I was diagnosed with pernicious anaemia 4 years ago after a long battle with the healthcare system and it seems the fight continues. I was tested for B12 deficiency when I was 21 and it showed my levels were low then but was not acted on. I was told I had depression. ME, Chronic Fatigue and then was basically told it was all in my head - Feeling fatigued, pain in my legs, inability to concentrate, feeling the need too fall asleep on my desk by 2pm everyday! I finally decided to see a different GP who tested my B12 and told me that bad news was my b12 levels were 5 time lower than the recommended level but that she could treat me. That was 4 years ago and I am 33 and now receiving shots every 12 weeks.. I recently went back to the doctors as around 8 weeks I get the cloudy brain back and energy levels drop significantly. They kindly informed me that in Sept 2015 my red blood cells were shown to be enlarged (100) but I was not aware of this at the time, nor did they monitor or follow up with me. The doctor said she could not just increase my dose to every 8 weeks without testing me again so I had the test and low are behold my cells are still enlarged (increased now to 101.5).
I saw a different GP today to follow up from the recent blood tests and this one wants to test my B12 but my understanding was that would be pointless as it wont show low or high because I have the jabs!
The reason for this post is I am at my wits end! This foggy feeling has not started to affect my performance at work and I walked out of the surgery today feeling hopeless. The doctor actually asked me if I was depressed - of course I am!!
Do any of you know if my cells will always be large regardless of the shots? Or should i be pushing to know why they're still large?
I am going to book in to see the first GP as she seemed more receptive to the idea of me needing my jab every 8 weeks but she is not around until Oct 4th so any advice here would be greatly appreciated.
Thanks for reading my exceptionally long post!