Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for June 2016

Hevert

Hi ..I'm trying to purchaseb12 ampoules from hevert but only option to pay is through prepaid. Does anyone know how to do this ??

Hi ..I'm trying to purchaseb12 ampoules from hevert but only option to pay is th...

Justified

•8 years ago

9 Replies

Update on levels

My b12 is 916 and my folate is 12.7 is this good as i have no idea, my doctor said it is but I'd rather get another opinion on it as i still have some b12...

My b12 is 916 and my folate is 12.7 is this good as i have no idea, my doctor sa...

Nathan12345

•8 years ago

16 Replies

High folate level

Can anyone advise me plz I received one blood test bk which showed a high folate level while receiving b12 injections, I have 2 loading injections to receive...

Can anyone advise me plz I received one blood test bk which showed a high folate...

margie70

•8 years ago

5 Replies

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12 injections,still not right!

Firstly,thanks again for the replies when I post on here,makes all the difference to have this site and the support and info available. So,now had 12 every...

Firstly,thanks again for the replies when I post on here,makes all the differenc...

Janee635

•8 years ago

10 Replies

prep to confront gp

I need to get all my facts right. I have PA and serious b12 deficiency....plus severe neurological syymptoms...... I need b12 injections more frequently than...

I need to get all my facts right. I have PA and serious b12 deficiency....plus ...

jillc39

•8 years ago

5 Replies

B12 supplement

What's the best b12 supplement? I know methylcobalamin is best as there is cyneid in the other one. All the levels look so high though and gives like 10,000%...

What's the best b12 supplement? I know methylcobalamin is best as there is cynei...

chloe2124

•8 years ago

6 Replies

Joint Pain - cause and extra help

Hello, One of the most troublesome B12 deficiency symptoms for me is joint pain and discomfort-I sometimes have the sensation that my knee needs 'clicking'...

Hello, One of the most troublesome B12 deficiency symptoms for me is joint pain ...

Booksellercate

•8 years ago

12 Replies

When will my libido return?

After supplementing now for about a month I feel TONS better. I have energy, no more brain fog, no more aching, honestly cannot tell you how better I feel....

After supplementing now for about a month I feel TONS better. I have energy, no ...

steviep43

•8 years ago

12 Replies

Visit to the doctors

Just returned from a visit to the doctors this morning to ask if I could have my injections monthly instead of every 3 months as I was feeling no benefit from...

Just returned from a visit to the doctors this morning to ask if I could have my...

laurporr

•8 years ago

10 Replies

My baby is 18 today!!!!!!

Good Morning everyone, weather is a bit hazy but just nice. I'm still suffering with my right ear so I'm going to phone doc up later to make another...

Good Morning everyone, weather is a bit hazy but just nice. I'm still suffering ...

Bentleyboo

•8 years ago

6 Replies

Councilling for now

Got everything out there about home stresses,work,and for someone to just do the checks again before I'm labeled mad showed extreme anxiety.The lady was lovely...

Got everything out there about home stresses,work,and for someone to just do the...

Leigh6873

•8 years ago

3 Replies

How long is long enough

Hi all, Sorry to have to rely on your expert knowledge AGAIN but I need to ask about my mums twice weekly B12 injection. She has been having them for about 6...

Hi all, Sorry to have to rely on your expert knowledge AGAIN but I need to ask a...

Moggie

•8 years ago

46 Replies

Doctor has confused me. Please help!

I have just started self-injecting my B12 loading Injections as I have all the strong symptoms of a B12 deficiency. My B12 blood result is 209. However now a...

I have just started self-injecting my B12 loading Injections as I have all the s...

briskate

•8 years ago

12 Replies

Is Anyone Self Injecting Methylcobalamin?

Thank you all so much for replying with really helpful stuff. It stung a bit today too so I will try my stomach next I think and then move on to thigh. For...

Thank you all so much for replying with really helpful stuff. It stung a bit to...

Sallybones

•8 years ago

13 Replies

CHEST CRAMPS ???

I am getting chest cramps that last for a minute or so. Still no intrinsic factor results as they have been lost so had to take another b12 & intrinsic factor...

I am getting chest cramps that last for a minute or so. Still no intrinsic facto...

Justified

•8 years ago

4 Replies

B12 Rash?

I have been taking Solar sublingual b12 alternating between 5000 mcg and 2500 mcg for about 6 weeks. This morning I woke up with an itchy back covered in red...

