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Pernicious Anaemia Society

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All posts for May 2015

Vocal problems and b12

Does anyone else have a problem with their throat, or voice when jabs are due? My daughter is a singer and finds that by about week 7, or leading up to week 7...

Does anyone else have a problem with their throat, or voice when jabs are due? M...

mardiray

•9 years ago

3 Replies

Is it really B12d? Next steps to investigate please!

Sorry, this is going to be a long one! Starting with med history: coeliac following a strict GF diet for the last 14 years, lactose intolerant for last 12...

Sorry, this is going to be a long one! Starting with med history: coeliac foll...

sassyl

•9 years ago

17 Replies

Methyl Nasal Spray

Hi All, I was wondering if anyone could recommend a good Methylcobalamin nasal spray. I'm in the U.S., and have a horribly difficult time finding methyl...

Hi All, I was wondering if anyone could recommend a good Methylcobalamin nasal ...

NJMommy

•9 years ago

13 Replies

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Why humans need nutrient dense animal foods for good health

A really interesting video interviewing Lierre Keith, author of the book, 'The Vegetarian Myth'. http://youtu.be/rNON5iNf07o

A really interesting video interviewing Lierre Keith, author of the book, 'The ...

Polaris

•9 years ago

5 Replies

Still suffering from pernicious anemia symptoms

Hi, I am a 35 year old female that was diagnosed with pernicious anemia 2 years ago. I self inject 1 ml of cycancobalamin every two weeks. Recent labs show...

Hi, I am a 35 year old female that was diagnosed with pernicious anemia 2 years ...

Littlemomma

•9 years ago

6 Replies

Anyone ever heard of Eligen as a replacement for injections?

I typically ignore advertisements on web pages but this one for Eligen caught my attention. It is for oral B12 that allows absorption without intrinsic factor....

I typically ignore advertisements on web pages but this one for Eligen caught my...

_tracy_

•9 years ago

3 Replies

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Ozzie1234

•9 years ago

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Ozzie1234

•9 years ago

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Any help on b12

Hi have posted before but these were my results from February, I am going to doctors on Tuesday again because just don't feel right my doctor said these...

Hi have posted before but these were my results from February, I am going to doc...

Ozzie1234

•9 years ago

1 Reply

Folate!! Optimal Levels

Hi, does anyone know the optimal levels for folate for someone who suffers with Pernicious Anaemia? I have read on the B12deficiency website that 'Folate...

Hi, does anyone know the optimal levels for folate for someone who suffers with ...

AutoimmuneAnnie

•9 years ago

4 Replies

Memory and cognitive function

Does anyone know of any information regarding B12D/PA and cognitive function? I know many of us have awful memory and brain fog type problems, and I know...

Does anyone know of any information regarding B12D/PA and cognitive function? I...

Needing-answers

•9 years ago

7 Replies

Desperately need advice

Ok so at the beginning of March I went to my GP because I was feeling dizzy, tired, night sweats, headaches and pins in needles in arms and legs especially at...

Ok so at the beginning of March I went to my GP because I was feeling dizzy, tir...

Carlygeorge

•9 years ago

13 Replies

New to B12 deficiency and need advice

I have been recently diagnosed with B12 deficiency after blood tests to check my thyroid as I have pretty much all the symptoms of an under active thyroid....

I have been recently diagnosed with B12 deficiency after blood tests to check my...

Hidden

•9 years ago

4 Replies

Advice on injecting

Hi, I'm Kirsty. I was diagnosed with PA last year but had the symptoms of it for far longer. Was given the initial loading dose which made me feel absolutely...

Hi, I'm Kirsty. I was diagnosed with PA last year but had the symptoms of it for...

kcintherye

•9 years ago

11 Replies

Stomach and diaherra

Hi, I have a lot of trouble with my stomach with diaherra every other day. Also, light headed and dizzy some days. Have Pernicious Anemia and getting shots...

Hi, I have a lot of trouble with my stomach with diaherra every other day. Als...

Wienke514

•9 years ago

18 Replies

Active B12 test

Hi I wonder if anyone could help? It has taken years to get my daughter diagnosed as having low B12 and at last have got her on 3 monthly injections. She has...

Hi I wonder if anyone could help? It has taken years to get my daughter diagnose...

Steph14

•9 years ago

11 Replies

Help is it adrenal or B12

Also could anyone advise me are symptoms for adrenal fatigue and b12 the same? How do we know which needs treating? Thank you

Also could anyone advise me are symptoms for adrenal fatigue and b12 the same? ...

Tasraz

•9 years ago

1 Reply

Recently diagnosed b12 deficient with questions

Hi All, I was told by my doctor last week that I have B12 deficiency. I have been booked in for 3 injections over 3 weeks to be followed by injections every 3...

