How are we all coping with the ice an... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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How are we all coping with the ice and snow?

Heucherella profile image
15 Replies

I have had a good week, probably due to the huge number of layers of clothing I have been wearing, and have written about it in my blog, if you would like to have a look.

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Heucherella profile image
Heucherella
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15 Replies
Anteater profile image
Anteater

Hiya, don't like this cold snap very much - would rather hibernate ... But have had to go out so wrapped up in layers of thermals ... Very difficult to keep fingers warm though been quite painful .. Roll on spring and summer ..

LynnCox profile image
LynnCox

Now that our boiler has been replaced and the house is cosy and warm I'm doing OK. Doing the school run and going to work are bigger challenges - when outside I have 4-5 layers of clothes on plus my silver gloves with thick gloves over the top. Unfortunately I work at a hospital that is struggling financially (that's a massive understatement) and in an effort to cut energy bills they have reduced office temperatures to just 18C so I'm thankful for my silver fingerless gloves, hot drinks and multiple layers.

Emma2 profile image
Emma2

I'll be glad when it warms up a bit - I am getting fed up of the combination of both numbness and pain in my fingers. I hope everyone is keeping as warm as they can do!

tamie75 profile image
tamie75

We moved from MN to TX in July and while it was one of the hardest things leaving my parents and brother; it has been one of the best decisions. I have not had an ulcer since I moved down here and I feel so much better and more energized! I hope everyone is coping and doing well. I am grateful that my Raynaud's is not as severe as in the past and my thoughts go out to those of you who struggle with them. I know how painful they are. Stay warm!

Keke profile image
Keke in reply totamie75

<---- Jealous! lol. It's awfully cold here in MI. Well... I suppose it's been better than usual, but anything under 70 and things go awry. I have successfully created an indoor tropical environment though, lol. I try hard not to look at the heat bills...

Rp321 profile image
Rp321

I am doing pretty well considering the problems this weather has caused me before, although saying that i have been staying in once i get home from work (im usually out and about doing one thing or another).

My main problem is i have really sore patches on my hands which is all red cracked skin and my hands are really dry. i am using lots of e45 and aquas cream as all other creams seem to really sting. i have no idea if it is related to raynauds or not either way i am worried it will only get worse as i am starting a new job next week which will mean i have to wash my hands and use alchole gel loads (i will be working in a hospital).

zenabb profile image
zenabb in reply toRp321

Dear kaz321, Have you consulted your rheumatologist?

Rp321 profile image
Rp321 in reply tozenabb

Not about the dry/ cracked skin on my hands. I have primary raynauds so i dont think it is related. My all out war on the sore hands is paying off as its starting to heal up with all the creams etc, maybe i should do an experimant because i have been off work for a couple of days so i have been indoors most of the time which if it is related to raynauds would have an inpact?

zenabb profile image
zenabb in reply toRp321

I hope your time at home has worked with the cream. But if it hasn't get referred by your GP to a rheumatologist. Sometimes I think that we are too stoic for our own good.

Heucherella profile image
Heucherella

It was minus 11 this morning, and I had to go out...I had on so many layers I could hardly move, and three pairs of gloves, with hand warmers in. Scraping the car was the worst bit - my hands and feet both started to go numb. Luckily I was just about done, so could get in and go.

Keke profile image
Keke in reply toHeucherella

Try gloves inside mittens... it may sound ridiculous but it usually doubles the time I'm able to stay outside! My heart goes out to you though... -11... that would be my version of hell.

salustro profile image
salustro

however many layers i wear i am in constant pain-particularly my fingertips =which tingle and burn even indoors, with gloves,blankets and heating on.my skin iscracking open .ive recently started on nifedapine-just been increased to 15mg 3x daily any ideas?

sueshellann profile image
sueshellann

I am afraid I don't go out unless its from car to house I just cant cope with the cold to my hands, which I have to use on electric wheelchair. I order stuff on the computer and look longingly at my garden for any signs of the warmer weather. Stay warm and positive all you lovely people.

Keke profile image
Keke

Every day makes me want to move to Maui... 80 degrees year round, no variation... ahhhh... a girl can dream cant she?

colddonna profile image
colddonna

Hi. I'm in Canada. We have had a not too cold winter considering. We've been around the 0 to -10 C most of the winter. Its about 0 today. I'm not going outside.

I've only just discovered my raynauds this January. I just found this site yesterday, so hopefully next winter I will be much more prepared. Thanks for all the tips.

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