I have been taking Solar sublingual b12 alternating between 5000 mcg and 2500 mc...

carer999

•8 years ago

3 Replies

High B12 readings

I was diagnosed B12 deficient last November, had six weekly loading injections and then was put on 3-monthly injections. This was increased to 2-monthly and...

I was diagnosed B12 deficient last November, had six weekly loading injections a...

henaddict

•8 years ago

7 Replies

Admitted to Hospital

I have been admitted for heart palpitations. I want testing done but not for sure what to request. The only labs I have seen is my CBC and my MCV is flagged...

I have been admitted for heart palpitations. I want testing done but not for su...

Beth1982

•8 years ago

20 Replies

The Fear 😐😐

Hi all I am sitting here nervously looking at a syringe and a vial of b12 which I received from Germany today. I know I have to self inject to get my level up...

Hi all I am sitting here nervously looking at a syringe and a vial of b12 which ...

lindabre

•8 years ago

11 Replies

UPDATE.....

Well, I've got a new GP and she has agreed that my symptoms should be dealt with even though my B12 levels are in range (only just). She has agreed to a weekly...

Well, I've got a new GP and she has agreed that my symptoms should be dealt with...

CRAZYFROGLADY

•8 years ago

20 Replies

Pins and Needles ...?

Hi Everyone, Advice if you Please ... After many long years of terrible PA symptoms ...(plus low thyroid untreated for many years) I finally started to SI a...

Hi Everyone, Advice if you Please ... After many long years of terrible PA symp...

Catsgalour

•8 years ago

12 Replies

Cyanocobalamin

does anyone know about this form of B12 injections?

jillc39

•8 years ago

23 Replies

Frequent urinating?

Hey guys. I feel like it's ever since I started the self injections of b12. Twice a week. I've noticed lately I've been peeing a TON and sometimes I'll almost...

Hey guys. I feel like it's ever since I started the self injections of b12. Twic...

Ladyawkward

•8 years ago

17 Replies

Heat intolerance

Hey guy's! I'm going on vacation soon and with it being hot as hell out I was wondering if any one else used a wheelchair? I have a intolerance to heat it gets...

Hey guy's! I'm going on vacation soon and with it being hot as hell out I was wo...

Ithinkimdying

•8 years ago

7 Replies

Advice

I have been put on B12 supplements and don't fell much better...having read the posts on here I am concerned that my other medications are a hindrance. I've...

I have been put on B12 supplements and don't fell much better...having read the ...

Leeja

•8 years ago

11 Replies

No one believes me

Went work today but broke down I felt confused ,and couldn't remember wat I'd bin asked to do I work on a dementia unit ,even had the b12 book but everyone...

Went work today but broke down I felt confused ,and couldn't remember wat I'd bi...

Leigh6873

•8 years ago

6 Replies

started self injecting and just need some feedback please.

Hi all Quick recap. I'm waiting to see an Endocrinologist 22nd of this month but a retired doctor I spoke to privately regarding my situation told me not to...

Hi all Quick recap. I'm waiting to see an Endocrinologist 22nd of this month bu...

Sallybones

•8 years ago

16 Replies

One small victory!!

If people havnt read my previous post basically I had a hair strand tested for intolerances privately and this showed I was lacking B12 (amongst others Vit D...

If people havnt read my previous post basically I had a hair strand tested for i...

Rachel-285

•8 years ago

12 Replies

Need Advice

hello i am thinking i have something like Anemia because i have been really weak where i can't do anything now. feeling like this for a month. the weeks before...

hello i am thinking i have something like Anemia because i have been really weak...

mikep3000

•8 years ago

10 Replies

Going mad

Hi for a long time now I av felt like the opposite to my real personality but for as long as I can remember I can't think straight ,isolate myself from family...

Hi for a long time now I av felt like the opposite to my real personality but fo...

Leigh6873

•8 years ago

7 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2016

Hevert

Update on levels

High folate level

12 injections,still not right!

prep to confront gp

B12 supplement

Joint Pain - cause and extra help

When will my libido return?

Visit to the doctors

My baby is 18 today!!!!!!

Councilling for now

How long is long enough

Doctor has confused me. Please help!

Is Anyone Self Injecting Methylcobalamin?

CHEST CRAMPS ???

B12 Rash?

High B12 readings

Admitted to Hospital

The Fear 😐😐

UPDATE.....

Pins and Needles ...?

Cyanocobalamin

Frequent urinating?

Heat intolerance

Advice

No one believes me

started self injecting and just need some feedback please.

One small victory!!

Need Advice

Going mad

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