Walking

[weegiz12345]

Hi

I was diagnosed with spinocerebellar ataxia type 2 about 4-5 years ago, I'm still in full time work. My main difficulties are walking and coordination. When I'm at work or in the house I'm ok, getting up and down stairs I manage ok too. Walking with my partner is fine as i use him for my balance. I try to walk 10,000 steps a day but when walking on my own I sometimes don't walk in a straight line for long, I wobble and bump into people if they're walking with me. I'm not bad but I sometimes don't feel right. My speech is sometimes affected so I have to learn to speak slower and clearer.I know there are people with Ataxia far worse than me but my main question is do you think it would be worth my while using a stick when walking on my own? Any help greatly appreciated.

Louise

[kjtibby]

I use eithr a stick if I'm with someone or a rollator if I'm on my own, that way people see I have a disability and tend to move away from me and allow me the space I need. (I also get a sneaky sit down if my legs tire)

[weegiz12345]

Thanks for the info

[Caraxxo]

Hi Louise, I have spinocerebellar ataxia type 2 as well, I'm exactly the same as you but i use a rollator for in the house

Cara

[weegiz12345 in reply to Caraxxo]

Thanks for the info

[violasrbest]

Hi Louise

I would really recommend a stick. As kjtibby said, it is really useful for other people as well as yourself. I don't use a stick in my own house, but I do in other people's, and I have a wheelchair for work.

[weegiz12345 in reply to violasrbest]

Thanks for the info

[sylviagreenhalgh]

I have bought nordic walking poles and they really seem to help- the price range is quite large with very expensive one but I bought the sticks I have at the moment from Sedagyl and they are really good as using a lightweight walker makes me have a poor posture while these stick are really easy to use and improve my walking a lot- just getting used to them- I met someone with MS who had very expensive ones from Germany but I did not want to spend too much money. I have progressive cerebellar ataxia - all the best Sylviax

[weegiz12345 in reply to sylviagreenhalgh]

Thanks for the info