Steroid reduction : I haven’t posted for a while as... - PMRGCAuk

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Steroid reduction

SuziCutie profile image
4 Replies

I haven’t posted for a while as I had open heart surgery to replace my aortic valve. Very slow recovery!

My endocrinologist wants me to reduce from 6 to 5 mg to have another synathocrin test .

so managed to get to 5.5 and 6 every other day. Trouble is I am no so very stiff in the morning. Pains in legs etc. just like a flare.

could half a mg cause that please ?

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SuziCutie profile image
SuziCutie
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4 Replies
piglette profile image
piglette

Half a mg at that dose is an 8% reduction which is not to be sneezed at.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Many have found it does....

..you might find a slower taper regime rather than an alternate day reduction - which seem to be more popular with some rheumies, but some of us on here think is harder on YOU.

Link to various plans -

healthunlocked.com/pmrgcauk...

PMRpro profile image
PMRproAmbassador

And while the endo wants you to reduce - it is very possible the PMR doesn't! At this stage it is a balance between both and I'm afraid that really PMR comes first. I would try a slower taper as DL says and be patient to see if the stiff morning legs improve or get worse - which might suggest 6mg is your dose for the present.

SnazzyD profile image
SnazzyD

The now you see it, now you don’t method of reducing certainly didn’t suit me. I preferred the sneak it in quietly approach; must less upset for my body.

I think it a little blinkered of the Endo to have you reduce for their purposes whilst forgetting why you are on it in the first place, which is not their domain. Also, I know it’s a just different medical opinion, but my Endo said even 5mg could give a misleadingly poor result. I had to reach 4mg minimum to get a Synacthen test.

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