Starting Actemra : On Wednesday I am starting... - PMRGCAuk

PMRGCAuk

21,317 members40,425 posts

Starting Actemra

Darcy2000 profile image
12 Replies

On Wednesday I am starting Actemra and I realize that ideally no alcohol is the right prescription. I do like a couple of glasses of wine with dinner any real issues with that ? Googled it but nothing really negative to say

Written by
Darcy2000 profile image
Darcy2000
To view profiles and participate in discussions please or .
Read more about...
12 Replies
PMRpro profile image
PMRproAmbassador

versusarthritis.org/about-a...

says

"There’s no particular reason to avoid alcohol while taking tocilizumab. However, the government guidelines say that both men and women should drink no more than 14 units of alcohol a week, and that you should spread these through the week rather than having them all in one go."

And arthritisaustralia.com.au/m...

says

"Use with alcohol

You may drink alcohol while taking tocilizumab. However, if you are also taking methotrexate you should be cautious about your alcohol intake. It is not known precisely what level of drinking is safe when on methotrexate, however there is general agreement that one to two standard drinks taken once or twice a week is unlikely to cause a problem.

Drinking more than four standard drinks on one occasion, even if infrequently, is strongly discouraged."

Rugger profile image
Rugger

The booklet I've been given with information about Actemra states that "....alcohol should always be consumed in small to moderate amounts as per government recommended guidelines."

Also "If in doubt, please always check with your rheumatology care team."

Is that a couple of glasses 7/7 and how big are your glasses?! 😉 🍷🍷

Darcy2000 profile image
Darcy2000 in reply toRugger

Funny ... 🤣

Rugger profile image
Rugger in reply toDarcy2000

I meant to say that you'll have regular liver function tests!

PMRpro profile image
PMRproAmbassador in reply toRugger

Used to be said a moderate drinker drank the same as their doctor ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toPMRpro

....and both probably lied about it too!

jinasc profile image
jinasc in reply toDorsetLady

Goning back a long time, our family Doctor, who was also a friend on my Dad for some reason. That Doctor was on the GMC when it was decided about alcohol limits.

No-one could agree, so they decided that they would do the 'Jesuit' way. Give me a child at 7 and I will make a man on of him.

Woman 2x7 = 14units, Men 3x7 = 21 units.

Now whether the above is true or not...............I do not have a clue. it could have been my Dad warning us about alcohol.

Now I do know this is true, when I saw my Rheumy for the first time, he asked, 'How much alcohol? ' I asked 'by the bottle or the glass' and then told him the story. He just shook his head and laughed 😊😊 but did not dispute it.

Blackcatlover profile image
Blackcatlover

I have been on Actemra for two years now and enjoy two glasses of wine a day. No problems so far. Life is short! I would hate to give up my wine.

Darcy2000 profile image
Darcy2000 in reply toBlackcatlover

Yay great advice

scottygirl73 profile image
scottygirl73

I have the odd glass of wine,or a Bacardi not had any problems at all.xx

Darcy2000 profile image
Darcy2000 in reply toscottygirl73

This makes me Happy ... life is too short

scottygirl73 profile image
scottygirl73 in reply toDarcy2000

Sure is we need a wee pick me up.🍷xx

Not what you're looking for?

You may also like...

Starting actemra this month

Good morning. I have been approved for actemra starting this month. I have had GCA since October...
alvertta profile image

Starting Actemra this week

I have both PMR and GCA . I was Wondering Actemra can also help the PMR. I am currently on 15 mg of...
Darcy2000 profile image

Actemra???

I am in California and was diagnosed with PMR in May of 2021 and, a month later, with GCA. I have...

Actemra

Actemra has been really keeping my pain tolerable, however I needed a crown and was advised to...
Leeleep profile image

Actemra

Has anyone taken Actemra infusions?  I do not do well with drugs and my Rhumy has suggested it as I...
cassey1879 profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.