Hello, this is only my second post but I wanted to post to give people hope and to say keep going. To cut a very long story short, following being diagnosed with B12 Deficiency in September 2016 (lots of neurological symptoms due to it taking so long to recognise) I was given the initial six loading doses and then a three monthly injection. This was not adequate and my GP agreed to do more loading doses and then once every month for the rest of my life. Again, I could not last for a month with my symptoms returning after two weeks. I had been referred to a Haematologist (by my Gastroenterologist) who I saw today. He was excellent and has agreed to write to my GP to secure an injection every two weeks (my GP had said he would be happy to do this on the advice of the Haematologist). The Haematologist listened to me and actually asked me what I needed to keep me feeling the best I can. Amazing! He is also going to monitor how I get on. I have also been referred to Neurology so they can explore my neurological symptoms in more detail.
I realise that many people are suffering and I emphasize with this as it has been a long, long journey for me to get to this point and had things been discovered when I first started showing symptoms, I may not have the neurological problems I have now. I just want to give people hope. Joining the PAS was a big turning point for me as it provided me with the knowledge I needed to get to this point. Attending the PAS conference in December was also very informative, as was Martin's book.
I wish everyone well, keep going and have the strength to question things! Take Care. x