Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2020

Handwashing for Canadians

https://www.youtube.com/watch?v=5Vau3xlj8eI

HeronNS

•4 years ago

52 Replies

Tocilizumab and Covid19

Doctors in southern Italy have been supplied with stocks of tocilizumab/Actemra to trial in Covid19 patients. It had shown good results in China - but there...

Doctors in southern Italy have been supplied with stocks of tocilizumab/Actemra ...

PMRpro

Ambassador•4 years ago

43 Replies

Why is Covid19 not "just another flu like we get every year" and why should we be concerned? Are travel restrictions of any point?

I wrote this as a reply on another thread but have had a request it be posted as a thread in its own right: There are vaccines for the most common flu viruses...

I wrote this as a reply on another thread but have had a request it be posted as...

PMRpro

Ambassador•4 years ago

145 Replies

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Self isolating

Have been attempting to do this (more, it's our norm for much of the week) in the last week but have failed. Daughter is moving house today and our services...

Have been attempting to do this (more, it's our norm for much of the week) in th...

IdasMum

•4 years ago

1 Reply

prednisolone reduction

been on a low dose of 4mgs for several years and felt ok . recently went to see a new docter about another illness and he said you must get of prednisolone as...

been on a low dose of 4mgs for several years and felt ok . recently went to see ...

gw3pwh

•4 years ago

13 Replies

Ditch the carbs is quite an informative Web site.

https://www.ditchthecarbs.com/low-carb-shepherds-pie-cauliflower-mash/

Hidden

•4 years ago

6 Replies

prednisolone...

I was recently diagnosed with PMR, was on 15mg prednisolone for almost 4 weeks, but pain didn't ease, and got a bit worse, so doctor reduced the dose, with...

I was recently diagnosed with PMR, was on 15mg prednisolone for almost 4 weeks...

DaveAO

•4 years ago

12 Replies

COVID 19 INFO from Doc. (with my question)

Messaged my doc. I am 73.5 and been on prednisone 2.5 years at 2mg. ......going to 1.5 ...some days. I've been lucky with no flares and am fairly fit still. So...

Messaged my doc. I am 73.5 and been on prednisone 2.5 years at 2mg. ......going ...

yogabonnie

•4 years ago

25 Replies

Steroids did serious damage

I haven't posted in a few weeks because I was in the hospital for several days with a virus and trouble breathing. The virus wasn't serious but the breathing...

I haven't posted in a few weeks because I was in the hospital for several days w...

librarylulu24

•4 years ago

38 Replies

The importance of knowing your 'normal' temperature

Just want to make a point about temperature. I had to call 111 on Monday, who immediately noted name/address etc. A new call from a health professional...

Just want to make a point about temperature. I had to call 111 on Monday, who i...

petros31

•4 years ago

32 Replies

B..... GCA

having just struggled through 2 years of prednisolone, I went 6 weeks and the symptoms are back. Doctor sent me to the hospital and they confirmed it....

having just struggled through 2 years of prednisolone, I went 6 weeks and the sy...

sharonnorfolk

•4 years ago

10 Replies

SPA PMR AND COPD

My sister and I went for a Spa day today. It was a Christmas present not to be wasted. We took precautions for the virus threat as you can see. My...

My sister and I went for a Spa day today. It was a Christmas present not to be w...

Estellemac

•4 years ago

23 Replies

Confirmed PMR after PET-CT

Hi all Happy to say that after a truly horrific 6 weeks of fast tapering I am back on 15mg of pred and feeling so much better already. PET scan confirmed...

Hi all Happy to say that after a truly horrific 6 weeks of fast tapering I am ba...

Coffeebeans

•4 years ago

18 Replies

A positive letter to the editor re CV *

https://healthunlocked.com/lupusuk/posts/142908212/positivity-.?uid=eaba7d6c-c725-415f-81b4-a26e00dcd92d&utm_source=notification&utm_medium=email&utm_campaign=e

https://healthunlocked.com/lupusuk/posts/142908212/positivity-.?uid=eaba7d6c-c72...

PMRpro

Ambassador•4 years ago

103 Replies

PMR/GCA

Sadly, this morning I've been diagnosed with GCA. Blood test taken and results of that will come in next Friday for my next consultation. I had a feeling...

Sadly, this morning I've been diagnosed with GCA. Blood test taken and results ...

Hidden

•4 years ago

30 Replies

Should I be feeling so tired?

GCA returned in January and was quickly got under control with Prednisolone. 60mg to start with and then reducing. Everything has been fine and as I remember...

GCA returned in January and was quickly got under control with Prednisolone. 60...

Mischevious

•4 years ago

6 Replies

Further to my post yesterday ...

https://www.borderline24.com/2020/03/12/coronavirus-furto-al-policlinico-bari-rubate-le-mascherine-medici-personale/?fbclid=IwAR34r-lC0SIB14Jnrg-qcliGY968qZj7_G

https://www.borderline24.com/2020/03/12/coronavirus-furto-al-policlinico-bari-ru...

