I was diagnosed with SCA7 almost 20 years ago. I retired from work 16 years ago.
My condition has deteriorated, and I am now in a wheelchair, and blind. My speech is very slurred, and communication can be difficult. My dexterity is very poor, and I have tremors.
I go to the gym every weekday for about an hour and a half, and do two aqua aerobic classes a week. I find the aqua aerobics very good because I can do things in the water that I would be unable to normally. Both instructors now know that I am blind, and therefore take into account, any problems I have.
I have a PA who helps me stay independent, and is able to act as my eyes during the hours that she is with me.
I would really like to connect with anybody else that has SCA7, and has multiple handicaps. Every solution always seems to be dealing with one problem, but not taking into account, the other disabilities.