Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,066 members • 23,216 posts

All posts for February 2017

High b12

Hi first time posting just found out after self injecting that my b12 is 6000 and potassium is very low at 2.7 just had intervenous and my potassium is up to...

Hi first time posting just found out after self injecting that my b12 is 6000 an...

•7 years ago

B12 injections not working

I have pa I have b12 injections every 3months but I'm still so tired and stomach is bad constipated all the time .i keep getting pins and needles as well could...

I have pa I have b12 injections every 3months but I'm still so tired and stomach...

•7 years ago

Low B12 with High Folate level - Significance?

Hi I'm having difficulty in finding the significance, and effects etc, of having a low Vit B12 but a high Folate level, ie 165.3ng/L [197-770] along with...

Hi I'm having difficulty in finding the significance, and effects etc, of havin...

•7 years ago

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Nearly ready to to SI

Feeling very anxious, just ordered needles etc from medisave and ampoules snapper from Amazon, got my ampoules the other day. So I should be ready in the next...

Feeling very anxious, just ordered needles etc from medisave and ampoules snappe...

•7 years ago

Stenosis question

This is probably a dumb question, but I know nothing on this subject so here goes: Is cervical spinal stenosis completely different from subacute combined...

This is probably a dumb question, but I know nothing on this subject so here goe...

•7 years ago

Blood tests

Had these test done they say they are all normal had them done because my tongue has spilt down the middle I do have under active throrid

Had these test done they say they are all normal had them done because my tongue...

•7 years ago

Halo test.

Ok, my 18 year old son has Gastritis diagnosed in Nov 16. His last B12 test was 174 (within range by low end) he has symptoms of PA . His GPC and IF tests...

Ok, my 18 year old son has Gastritis diagnosed in Nov 16. His last B12 test was ...

•7 years ago

Acccrete D3

My Dr wants me to take Accrete D3, calcium & Vit D. Can anyone tell me if this is safe to take this with B12 deficiency. I take vit D3 5000 but they want me to...

My Dr wants me to take Accrete D3, calcium & Vit D. Can anyone tell me if this i...

•7 years ago

Vitamin D3 and autoimmune diseases

Hi all, I read this earlier today, thought it was interesting and others might want a read,...

Hi all, I read this earlier today, thought it was interesting and others might w...

•7 years ago

GP is sooo bad

Helloo everybody , I have been diagnosed with PA last year but only given shots for three weeks then nothing! I have had regular blood tests but they keep...

Helloo everybody , I have been diagnosed with PA last year but only given shots ...

•7 years ago

Conversion of different values re results, pls help

Hi everyone I've just recently discovered this forum, now joined, and look forward to learning more and, hopefully, being able to contribute. However, at the...

Hi everyone I've just recently discovered this forum, now joined, and look forw...

•7 years ago

New here

I got my first b12 injection today don't know what to exspect any advice would be welcome

I got my first b12 injection today don't know what to exspect any advice would b...

•7 years ago

First post- B12 and MCV results- help!

Feb 2017:B12 254 (Def<140, insufficient 140-250). Folate 10.93 (8.83-60.8 nmol/L) Dec 2016: MCV 82 (83-101). HB 131 (120-150) Aug 2016: B12 168 (Def <100,...

Feb 2017:B12 254 (Def<140, insufficient 140-250). Folate 10.93 (8.83-60.8 nmol/L...

•7 years ago

Did anyone notice a difference in their anxiety levels?

Hi everyone, My level in july was 143 pmol/l, and in January it was 210 pmol/l, without taking any supplements. My main symptom is anxiety, and this is very...

Hi everyone, My level in july was 143 pmol/l, and in January it was 210 pmol/l, ...

•7 years ago

Bloods 'below range' but no action

I picked this up from the GP today, with the message that I should go back in three months for a repeat. No treatment. I went because I'm breathless and tired...

I picked this up from the GP today, with the message that I should go back in th...

•7 years ago

What do my results mean?

Hi, Just had my Blue Horizon blood results back. What do you guys think? Biochemistry CRP 1.90 <5.0 mg/L Ferritin 33.0 20 - 150 ug/L Thyroid Function TSH...

