Hearing Problems

[patriciagrant]

I have Ataxia SCA7 - I have a lot of disabilities caused through this, however, what I am finding now is there is a delay between me hearing something, and when I recognise what has been said. This causes some problems as I don't immediately hear what people are saying to me. I didn't expect this.

Has anybody else experienced it? And if so, have they found a way to overcome it?

Thanks, Patricia

[wobblybee]

😏 I’ve experienced something similar, and wonder if it’s connected to Cognition. It can take me longer these days to ‘digest’ information and give a logical reply. If I’m under pressure and become stressed, the situation becomes much worse and panic can set in. So far, I haven’t found a solution. One thing I am sure of, I have no problems setting thoughts down in a post or email but, putting them into words in a conversation is something else entirely 🙂xB

[patriciagrant in reply to wobblybee]

I am experiencing things just as you describe, and it has worried me.

Thanks, Patricia

[benning]

i an no doctor but I find alot of the problems to do with ataxia are caused by a build of air in your system so anything like YOGA will help.

[patriciagrant in reply to benning]

Unfortunately I am in a wheelchair but a new club I go to is doing tai chi which I find very beneficial.

Thanks, Patricia

[Maysan71]

Hi Patricia :)! I have sca7 and i have overcome so many problems by going on a protocol and its about food and supplements. If u want to know more contact me on facebook May Otero or by email [e-mail]

[patriciagrant in reply to Maysan71]

I would be interested in more information - you are the only person I have come across that also has SCA7. I do not use facebook but are you okay for an email?

Thanks, Patricia

[wibblywobbly]

hi Patricia, I have a genetic cerebellum ataxia, unknown gene at the moment. I too have this problem, esp when I'm tired. Unfortunately I don't have a solution to this particular problem except rest. I go to bed every afternoon for 2 hours. I eat well and recently have started taking vit b12 once a month on prescription. I'm sure the vit b12 is making a slight difference. I also take a mushroom supplement called AHCC, this isn't directly for my ataxia, but helps with all the indirect health problems that I now have.

good luck

love

Alison x

[patriciagrant in reply to wibblywobbly]

I'm interested in what you say - what is b12 and how do you find it helps?

Regards, Patricia

[Meekster]

I also have this problem. I was told it us due to a delay in my processing of information. Unfortunately I walk slow, I talk slow and apparently I understand slow.

I usually try and have a one on one conversation in a quite area and frequently ask people to repeat the information.

[patriciagrant in reply to Meekster]

I experience all the things you mentioned.

Regards, Patricia

[Maysan71 in reply to Meekster]

read medicalmedium.com or google Anthony William

[robo1]

Hi Pat

I have a similar problem. I am always asking my wife, Jan, to repeat herself but by the time she replies I have often understood what she said first time. Also she used to complain that the tv was too loud so I bought an amplifier, not a hearing aid as they are much more expensive. I can now hear the tv with the sound turned down but I cannot understand what is being said when they talk too fast or mumble.

I can still understand newsreaders as they speak very clearly.

Bob

[patriciagrant in reply to robo1]

Thanks for replying. I wonder whether amplification would help me.

Regards, Patricia

[robo1 in reply to patriciagrant]

An amplifier makes things louder and therefore easier to hear but does not solve the problem of understanding what was said, especially if they speak too fast. I have bought a 'beurer' amplifier from amazon and, with Duracell batteries, they last about 2 weeks. ~ Bob