Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,477 members • 38,437 posts

All posts for March 2023

Changing from oral to intramuscular prednisolone

This is a shot in the dark as I don't recall anyone else posting about anything similar, but someone out there may be able to advise me. As I posted a while...

This is a shot in the dark as I don't recall anyone else posting about anything ...

Countrykitten

•1 year ago

17 Replies

Who pressures who to reduce steroids? Apparently it is us to blame ...

I just found this: https://jmedicalcasereports.biomedcentral.com/articles/10.1186/s13256-022-03625-y which has a couple of very interesting statements! "......

I just found this: https://jmedicalcasereports.biomedcentral.com/articles/10.11...

PMRpro

Ambassador•1 year ago

59 Replies

A flare after 4.5 months on Actemra

Hi again folks, Posted a couple of weeks ago while I waited for return call from Rheumy about ESR rising to 16/17 in February blood test from only 2 in...

Hi again folks, Posted a couple of weeks ago while I waited for return call fro...

strawclutching

•1 year ago

14 Replies

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P.M.R and hands and fingers

hello im new here after having p m r for over a year now my mobility has improved and now can walk for longer.im now in the last month devloped painful hands...

hello im new here after having p m r for over a year now my mobility has improve...

deeperpurple

•1 year ago

18 Replies

Update

Hi all, just giving an update on my journey ; I went to see a rheumy regarding being stuck on 12mg pred , and my dizziness, spots etc. She said i needed my...

Hi all, just giving an update on my journey ; I went to see a rheumy regarding...

Cromboy

•1 year ago

43 Replies

Dexa scan

I thought I would share my experience. I have just been for the above, having questioned the need for me to be taking Alendronic acid. I was told by my GP that...

I thought I would share my experience. I have just been for the above, having qu...

MrsPractical

•1 year ago

32 Replies

PMR and low White Blood Cell Count

A recent blood test (CBC) shows several low markers related to white blood cells - lymph, abs lymph, mono, and eosinophils. Also, two of the red blood cell...

A recent blood test (CBC) shows several low markers related to white blood cells...

DakotaMae

•1 year ago

10 Replies

PMR and Meralgia Paraesthetica

Hi. Does anyone else have PMR and Meralgia Paraesthetica? 🫤

Bramble2000

•1 year ago

16 Replies

Flaring and struggling to taper

I've ha PMR since March 2020 and began on 15mg, then 12.5, then 10 then 1mg reduction per day, then flared at 4.5. This has been my third flare and my GP...

I've ha PMR since March 2020 and began on 15mg, then 12.5, then 10 then 1mg redu...

Oboes22

•1 year ago

18 Replies

Immunosuppressed on Actemra???

Does anyone know if being on Actemra puts you more or less at risk of covid complications? I had one doctor tell me I was actually safer on Actemra bc it is...

Does anyone know if being on Actemra puts you more or less at risk of covid comp...

emmamom

•1 year ago

6 Replies

Reducing again - but not feeling too good 😞

Hi everyone, I am now down to 4mg Pred using the very slow reduction method, but am feeling the dreadful fatigue, absolutely no energy at all, and don’t want...

Hi everyone, I am now down to 4mg Pred using the very slow reduction method, but...

jules1955

•1 year ago

55 Replies

How would you know if LVV is flaring during a taper if it's asymptomatic?

How would you know if LVV is flaring during a taper if it's asymptomatic (no headaches or jaw claudication)? For those with PMR also, would the return of PMR...

How would you know if LVV is flaring during a taper if it's asymptomatic (no hea...

Dochaz

•1 year ago

25 Replies

tapering with increased stiffness

GCA and PMR diagnosed Jan 2022. Started 40mg. At present Tapering from 8 to 7.5 for the last 6 weeks. I have found that I am feeling more stiffness between...

GCA and PMR diagnosed Jan 2022. Started 40mg. At present Tapering from 8 to 7.5 ...

Albyn32

•1 year ago

9 Replies

Shall I change from Pred to Methotrexate?

I was diagnosed with GCA in 2020 and prescribed Pred. I reduced to nothing in summer 2022 but had a GCA flare with some PMR symptoms and high blood markers....

I was diagnosed with GCA in 2020 and prescribed Pred. I reduced to nothing in su...

Agavegirl

•1 year ago

18 Replies

recurring inflammation

I have been off steroids for 6 months. Started to have increasing pain, my GP just called to say my inflammatory markers are up, would I like to try pred...

I have been off steroids for 6 months. Started to have increasing pain, my GP ju...

Alazarin

•1 year ago

12 Replies

Reduction of Prednisolone Dosage

I have been on Pred for 10 months. I am experiencing various side effects including weight gain (1 stone), swollen ankles, muscle weakness, skin more easily...

I have been on Pred for 10 months. I am experiencing various side effects includ...

craighead72

•1 year ago

26 Replies

Immunosuppressed???

