Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for November 2014

Advice Please!?

I have recently purchased my own b12 to inject. Im trying to decide whether into the muscle or fat would be best? Also are there dangers doing it yourself?

I have recently purchased my own b12 to inject. Im trying to decide whether into...

benjiluce

•10 years ago

11 Replies

What Next?

I feel a bit cheeky coming here after such a long time of not showing face. Boy has it all changed from the old forum! Life has been good for me for several...

I feel a bit cheeky coming here after such a long time of not showing face. Boy...

pinktwinkles

•10 years ago

2 Replies

OH NOES! Have I ruined my chances for parietal cell antibody testing?

For reasons that are too embarrassing to explain, I suspect I might have something wrong with my parietal cells. I've had the full blood tests, plus B12 serum,...

For reasons that are too embarrassing to explain, I suspect I might have somethi...

Chancery

•10 years ago

8 Replies

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More stress; more b12?

Hi Does anyone here believe, like me, they need more b12 if the body is stressed eg. from infection, vigorous exercise, lack of sleep etc. and if so, does...

Hi Does anyone here believe, like me, they need more b12 if the body is stressed...

megan17

•10 years ago

3 Replies

tingling hand

I was recently diagnosed with B12 deficiency and have had the course of injections, which finished about six weeks ago. Although I am feeling more alive again,...

I was recently diagnosed with B12 deficiency and have had the course of injectio...

Francesrickard

•10 years ago

3 Replies

doityourself

hi everybody, I have just moved to Germany and the doctor I saw here for my first jab seemed to be far more supportive of my situation. Can anyone tell me...

hi everybody, I have just moved to Germany and the doctor I saw here for my firs...

doityourself

•10 years ago

1 Reply

Dr Riar

I've just read on the PAS website of the death of Dr Riar. Not much to say, other than the family have endured much grief over the last couple of years, and...

I've just read on the PAS website of the death of Dr Riar. Not much to say, oth...

Poppet11

•10 years ago

1 Reply

Tested positive for intrinsic factors however blood was taken 2 hours after my first b12 injection...

My gastroenterologist said that testing after the injection should be fine, the specialist nurse said it should be fine and so did the nurse giving the jabs...

My gastroenterologist said that testing after the injection should be fine, the ...

Ctb567

•10 years ago

3 Replies

PLEASE HELP....

I am one of the lucky one's that have my injection quite often every 5 weeks, but my problem is i am still very breathless, it's like when i breathe i need to...

I am one of the lucky one's that have my injection quite often every 5 weeks, bu...

metro100

•10 years ago

4 Replies

Is it worth fighting my doc for Methylcobalamin?

Hi, I'm currently negotiating with my doctor to have B12 injections for Trigeminal Neuralgia. I've read that Methylcobalamin is the preferred B12 of choice if...

Hi, I'm currently negotiating with my doctor to have B12 injections for Trigemin...

Chancery

•10 years ago

62 Replies

Methyl not working?

Has anyone experienced IM methylcobalamine NOT working?? I switched from cyanocobalamine about a month and a half ago and many of my PA symptoms have...

Has anyone experienced IM methylcobalamine NOT working?? I switched from cyano...

Reneef71

•10 years ago

8 Replies

Confused!

Please can you help. I am a 34 yo women diagnosed with underactive thyroid nearly 2yrs ago, was started on 200mg levothyroxine & had nearly every side affect....

Please can you help. I am a 34 yo women diagnosed with underactive thyroid nearl...

confused-79

•10 years ago

3 Replies

Are my B12 Results ok?

Hi, this was my B12 result: B12 Range 25.1 to 165 pmol/l My result: 73 pmol/l Got various symptoms that could be to do with anything including some grey...

Hi, this was my B12 result: B12 Range 25.1 to 165 pmol/l My result: 73 pmol/l ...

HealthPort

•10 years ago

8 Replies

Self Injecting

Hi Could anyone offers some advice on how I can start self injecting ,e.g. where do you get the needles and the vials etc? I live in Preston, Lancashire and...

Hi Could anyone offers some advice on how I can start self injecting ,e.g. whe...

PollyMoly

•10 years ago

5 Replies

Need advice please. Could this be the answer after 10 years!?

I've just returned from the doctors after asking for a b12 test. I had a level of 247 bit was told it is normal. I have had chronic and severe brain fog,...

I've just returned from the doctors after asking for a b12 test. I had a level o...

Qunk

•10 years ago

14 Replies

New to this ....

New to this!! Hi have recently been diagnosed with PA. I have a few questions as follows: 1. I have had persistently high blood pressure for over 9 months -...

New to this!! Hi have recently been diagnosed with PA. I have a few questions ...

Boo74

•10 years ago

6 Replies

Doctor not convinced of B12 deficiency

Hi, this is my first post but I have found reading other posts very helpful and informative, thank you. I would like to explain what has happened to me over...

Hi, this is my first post but I have found reading other posts very helpful and ...

