Hi, I'm Kirsty. I was diagnosed with PA last year but had the symptoms of it for far longer. Was given the initial loading dose which made me feel absolutely amazing- I felt alert and had the energy to face the day for the first time in a long time. Since then, my doctor has put me on injection every 12 weeks. I don't think it has any impact. I'm not coping at all. I'm so low, I can barely function, I drag myself to work & then crawl back into bed & any type of social activity leaves me exhausted for days. I have these constant insufferable headaches, awful memory & brain fog. I've been back to my gp with all of this and suggested the idea of increasing the frequency of my injections. She maintains that overdosing on B12 can cause heart problems etc & that the practise maintain their recommendation of 12 weekly doses.
I need to take action into my own hands. Does anyone know of any London doctor who is willing to offer more frequent doses- I'm considering changing my GP. Alternatively I would really appreciate any advice on self injecting or alternatives. Especially where patients source their medications & trustworthy sites, helpful books/literature would be great too.
Thanks in advance.