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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for November 2016

Injections ...how often?

Hi I've recentlystarted self injection and have gone from every other day to everyday. I wondered if anyone else was doing this and how it has helped. I'm...

Hi I've recentlystarted self injection and have gone from every other day to eve...

•7 years ago

Plasma therapy for neuropathy

Hi, has anyone tried plasmapheresis for peripheral neuropathy induced by lack of B12? Any success on it? Thanks!

Hi, has anyone tried plasmapheresis for peripheral neuropathy induced by lack of...

•7 years ago

Quick question

Hi everyone, I've just joined this group, I have to go and have a b12 and folate test, just wanted to know if there's a particular time in the day or week...

Hi everyone, I've just joined this group, I have to go and have a b12 and folate...

•7 years ago

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Great Gastroenterologist!

I went to see a very nice gastroenterologist last week, who took a thorough history, listened carefully, asked relevant questions and treated me like an...

I went to see a very nice gastroenterologist last week, who took a thorough hist...

•7 years ago

Dust settled..... NOT MS.... Improvement continues

My second MRI with contrast and a spinal tab cleared me if a MS diagnoses. The demylemation had not changed from previous one (5 weeks before). The spinal...

My second MRI with contrast and a spinal tab cleared me if a MS diagnoses. The d...

•7 years ago

CNS involvement

Hi, I have written about peripheral neuropathy many times. But, can you get CNS symptoms w b12 def? Since I started loading doses, I can no longer produce...

Hi, I have written about peripheral neuropathy many times. But, can you get CNS ...

•7 years ago

Injecting am vs pm?

I've seen this vaguely mentioned in passing on some posts, but wondering what time of the day most people inject (assuming you have control over the timing)? I...

I've seen this vaguely mentioned in passing on some posts, but wondering what ti...

•7 years ago

Help please

Hello family PA .. someone from the hypothyroid group very kindly suggested I join as I've had PA now for as long as I can remember. Only now am I finding out...

Hello family PA .. someone from the hypothyroid group very kindly suggested I jo...

•7 years ago

do the neuro symptoms get worse due to the immune system functioning better?

I am having severe panic that as my immune system gets better that my neuropathy will actually get worse rather than better. I realized that I do not feel it...

I am having severe panic that as my immune system gets better that my neuropathy...

•7 years ago

worse before better?

Hi, I am having trouble doing searches so I apologize if this has been asked and answered a million times. Do most people just start to feel better upon...

Hi, I am having trouble doing searches so I apologize if this has been asked and...

•7 years ago

Not able to get B12 now for Amazon Germany

Hi All Forgive me if this has been posted before, I am not the best at searching this site. I require frequent B12 injections (2-3 a week) or my symptoms...

Hi All Forgive me if this has been posted before, I am not the best at searching...

•7 years ago

B12 test results - advice please!

I was tested for B12 back in June and the result was 428 (197-771) and have since been supplementing as it was under 500 (I was not supplementing before the...

I was tested for B12 back in June and the result was 428 (197-771) and have sinc...

•7 years ago

I've returned for advice

Firstly I want to thank everyone who has helped me with my previous posts and to say that I'm feeling sooo much better! That much better I now have enough...

Firstly I want to thank everyone who has helped me with my previous posts and to...

•7 years ago

homocysteine, intrinsic factor and Parietal cell antibody tests results?

Hi, I have been reading other posts and now have received my fathers results for the B12 followup tests. I convinced his GP to give him B12 injections of...

Hi, I have been reading other posts and now have received my fathers results for...

•7 years ago

FEELING SLIGHTLY BETTER BUT NOT HOLDING MY BREATH

My MRI this aft ,but think it will just confirm the degeneration of the spine . But following summat that Clivealive said, have upped the folate to everyday...

My MRI this aft ,but think it will just confirm the degeneration of the spine . ...

•7 years ago

What blood test should I ask for

Hi guys, I am starting to think I may have a functional B12 deficiency, I have an appointment with my doctor on Monday and I need to try and convince her of...

Hi guys, I am starting to think I may have a functional B12 deficiency, I have a...

•7 years ago

blood tests

hello can anyone advise me on the most accurate blood test for B12, they did test but it came back in range and wont entertain me. i have had stomach surgery...

hello can anyone advise me on the most accurate blood test for B12, they did tes...

•7 years ago

Symptoms that come & go & neuropathy what comes 1st.

Hi, I am asking a lot of questions. i hope that is ok. I am trying to figure things out. Last January, I started getting severe pins and needle and frozen...

Hi, I am asking a lot of questions. i hope that is ok. I am trying to figure thi...

•7 years ago

Folate

Hi, what is ideal serum folate levels? Thanks!

Hi, what is ideal serum folate levels? Thanks!

•7 years ago

What is a loading dose?

I tried to find the answer and I am confused. I have 1 ml vial of methylb12. Is this a loading dose? Thank you

I tried to find the answer and I am confused. I have 1 ml vial of methylb12. Is ...

•7 years ago

Homocysteine (serum) and MMA results

Hi everyone and thanks again for this excellent forum! I have had full blood tests (b12 was 240) and have just had my private results for homocysteine 11.7...

Hi everyone and thanks again for this excellent forum! I have had full blood tes...

•7 years ago

conference

soon be time for the conference. who is coming?

soon be time for the conference. who is coming?

•7 years ago

Told To STOP taking supplements Immediatly

Hi again all, so I had my second appointment with the new doctor after having the blood tests done, and the first thing she does is question me about what...

Hi again all, so I had my second appointment with the new doctor after having th...

•7 years ago

subcutaneous or intra-muscle?

Hi, one more question. My Dr., prior to my diagnosis, told me to do methyl B12 shots subcutaneously. Should I continue that practice or do intramuscle instead?...

Hi, one more question. My Dr., prior to my diagnosis, told me to do methyl B12 s...

•7 years ago

What kind of Dr?

Hi. Do you all recommend seeing a hematologist or is there another Dr. who specializes in balancing the vitamins & mineral levels? I have the b12 shots and b1...

Hi. Do you all recommend seeing a hematologist or is there another Dr. who speci...

•7 years ago

H-Pylori Question...

Can someone explain anything/everything about h-pylori (have gotten twice in 2016 & have to go next month for being retested again, the doctors think it's back...

Can someone explain anything/everything about h-pylori (have gotten twice in 201...

•7 years ago

neuro symptoms for a year before diagnosis of b12 deficiency

Is there any hope of recovery? Symptoms started as cold feeling very painful pins and needles in feet. They felt numb, but, I did and continue to have feeling...

Is there any hope of recovery? Symptoms started as cold feeling very painful pin...

•7 years ago

ADVICE NEEDED PLEASE.

First post on Pernicious anaemia forum, although i have posted on the thyroid forum as i have had a total thyroidectomy due to graves disease. After several...

First post on Pernicious anaemia forum, although i have posted on the thyroid fo...

•7 years ago

ADVICE NOTE: Normal Saline 0.9% for Injection

Hi All. I've recently noted that there have been posts advising a source for injectable saline and thought it would be useful to clarify what is safe for...

Hi All. I've recently noted that there have been posts advising a source for inj...

Administrator•7 years ago

A Bit of a Setback With B12 Def Blood Tests

I have been waiting for test results, now into week three. These were Private ones, owing to obstructive attitude by GPs in local surgery. The surgery (...

I have been waiting for test results, now into week three. These were Private...

•7 years ago

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