Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for February 2012

Really bad cold and cough!

i have caught a very bad cold and cough everytime i cough it hurts my chest and at the moment it feels like i can't breathe though my mouth when i try and...

i have caught a very bad cold and cough everytime i cough it hurts my chest and ...

•12 years ago

HOBBIES?

Does anyone have any hobbies - BIG or little?

Does anyone have any hobbies - BIG or little?

•12 years ago

iloprost infusion

Hi all, just got back from five days treatment of iloprost infusion, 5.1 mg 6 hours p/day and my raynauds is as bad as ever. my consultant told me to see if i...

Hi all, just got back from five days treatment of iloprost infusion, 5.1 mg 6 ho...

•12 years ago

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How are we all coping with the ice and snow?

I have had a good week, probably due to the huge number of layers of clothing I have been wearing, and have written about it in my blog, if you would like to...

I have had a good week, probably due to the huge number of layers of clothing I ...

•12 years ago

I have just been to the optician and been told I have dry eyes. She recommended drops, but what are the best drops to use?

I also have very dry nostrils (inside) - is this connected to the scleroderma? Could the dry eyes be why my eyes always feel tired and gritty?

I also have very dry nostrils (inside) - is this connected to the scleroderma? C...

•12 years ago

leathery peeling fingers

I have had Raynauds for 30 years but it was mild. This year I was taking Sudafed and I think this caused it to worsen in my fingers..they are very...

I have had Raynauds for 30 years but it was mild. This year I was taking Sudafed...

•12 years ago

raynaulds and erythromelgia and menopause

I have suffered with raynaulds for over 20 years now and mild Erythromelgia about 6 since my hysterectomy last year I now have an added nightmare of the...

I have suffered with raynaulds for over 20 years now and mild Erythromelgia abou...

•12 years ago

hi all i have diffuse scleroderma and raynauds and i am on chemotherapy.

i would like to know if anyone else is and if it has made any difference to them.i have been on it for 6 months now.

i would like to know if anyone else is and if it has made any difference to them...

•12 years ago

Hi Newbe does anyone suffer from small splinter like black marks appearing on palm of hands

I have severe raynauds hands and feet waiting for treatment but am a bit concerned about these marks. have also had heart attack 5yrs ago am 57.

I have severe raynauds hands and feet waiting for treatment but am a bit concern...

•12 years ago

Alot of people on this site seem to be infusing with iloprost. My rheumatologist has never mentioned iloprost. What symptoms does it treat?

•12 years ago

Hello from a blogger

Hi guys, I am new here. I was diagnosed in October, and my Raynaud's is only mild so far, so I can't complain. It took me ages to find this site, and I am...

Hi guys, I am new here. I was diagnosed in October, and my Raynaud's is only ...

•12 years ago

Body Heat

I had an accident back in 2004 and since then I also taken a large amount of tablets each day for pain, can anyone tell me does your body turn hot or cold,...

I had an accident back in 2004 and since then I also taken a large amount of ta...

•12 years ago

Has anyone ever had paraprotein in their blood serum tests?

I have CREST - & wondered if this is to do with that ....I wish someone could explain what paraproteins are & should I be worried? ...

I have CREST - & wondered if this is to do with that ....I wish someone could e...

•12 years ago

I have CREST - & have suffered with enlarged lymph nodes for 12 weeks now - has anyone else with an autoimmune disease experienced this ?

They are enlarged in the armpits & now the groin - it's getting me down - all blood tests are coming back clear & I had a chest X ray ...& the GP cannot give...

They are enlarged in the armpits & now the groin - it's getting me down - all b...

•12 years ago

Positive Nail Fold Capillary test and Raynauds

I have had Raynauds for 20 years and have tested ANA positive only once in all that time (2001), subsequent tests have all come back negative. However after...

I have had Raynauds for 20 years and have tested ANA positive only once in all t...

•12 years ago

iloprost infusion

Going for iloprost infusion next week for five days i was wondering how much time, if any i would need to take off work. I do plumbing and heating and work...

Going for iloprost infusion next week for five days i was wondering how much tim...

•12 years ago

Re-Treatment.

Hi Guys/Dolls. Over the last few months I have been reviewed for Raynaud's and never been told if I have it or not, I also when inro hospital before christmas...

Hi Guys/Dolls. Over the last few months I have been reviewed for Raynaud's and n...

•12 years ago

Referal to a specialist? heat packs on perscription?

Ive suffered from Reynauds since I was a child and in that time Ive been medicated. This year has been alot worse and I went to see my doctor again last week...

Ive suffered from Reynauds since I was a child and in that time Ive been medicat...

•12 years ago

Raynauds & Diagnosed Health Issues Questionaire What Do You Think?

I have read all of your posts and questions. I see many of the same issues I have, not one or two but many. Would this community like to see a check list...

I have read all of your posts and questions. I see many of the same issues I ha...

•12 years ago

Raynauds cold weather

ive suffererd with raynauds since i was 18 and it seems to be getting worse now it's winter and the temperture is reaching -3 i don't take anything for it and...

ive suffererd with raynauds since i was 18 and it seems to be getting worse now ...

Lisa_Harrison_Lovatt

•12 years ago

Scared but not really

Haveing sclero sometimes scares me b/c I dont know whats going to happen. I been doing good for over a year now. No real issue. But lately I been feeling like...

Haveing sclero sometimes scares me b/c I dont know whats going to happen. I been...

•12 years ago

Finally some pain relief.

My sisters was in alot of pain. We couldn't control it w pain meds. A friend of mine came and did Bowen therapy on her. After three sessions she is pain free....

My sisters was in alot of pain. We couldn't control it w pain meds. A friend of ...

•12 years ago

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