TeddyC

•10 years ago

7 Replies

I am so happy.

I have just done my first injection, easy peasy !!! And I was so worried over nothing. I found this YouTube helpful. http://youtu.be/o_AgLYBvYx8 Bee

I have just done my first injection, easy peasy !!! And I was so worried over no...

Sukiwarrior

•10 years ago

8 Replies

What is the best next step please?

Hi, I was diagnosed with ME nearly 15 years ago. I have had some better spells during that time, but tend to keep relapsing with the usual digestive, sleep,...

Hi, I was diagnosed with ME nearly 15 years ago. I have had some better spells d...

Jo5454

•10 years ago

18 Replies

Sharing some 'good' news

About 6 weeks ago I was talking to my brother about B12 and was surprised that he expressed an interest in trying out a nasal spray ... result of me banging on...

About 6 weeks ago I was talking to my brother about B12 and was surprised that h...

Gambit62

Administrator•10 years ago

5 Replies

B12

Iv just been diagnosed with B12 deficiency with my level at 167, my GP has said she wants me to have 5 loading injections over 2 weeks I have my 3rd on...

Iv just been diagnosed with B12 deficiency with my level at 167, my GP has said ...

Jackz

•10 years ago

8 Replies

Methylcobalamin - intramuscular or subcutaneous?

I have recently obtained a supply of methylcobalamin . I plan to use this as a "top up" to keep me going between my hydroxocobalamin injections from the GP....

I have recently obtained a supply of methylcobalamin . I plan to use this as a ...

Strawberry_Dream

•10 years ago

13 Replies

HELP! - Doc demands convincing data for B12 treatment

I was diagnosed with Trigeminal Neuralgia 7 months ago. This is a neurological disorder which means you have damaged myelin sheaths in your brain which causes...

I was diagnosed with Trigeminal Neuralgia 7 months ago. This is a neurological d...

Chancery

•10 years ago

47 Replies

Some questions about Pernicious Anaemia and the causes of B12 deficencies?

I've been given very little information on PA by my doctors and they have only just tested me for PA even though I have had borderline low b12 for over a year...

I've been given very little information on PA by my doctors and they have only j...

Ctb567

•10 years ago

7 Replies

New kid on the block

Hi guys, about 8 days ago I was diagnosed with pernicious anaemia by my new doctor. Intrinsic factor was negative and b12 level was 154. I've since had 3...

Hi guys, about 8 days ago I was diagnosed with pernicious anaemia by my new doct...

StephieT

•10 years ago

6 Replies

Blood test normal

Hi well I have phoned for the results of my last blood test, which was taken just before my 1st 3 monthly injection, and I have been told everything has come...

Hi well I have phoned for the results of my last blood test, which was taken jus...

lal2502

•10 years ago

13 Replies

B12 deficient dog

A bit naughty to ask here, but I can find no information elsewhere, and these communities are such a fantastic reservoir of wisdom I thought maybe someone has...

A bit naughty to ask here, but I can find no information elsewhere, and these co...

Ruthi

•10 years ago

12 Replies

Shoulder and neck pain - related to PA?

Hello everyone. I was just wondering if anybody else knew if shoulder/neck stiffness and pain was connected to b12 deficiency/PA? For the past week, I have...

Hello everyone. I was just wondering if anybody else knew if shoulder/neck stif...

hjcohen

•10 years ago

10 Replies

Should I be taking other vitamins in addition to b12 injections?

I have pernicious anaemia and just wondering if I should be taking any other vitamins or supplements? I currently get b12 injections every 8 weeks and at...

I have pernicious anaemia and just wondering if I should be taking any other vit...

Strawberry_Dream

•10 years ago

5 Replies

Neurology Examinations

I was reading a post on an MS forum the other day - unfortunately I can't find it now - but it was a neurologist explaining what they were looking for and what...

I was reading a post on an MS forum the other day - unfortunately I can't find i...

Poppet11

•10 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2014

Advice Please!?

What Next?

OH NOES! Have I ruined my chances for parietal cell antibody testing?

More stress; more b12?

tingling hand

doityourself

Dr Riar

Tested positive for intrinsic factors however blood was taken 2 hours after my first b12 injection...

PLEASE HELP....

Is it worth fighting my doc for Methylcobalamin?

Methyl not working?

Confused!

Are my B12 Results ok?

Self Injecting

Need advice please. Could this be the answer after 10 years!?

New to this ....

Doctor not convinced of B12 deficiency

I am so happy.

What is the best next step please?

Sharing some 'good' news

B12

Methylcobalamin - intramuscular or subcutaneous?

HELP! - Doc demands convincing data for B12 treatment

Some questions about Pernicious Anaemia and the causes of B12 deficencies?

New kid on the block

Blood test normal

B12 deficient dog

Shoulder and neck pain - related to PA?

Should I be taking other vitamins in addition to b12 injections?

Neurology Examinations

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