Just wondering, does anyone have any insights into MRI reports, specifically brain and cord lesions?
My report has come back and my follow up appointment with neuro is next week (but he is a jerk whose office was filthy and he spent my whole appointment dismissing my concerns).
I have contacted a researcher/doctor at Sydney University whose main interests are MS and I asked about B12D causing lesions. He’s happy to take me on as a patient and discuss further.
Just thought I’d ask you very wise and experienced people as well.
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My neurologist was just as much of a jerk and also very dismisive. My brain scan's also show lesions ! Mine are in the white matter but were discovered long before my deficiency of B12. Dont be too concerned that these lisions mean M.S, in my case it didn't
Thanks so much Jillymo. The study was interesting - I hope the researchers did in fact go and study what the effect of B12 therapy did to those lesions!
I’ll keep reading, I’m finding that I feel much better about appointments when I feel like I’m armed with some knowledge beforehand.
Non-specific punctate white matter foci in the deep white matter and solitary punctate pericallosal lesion bilaterally. Equivocal T6 cord lesion left posteriorly. No definitive findings for MS but ongoing clinical correlation and followup imaging as clinically indicated is recommended.”
This was the end of my report - I’m still trying to understand it all.
My MRI showed areas of the brain that had been starved of oxygen. I'm currently waiting for a nerurovascular appointment, but I'm wondering could these be caused by the B12 deficiency? This is all fairly new to me as I was only diagnosed with B12 deficiency just over a year ago. As I've mentioned in another thread not having much luck getting injections more regularly but I'm sure the benefits are only lasting a few weeks after each injection so I would think more frequent injections are what I need. But the brain thing worries me and the obviously want to sort things out before more irreversible damage is done.
I had white matter lesions, but was eventually diagnosed a having a patent foramen ovale (PFO), which is a right-left atrial heart shunt and can cause small stroke-like events -- so, even though I have PA, that was suspected to be the culprit (I had it closed).
- I followed up with the initial referral (Dr McJerkface) who lived up to his name. He hadn’t read the report or viewed the MRI images prior, so tried to quickly scan the summary and fob me off while I was sitting there. I queried the findings and could swear I saw his face drop “oh you’ve read the report?” He then said the result was too “wishy washy” to conclude anything of note except repeat the MRI in 3 months time. Needless to say, he won’t be seeing me again.
- I saw the new neurologist today at the Brain and Mind Centre which is attached to a major teaching hospital. He was fantastic - took about 30 minutes to get a baseline of info including family history, my medical history, what happened in March etc ongoing symptoms. And then did some quick neuro tests before sitting down to go over the MRI report and images with me. He also wants to repeat the MRI but because some of the lesions were of note and were in unusual locations. He said MS was still a possibility but very very small considering all my symptoms don’t link up with it very well.
I did tell him how often I was SI B12 and he queried the necessity and asked if some of the symptoms returning could be explained by anxiety (I took a point away from him for this comment). I asked about toxicity and then pointed out the recommendation on B12 ampoules is EOD for neurological symptoms which he agreed I did have. I did assure him that my goal was just to slowly wean down to less frequent injections so I think that reassured him (not that I care - I know how much it’s helped and there’s no way I’m going back to those symptoms!).
Anyway, I thought overall it was a positive consult and I’m glad I contacted him and can say goodbye to the horrible neuro.
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Brain damage caused by b12 deficiency
Brain Scan “normal”
Grateful!! A Neurologist worth keeping! 
Multiple sclerosis or B12 Deficiency...study needed.
