worse after b12 injection

[B12stuff]

really confused what and where to go from here…

I had a b12 hydroxy shot done 3 days ago and I have had so much brain fog, fatigue and just feel spacey ever since. I also do have currently low ferritin of 20 and my b12 was around 250 prior to injection. I had been told people felt better straight away… unsure what’s happening to me but I feel like a zombie and I already felt bad before the shots but now I feel even worse???

[Narwhal10]

Hi B12stuff,

Welcome here. You really need to learn about this illness because it is totally bizarre. Become a member of the Pernicious Anaemia Society

pernicious-anaemia-society.org

and buy or download Dr Joseph Chandy’s and Hugo Minney (PhD)’s book Vitamin B12 Deficiency in Practice. GPs do not know about it because they have so many other diseases to learn. Plus the bureaucracy.

You are experiencing what is called the Reversing Out syndrome as mentioned in Dr Joseph Chandy and Hugo Minney (PhD)’s book.

There are lots of myths and misconceptions about this disease/condition. Please get hard copies of your blood results, note the range and the cut-off levels for B12, ferritin, vitamin D and folate in your area.

Please do not allow your B12 levels to be re-checked once treatment has commenced. It is futile. Keep a symptoms diary to monitor your own progress. I do not know where you are in the world. In the U.K., standard treatment is 6 loading doses are Every Other Day (EOD) for 2 weeks. Then we are moved onto injections Every 3 months. Most of self treat (SI) because we cannot survive on 3 monthly. We have heard from medics that we are addicts and it is toxic. All rubbish.

I’m Welsh and have been called far worse names than an addict. If you are part of the LGBTQIA community, you OWN your labels too.

Er gweatha pawb a phopeth. Ry’n yma o hyd. (Despite everyone and everything. We are still here).