Hi, Just had my Blue Horizon blood results back. What do you guys think? Bioche...

•7 years ago

New here with P.A. and Subacute Combined Degeneration

Hi all, Thanks for this group. I have had severe digestive issues for 10 years since getting food poisoning and developing SIBO (small intestinal bacteria...

Hi all, Thanks for this group. I have had severe digestive issues for 10 years ...

•7 years ago

Just had a quick chat with Martyn Hooper - still none the wiser

Hi there - well i have spoken to Martyn Hooper - about ten minutes ago - conversation lasted five minutes - he said for me to get back to him if i cannot get...

Hi there - well i have spoken to Martyn Hooper - about ten minutes ago - convers...

•7 years ago

Going for surgery

Morning all :) Question is at the end of this post, however I just wanted to say for anyone doubting SI but needing it, please go for it. I had so much...

Morning all :) Question is at the end of this post, however I just wanted to sa...

•7 years ago

Vertical Double Vision anyone?

Was diagnosed with PA in 2013. A year before diagnosis was suffering bouts of what I now know as Vertical Double Vision. At first did not know how to describe...

Was diagnosed with PA in 2013. A year before diagnosis was suffering bouts of wh...

•7 years ago

Should I really feel better within an hour?

So, my first blood test showed I had a level of 170 ng/l B12, and my second one showed I had 250 ng/l, without taking any supplements. My GP said that the fact...

So, my first blood test showed I had a level of 170 ng/l B12, and my second one ...

•7 years ago

Vit B12 Injections

Hello I am a newbie here. My vitB12 is 1100 but I have peripheral neuropathy and iron def anaemia with a low ferritin. Would I benefit from Vit B12 injections...

Hello I am a newbie here. My vitB12 is 1100 but I have peripheral neuropathy an...

•7 years ago

Gastroenterologist says a positive IFA & Parietal Cell antibody result does not mean I have P.A. ?! HELP & advice please

Just returned from Hospital Appointment to see Gastro, at request of my G.P`s, one who does not think I have a B12 issue, and another who will not agree to...

Just returned from Hospital Appointment to see Gastro, at request of my G.P`s, o...

•7 years ago

Low folate but high B12

Hi, I've had my blood test results back today. My B12 is great at 672 ng/L (180 - 700ng/L) but my folate is a bit low at 7.7 ug/L (4.6 - 18.7ug/L) Any ideas on...

Hi, I've had my blood test results back today. My B12 is great at 672 ng/L (180 ...

•7 years ago

Blue Horizon tests

Hi I have an under active thyroid currently being treated and blood results have all come back in normal range. I was advised to check the following and am...

Hi I have an under active thyroid currently being treated and blood results have...

•7 years ago

No folic acid without B12 first.

I've read this quite a lot - it is important to not take folic acid before supplementing with B12 if you have a deficiency in both. The reasons given are 1. It...

I've read this quite a lot - it is important to not take folic acid before suppl...

•7 years ago

Finally did the si deed

After two months of thinking about it finally did the deed Was scared ****less mostly I think about getting air in I think If I still alive tomorrow will hav...

After two months of thinking about it finally did the deed Was scared ****less m...

•7 years ago

Got my delivery from Germany and Gp phoned ref my letter about SI

I've written to GP about SI and asking for treatment for symptoms of PA rather than guidelines.... receptionist phoned me to ask me to go in a discuss SI...

I've written to GP about SI and asking for treatment for symptoms of PA rather t...

•7 years ago

Keep going, there is hope!

Hello, this is only my second post but I wanted to post to give people hope and to say keep going. To cut a very long story short, following being diagnosed...

Hello, this is only my second post but I wanted to post to give people hope and ...

•7 years ago

Does anyone know if a urine MMA test is more accurate than a blood MMA please?

Hi, I wonder if anyone can help please? I had a MMA blood test last year ( via St Thomas) as a follow on from Active b12 test. I'm wishing to do a retest, but...

Hi, I wonder if anyone can help please? I had a MMA blood test last year ( via ...

•7 years ago

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