Brain lesions?: G’day! Just wondering... - Pernicious Anaemi...

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Brain lesions?

PlatypusProfit8077 profile image

G’day!

Just wondering, does anyone have any insights into MRI reports, specifically brain and cord lesions?

My report has come back and my follow up appointment with neuro is next week (but he is a jerk whose office was filthy and he spent my whole appointment dismissing my concerns).

I have contacted a researcher/doctor at Sydney University whose main interests are MS and I asked about B12D causing lesions. He’s happy to take me on as a patient and discuss further.

Just thought I’d ask you very wise and experienced people as well.

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PlatypusProfit8077
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10 Replies
Jillymo profile image
Jillymo

Hi,

My neurologist was just as much of a jerk and also very dismisive. My brain scan's also show lesions ! Mine are in the white matter but were discovered long before my deficiency of B12. Dont be too concerned that these lisions mean M.S, in my case it didn't

You might find this link of interest.............. ncbi.nlm.nih.gov/pmc/articl....

I hope the Sydney Dr is much more approachable than the last imbacile you saw and able to give you an explanation.

PlatypusProfit8077 profile image
PlatypusProfit8077 in reply to Jillymo

Thanks so much Jillymo. The study was interesting - I hope the researchers did in fact go and study what the effect of B12 therapy did to those lesions!

I’ll keep reading, I’m finding that I feel much better about appointments when I feel like I’m armed with some knowledge beforehand.

Sleepybunny profile image
Sleepybunny

Hi,

If you search online for "B12 deficiency white matter lesions" that should show some research articles of interest.

PlatypusProfit8077 profile image
PlatypusProfit8077 in reply to Sleepybunny

Thanks Sleepybunny, I had started some reading but thought I’d ask in here as well for some personal experiences.

Nackapan profile image
Nackapan

I've kept the reports of my two brain Mri s a year apart.

You can then take them.to another to reading interpret for you

I had white matter lesions.

T2 flares

Some demylation.

Also blinds indicated inflammation

Second one better after a year on B12

All considered within normal limits .

Ruled out things as did the brain CT scan done in A and E

“CONCLUSION

Non-specific punctate white matter foci in the deep white matter and solitary punctate pericallosal lesion bilaterally. Equivocal T6 cord lesion left posteriorly. No definitive findings for MS but ongoing clinical correlation and followup imaging as clinically indicated is recommended.”

This was the end of my report - I’m still trying to understand it all.

B12life profile image
B12life

did your scan show lesions?

Mine did not.

PlatypusProfit8077 profile image
PlatypusProfit8077 in reply to B12life

Yes, see above for the summary on my report

Dfthbhjj profile image
Dfthbhjj

My MRI showed areas of the brain that had been starved of oxygen. I'm currently waiting for a nerurovascular appointment, but I'm wondering could these be caused by the B12 deficiency? This is all fairly new to me as I was only diagnosed with B12 deficiency just over a year ago. As I've mentioned in another thread not having much luck getting injections more regularly but I'm sure the benefits are only lasting a few weeks after each injection so I would think more frequent injections are what I need. But the brain thing worries me and the obviously want to sort things out before more irreversible damage is done.

carr_trip profile image
carr_trip

I had white matter lesions, but was eventually diagnosed a having a patent foramen ovale (PFO), which is a right-left atrial heart shunt and can cause small stroke-like events -- so, even though I have PA, that was suspected to be the culprit (I had it closed).

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