PMRpro

Ambassador•4 years ago

14 Replies

Taking Mycophenelate and coronavirus

I am taking Mycophenelate and Tocilizumab - both strong imunosuppressants - and wonder if that would effect my ability to get Coronavirus. I have GCA. I know...

I am taking Mycophenelate and Tocilizumab - both strong imunosuppressants - and ...

christine2715

•4 years ago

11 Replies

Petscan results

So I had my Petscan results and it's not showing vasculitis! Which is good news but it leaves no explanation for all my symptoms and the fact that the more I...

So I had my Petscan results and it's not showing vasculitis! Which is good news ...

Poppy1647

•4 years ago

14 Replies

Is it possible to see a Silver Lining and Stay Positive during this Coronavirus Crisis , a thought from Auntie Bee.

I decided to put up my reply to Rimmys thought provoking post today as a separate post just in case it may be of help to anyone feeling anxious during this...

I decided to put up my reply to Rimmys thought provoking post today as a separat...

Blearyeyed

•4 years ago

112 Replies

Thailand!

Monkeys looking for food in Thailand!! If this is a true photo heaven help us!!!!!! Sorry it's a bit blurred.

Monkeys looking for food in Thailand!! If this is a true photo heaven help us!!...

Constance13

•4 years ago

1 Reply

Are we immune compromised and avoid non necessary meetings??

We have a yearly AGM with a lot of older people, probably with pre existing conditions, like PMR. With the “ threat” of the Coronavirus, what do you think??

We have a yearly AGM with a lot of older people, probably with pre existing cond...

Kaaswinkel

•4 years ago

24 Replies

Follow up on does pred cause constipation

Hi everyone, After my colonoscopy last Thursday which was clear I discovered that the 'white' low fibre pre diet for 3 days stopped my nausea. So I stopped...

Hi everyone, After my colonoscopy last Thursday which was clear I discovered tha...

diana1998

•4 years ago

4 Replies

Coronavirus & Prednisolone dosage.

Help please. If I catch Coronavirus, do I adjust the dosage of Prednisolone. Presently I have tapered over two years from 20mg down to 4mg.

Help please. If I catch Coronavirus, do I adjust the dosage of Prednisolone. Pre...

HamishPMR

•4 years ago

5 Replies

'Social distancing' to avoid Covid-19 cf. the possible alternative !?

I am reading all kinds of ambiguous information from multiple media outlets and platforms on the globe. Clearly different countries are at different points...

I am reading all kinds of ambiguous information from multiple media outlets and ...

Rimmy

•4 years ago

32 Replies

The Flu .....really what is going on.

So why doesn’t travel stop for the flu that kills 15 to 30 thousand people a year in USA? Thus far less than 5000 people have died from Coronavirus. Who are...

So why doesn’t travel stop for the flu that kills 15 to 30 thousand people a yea...

Hidden

•4 years ago

60 Replies

Did anyone else ever hear this re GCA?

I was just cruising around the Internet and you know how one thing leads to another...and I came upon this: 10. Conditions Associated with Giant Cell...

I was just cruising around the Internet and you know how one thing leads to anot...

Grammy80

•4 years ago

6 Replies

Has anyone experienced a spontaneous need for a deep breath?

When I was first diagnosed last May I noticed I would just spontaneously take a deep breath about once an hour or so . It stopped for a while but today I'm...

When I was first diagnosed last May I noticed I would just spontaneously take a ...

Paperroses

•4 years ago

7 Replies

New to MPR - can I ever play golf again?

Any help or support would be great. Thanks David

Golfeveryday

•4 years ago

15 Replies

G C A

GCA I have GCA and being treated with prednisone! It has been 3 yrs! Does anyone know how many years this immune last? Thank you 😊 Iris

GCA I have GCA and being treated with prednisone! It has been 3 yrs! Does anyone...

irismeyer

•4 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2020

Handwashing for Canadians

Tocilizumab and Covid19

Why is Covid19 not "just another flu like we get every year" and why should we be concerned? Are travel restrictions of any point?

Self isolating

prednisolone reduction

Ditch the carbs is quite an informative Web site.

prednisolone...

COVID 19 INFO from Doc. (with my question)

Steroids did serious damage

The importance of knowing your 'normal' temperature

B..... GCA

SPA PMR AND COPD

Confirmed PMR after PET-CT

A positive letter to the editor re CV *

PMR/GCA

Should I be feeling so tired?

Further to my post yesterday ...

Taking Mycophenelate and coronavirus

Petscan results

Is it possible to see a Silver Lining and Stay Positive during this Coronavirus Crisis , a thought from Auntie Bee.

Thailand!

Are we immune compromised and avoid non necessary meetings??

Follow up on does pred cause constipation

Coronavirus & Prednisolone dosage.

'Social distancing' to avoid Covid-19 cf. the possible alternative !?

The Flu .....really what is going on.

Did anyone else ever hear this re GCA?

Has anyone experienced a spontaneous need for a deep breath?

New to MPR - can I ever play golf again?

G C A

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