Is it just me....or is an eyelid twit... - Pernicious Anaemi...

Pernicious Anaemia Society

32,062 members23,211 posts

Is it just me....or is an eyelid twitch just another symptom of B12 deficiency??

olliedog1 profile image
6 Replies

I've hashimotos, vitD def, folate def, I'm self administering B12 on a self med/ as I need basis and feeling better for it

Written by
olliedog1 profile image
olliedog1
To view profiles and participate in discussions please or .
Read more about...
6 Replies
B12Turbo profile image
B12Turbo

Self admin is not a good idea prior to being fully tested. Once you have taken B12, you should then leave a period of at least 3 months without taking any B12 prior to testing, otherwise your results will not provide a true natural body level reading, they will show a medicated reading. SORRY!! but that's the way things are at present.

If you wish to find out if you are B12 deficient, then there are procedures to follow, if you are wise. First attend your GP and ask him to carry out his standard and almost useless B12 Serum level test, which in your medicated state, is almost certain to be normal in your GP's eye's. Of course he may not be aware, that you can indeed be B12 deficient, with any Serum level reading. This should then be followed by a test for Intrinsic Factor and Parietal cell Antibodies, all of these tests are available free on the NHS. These tests will highlight your ability or inability to absorb B12 via your gut and hence your diet / oral admin route. Whilst on the same visit, you could request your GP's backing, in order to obtain blood samples for HoloTC testing and if needs be, MMA levels. As you are Folate deficient, then you should also in my opinion, consider a test for Homocysteine, which will further indicate both your B12 and Folate status. Advice on HoloTC, MMA and Homocysteine testing can be sort from Guy's / St. Thomas's Hospital in London and tests can be completed by post. You could contact Denise O'blein on 0207 188 7188, Denise will outline the procedures for arranging tests, you will also be able to E-mail her all your medical questions and she will then run them past the constants and experts in the field, answering them all by return of E-mail, which you will be able to refer to in the future, perhaps with your GP.

Hope all this helps and you soon have the answers you seek. Best wishes B12T.

olliedog1 profile image
olliedog1 in reply to B12Turbo

Thanks. I should clarify. I've had gp diagnosis of PA after blood tests and initial booster treatments. I'm now on the 3monthly regime. Not enough. So I've purchased b12 from goldpharma, and self administer about once a week. Feeling much better.

B12Turbo profile image
B12Turbo

Hi Olliedog

In which case, as long as you are not exhibiting Neuro symptoms, then by all means carry on if your happy to do so. However, if you are, then research strongly suggests that Methylcobalamin is a better medication than Hydroxocobalamin which your G.P. is more than likely administering. As you state you have a Folate problem, then it might be a good idea to take a look at your Homocysteine, although for this test by post, you will find whole blood samples are not usable, check with Denise, she will sort out the postal route with you.

sazzyb profile image
sazzyb

I had a twitchy eyelid before I was diagnosed hypo, in fact had several muscle twitch sites around my body. Very annoying it was.

Starfish123 profile image
Starfish123

Hi,

Eye twitching is also a vit d3 deficiency symptom, you have stated you have a deficiency, maybe you need to supplement more d3 too.

I also have a d3 problem, aches and pains, twitching eye and now foot pain, all due to stopping d3 treatment as I'm due a gallbladder op. I want to avoid fats that agrevate the gallbladder.

I've just restarted d3 to see if it helps.

christina1952 profile image
christina1952

I had a twitching eyelid that drove me mad before I was diagnosed with low thyroid.

It completely disappeared when I started taking Thyroxine

Might be your thyroid?

You may also like...

b12 deficiency symptoms

Im on gluten free diet, 10 weekly injections, and self inject weekly now as was not given more...

Confused about symptoms B12 deficiency or menopause?

fatigue the year before so they included B12. Basically B12 came back as 112, there was no HRT...

B12 deficiency, fatigue, twitching, anxious, insomnia

About three months back I was diagnosed with B12 deficiency 182 pg/ml after multiple doctor visits...

Weird symptoms- B12 deficiency?

they very relaible detecting B12 deficiency? B12 level is very good now. I'm adding example of a...

Symptoms of b12 deficiency

though she told me to take b12!). I think I have a severe deficiency. How much b12 should I take...