I was told I had B12 deficiency(196) and had 6 loading injections then 1 every 3 months. By the 2nd of these 3-monthly injections, I did not feel any benefit and had got a lot worse in terms of symptoms. Blood tests 6 weeks after the 2nd injection, and told MMA level was raised (351) and that because plasma B12 was over 2000, confirmed "functional B12 deficiency"- although I thought over 2000 would be expected after injections started : it's confusing to me.
Since then have been reloading: the first 5 did nothing, so improvements, even minor ones, delayed. I have now had about 14 loading injections altogether (2 a week), feeling slightly better but some of the nurses are getting reluctant to give me any more before seeing GP again, although she said no need to see her again, and to go on to monthly injections when no further improvement. This is clearly very new to them. I'm seeing Dr on Thursday pm, for a certificate, but also I'm guessing to have a review of new programme- don't even know what to ask for/ rule out any more.
My cousin has very recently been told she is B12 deficient too. Don't know her details yet.
I've been trying to sort out what exactly is wrong with me for almost 2 years now. Hip bursitis, lower back pain, diarrhea, dizziness, cognitive difficulties, mood swings, need for sleep, need for solitude, fogs, sensory overload, muscle weakness in limbs,trouble fighting off infections and hair loss (at least that has stopped currently) all still there but improved. Still problematic getting all these recognised as related symptoms- especially by gastroenterologists, who have not done any tests because I don't have a stomach ache, and /or they believe I have IBS. Give me strength!
I've had lots of blood tests, ferritin and folic acid being treated as both within range but low. All else on FBCs etc seems very mid-range normal as far as I can see. No liver problems. Can anyone help?