I was diagnosed with Trigeminal Neuralgia 7 months ago. This is a neurological disorder which means you have damaged myelin sheaths in your brain which causes extreme electric shocks in your face. It is a rare condition, incurable and degenerative. Because of the degenerative part I am desperately trying to find out what may have caused it. To this end I requested B12 tests as I thought I might be deficient.
After a long hard fight and many lost test results I FINALLY got my result, which the doctor dismissed as 'normal'. However it was, in fact 384, which by many experts' standards falls into the 'grey zone', i.e. it is under the 400- 500 most of these people think is safe & healthy.
The trouble is, my doctor won't treat me. He feels the result is normal and he says I have to prove to him that there is good cause - from reliable sources - that my 380 merits B12 injections. I tried arguing that they can't do any harm, while leaving a deficiency would, but he remains unconvinced and mistrusts 'expert' doctors outside the mainstream.
Does anyone here have ANY data from places like PubMed or the BMJ or ANYWHERE reputable that might convince him to let me have injections? The only thing I have found so far is that Japan has a minimum normal rating of 500, which would place me as deficient in Japan!
I feel desperate about this as both my mother and my grandmother both suffered from possible pernicious anaemia/deficiency. I have had depression/anxiety type symptoms for many years, plus tiredness and forgetfulness which had got a lot worse before the TN struck. I also had other signs which I consider as possibly tell-tale, like dry skin, brittle nails, gastric problems, restless legs, muscle cramps. I agree they are too generic on their own, but when combined with Trigeminal Neuralgia they become much more serious.
Anyway, I am new here and would be grateful beyond words for any help. At the moment I feel completely overwhelmed, like a character in a fairy story who has been told to bring back three golden grains or a snowball in summer. Anyone???????????
P.S. I had a 0, normal result for F1 Antibodies, and my folate is 7.8. I have no idea if that folate result is good or bad but he said that was normal also.