What is the latest assessment on whether we are immunosuppressed as my GP states anyone on 7.5mg prednisolone and above. Based on that assessment I will not be...

What is the latest assessment on whether we are immunosuppressed as my GP states...

gemmalaura

•1 year ago

19 Replies

long awaited rheumy appointment

nearly a year, then appt just 15 minutes long…was booked as a 45 mins appt. Nobody went in before me, I was only one in waiting room, & I saw him go into his...

nearly a year, then appt just 15 minutes long…was booked as a 45 mins appt. Nobo...

Pixix

•1 year ago

152 Replies

Can't get below 8mg PMR

No matter what I try tapering wise I cannot get my Prednisolone below 8mg, even dropping to 7mg gives me a lot of pain and stiffness.

No matter what I try tapering wise I cannot get my Prednisolone below 8mg, even ...

ah7690

•1 year ago

22 Replies

many thanks

Dorset Lady and PMRPRO Thank you very much for your usual rapid and helpful response to my query re my flare three days ago., I have followed your advice...

Dorset Lady and PMRPRO Thank you very much for your usual rapid and helpful r...

seamaid

•1 year ago

2 Replies

How to respond to my doctor

Hi diagnosed with PMR in 2017. Up and down levels of pred keen to reduce as I am a type 2 diabetic. Down to 2mg pred in Jan this year but pain in shoulders,...

Hi diagnosed with PMR in 2017. Up and down levels of pred keen to reduce as I am...

SRIXON

•1 year ago

6 Replies

swollen mouth

has anyone had swollen mouth particularly early morning?

Bedwell

•1 year ago

8 Replies

Prednisone blood concentration and exercise

Does exercise have any effect on the prednisone concentration in one's body? For example, if I took my morning dose of prednisone then later walked at a fast...

Does exercise have any effect on the prednisone concentration in one's body? For...

dccarver

•1 year ago

3 Replies

Painful teeth

Here's another one. Anyone experienced painful teeth -- extreme sensitivity to moderately. cold food? Not related to chewing or pressure on the...

Here's another one. Anyone experienced painful teeth -- extreme sensitivity to ...

Merryfield

•1 year ago

75 Replies

Prednisone and non PMR body pain

As I understand, prednisone lessens PMR pain by reducing inflammation and lowering your immune system. If a person was on prednisone, for say months, would...

As I understand, prednisone lessens PMR pain by reducing inflammation and lowe...

dccarver

•1 year ago

41 Replies

Dosage advice please.

I’ve been living happily on 2mg Prednisolone now for about 9 months but the last few months have been pretty full-on activity-wise & after returning from a...

I’ve been living happily on 2mg Prednisolone now for about 9 months but the last...

Lyndaki

•1 year ago

9 Replies

Increase prednisolone???

I would like to thank those of you that replied to my post regarding increasing prednisolone from 2mg to 40mg because ESR of 41 was too high (on advice from...

I would like to thank those of you that replied to my post regarding increasing ...

ipsidipsy

•1 year ago

5 Replies

Steroid reduction

I haven’t posted for a while as I had open heart surgery to replace my aortic valve. Very slow recovery! My endocrinologist wants me to reduce from 6 to 5 mg...

I haven’t posted for a while as I had open heart surgery to replace my aortic va...

SuziCutie

•1 year ago

4 Replies

Trochanteric Bursitis Pain Relief

After six weeks of serious hip pain finally orthopedic doctor diagnosed bursitis. Treatment take hydrocodone for pain and a lidocaine gel topically which also...

After six weeks of serious hip pain finally orthopedic doctor diagnosed bursitis...

Darkchocolate1

•1 year ago

17 Replies

Changing the time I take Pred.

My "active" day usually runs from 6am - 4pm! I don't do much in the evenings and usually retire at 9pm! So it is important that I feel good in the mornings and...

My "active" day usually runs from 6am - 4pm! I don't do much in the evenings and...

lonelysunrise

•1 year ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2023

Changing from oral to intramuscular prednisolone

Who pressures who to reduce steroids? Apparently it is us to blame ...

A flare after 4.5 months on Actemra

P.M.R and hands and fingers

Update

Dexa scan

PMR and low White Blood Cell Count

PMR and Meralgia Paraesthetica

Flaring and struggling to taper

Immunosuppressed on Actemra???

Reducing again - but not feeling too good 😞

How would you know if LVV is flaring during a taper if it's asymptomatic?

tapering with increased stiffness

Shall I change from Pred to Methotrexate?

recurring inflammation

Reduction of Prednisolone Dosage

Immunosuppressed???

long awaited rheumy appointment

Can't get below 8mg PMR

many thanks

How to respond to my doctor

swollen mouth

Prednisone blood concentration and exercise

Painful teeth

Prednisone and non PMR body pain

Dosage advice please.

Increase prednisolone???

Steroid reduction

Trochanteric Bursitis Pain Relief

Changing the time I take Pred.

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