnosed in UK. It is also made clear on flowchart that in UK, people who are symptomatic for B12 deficiency should have an Intrinsic Factor Antibody (IFA) test and start initial B12 treatment.
IFA test is not always reliable and it is still possible to have PA even if IFA test result is negative/normal range.
Wow that's a huge amount of info to get through!! Thank you so much for posting such a comprehensive list. I think maybe I need to read up a bit before I make an appointment to see my G P.
Thank you once again Sleepybunny! What a good idea to write out a typical weekly menu for the Dr. I eat eggs, fish chicken. Rarely red meat and no offal.
I did the questionnaire on coeliac up and had a coeliac blood test. Was told it was normal but I'm afraid I didn't ask for results.
Problem is that I moved home 7 months ago and have a new G P. Also chronic fatigue has been even worse with all the effort of moving.
When you had Coeliac blood test was it just a test for Coeliac antibodies?
NICE guidelines for Coeliac disease (see link to NICE guidelines in my post above) indicate that someone with suspected Coeliac disease should have both Coeliac antibody test (tissue transglutaminase antibody test) plus a test for total IgA (an immunoglobulin).
Sometimes GPs do not order the IgA test.
A person with IgA deficiency will not make Coeliac antibodies and therefore standard test for Coeliac disease will come back negative and person may need an alternative test for Coeliac disease.
See Coeliac UK link about blood tests in post above.
"but I'm afraid I didn't ask for results"
Difficult experiences have taught me the importance of always getting copies of blood test results.
If you want to know what the results were, you could ask for copies (will probably be a charge), ask to view the results (no charge), ask if your GP surgery has online access to a summary record (no charge).
I remember he asked for my Iga test. I'm not sure if it was done, seeing that haemotology here seem to be a law into themselves. I don't remember having the antibody test but I suppose I must have done. I have had a lot of blood tests recently.
I will ask for all my results. Unfortunately I'm in Wales and the rules in the Wales NHS are different.
I know clivealive! I was so shocked that I didn't challenge him. As I said l have recently moved to a new surgery and I don't like any of the 3 doctors. My folate was 12.4 (2.9-50). I had a blood test with medichecks.
Yes I have some Neuro symptons e.g peripheral neuropathy,pins and needles,numbness, inability to find words, chronic pain. Although I do have oseoarthitis. But I have been diagnosed with fibro and CFS and I don't think that's right.
Some people on the forum have written to or discussed the potential consequences of untreated or undertreated B12 deficiency with their doctors.
There is an article about SACD, sub acute combined degeneration of the spinal cord available to PAS members on PAS website. This can happen in severe B12 deficiency.
" I have been diagnosed with fibro and CFS and I don't think that's right."
Snap....I was too and I didn't think it was right either. ME/CFS is supposed to be a diagnosis of exclusion eg other conditions should be excluded before a diagnosis of ME/CFS is given.
Have you asked to be referred to a neurologist?
if you have peripheral neuropathy in your feet, you could ask for a referral to a podiatrist. As I mentioned above, some UK podiatrists can prescribe B12 injections.
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