Hi All, I was told by my doctor last week that I have B12 deficiency. I have bee...

Lucas74

•9 years ago

11 Replies

IFA and B12 Test

As a long time PA bid, I have quite a lot of knowledge about the disease and I have been convinced for sometime that my older daughter has PA. She has many...

As a long time PA bid, I have quite a lot of knowledge about the disease and I h...

Hidden

•9 years ago

8 Replies

B12 Level 167ng and not being treated

Hi All, 2 months ago I asked to have my bloods tested due to a long list of symptoms including constant pins and needles in arms and legs as well as shooting...

Hi All, 2 months ago I asked to have my bloods tested due to a long list of sym...

Sjade

•9 years ago

14 Replies

Why?

Hi. I have had fatigue for my entire life to some extent. I am a 46 yo female. I was diagnosed with Hashimotos at 19. Recently I experienced some extreme...

Hi. I have had fatigue for my entire life to some extent. I am a 46 yo female. I...

ElizabethL

•9 years ago

8 Replies

Iron

Hi. I have low iron as well as PA. After 6 months of iron tablets prescribed by the doctor my iron has only gone up by 16. I'm now at the lowest part of...

Hi. I have low iron as well as PA. After 6 months of iron tablets prescribed b...

Alpacaem

•9 years ago

10 Replies

12 weeks for PA injections

Went to GP for my regular 8 week injection. Felt quite rough before. I was told that injections would only be given every 12 weeks to everyone as there was...

Went to GP for my regular 8 week injection. Felt quite rough before. I was tol...

sparkin

•9 years ago

5 Replies

Folic acid and b12

I was testing myself and was off of b12 sublingual for 10 days. I only took multivit which has low b12. at first I felt ok. Except just sleeping less. Then...

I was testing myself and was off of b12 sublingual for 10 days. I only took mult...

Justiina

•9 years ago

5 Replies

Vibrating in groin area....

Hi, I've recently started getting a vibrating sensation in my groin area. It almost feels like my phone is in my pocket and vibrating. Does anyone else get...

Hi, I've recently started getting a vibrating sensation in my groin area. It alm...

Hapi72

•9 years ago

30 Replies

Is there Any Up To Date Research To Support More Frequent B12 Injections?

I have an appointment with my GP on Friday at which point I will discuss that I have been self medicating. I gave up asking my GP for more regular injections...

I have an appointment with my GP on Friday at which point I will discuss that I ...

AutoimmuneAnnie

•9 years ago

13 Replies

B12 Mean Corpuscular Volume

50 yr old male B12 Vitamin Serum 155ng/L range 130.00-800.00ng/L Serum Folate 12.2 ug/L Range 4.00-20.00ugL I have visited my GP and mentioned my B12...

50 yr old male B12 Vitamin Serum 155ng/L range 130.00-800.00ng/L Serum Folat...

Advice1

•9 years ago

24 Replies

A Bit Of Humour! Muddling Up Words

Does anyone else experience this? I have made so many mistakes just recently with muddling up my words, using the wrong ones and it can quite funny. I was...

Does anyone else experience this? I have made so many mistakes just recently wi...

AutoimmuneAnnie

•9 years ago

6 Replies

Help with needle size please!!

I have 1mg vials of hydro to inject IM but not sure what needles to order from medisave. Any suggestions? Thank you.

I have 1mg vials of hydro to inject IM but not sure what needles to order from m...

Amber12345

•9 years ago

6 Replies

Who is going to conference?

I'm going - who else? I'm going on own, hoped to go with friend who is psychiatrist but she can't ( she has said she'll do more screening for B12d though).

I'm going - who else? I'm going on own, hoped to go with friend who is psychiatr...

Bluedragon

•9 years ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2015

Vocal problems and b12

Is it really B12d? Next steps to investigate please!

Methyl Nasal Spray

Why humans need nutrient dense animal foods for good health

Still suffering from pernicious anemia symptoms

Anyone ever heard of Eligen as a replacement for injections?

Pic

Pics

Any help on b12

Folate!! Optimal Levels

Memory and cognitive function

Desperately need advice

New to B12 deficiency and need advice

Advice on injecting

Stomach and diaherra

Active B12 test

Help is it adrenal or B12

Recently diagnosed b12 deficient with questions

IFA and B12 Test

B12 Level 167ng and not being treated

Why?

Iron

12 weeks for PA injections

Folic acid and b12

Vibrating in groin area....

Is there Any Up To Date Research To Support More Frequent B12 Injections?

B12 Mean Corpuscular Volume

A Bit Of Humour! Muddling Up Words

Help with needle size please!!

Who is going to conference?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive