Back pain

[Kma123]

Hi everyone,

I just wondered if you can get increased severe back pain with B12 deficiency? I have Fibromyalgia so I'm in a lot of pain anyway and my doctor says the increased pain at certain times is just my Fibro. But I'm not so sure. I had loading doses at the beginning of February, then by mid April the pain was excruciating and I could barely walk, I then had another dose at the beginning of May and the pain subsided a little but for the last week or so it's been excruciating again and I can hardly walk.

My doctor is saying the B12 deficiency is diet related (as I'm overweight) even though I've told her I eat all the things high in B12. She therefore won't prescribe any more doses and wants me to have another blood test after 3 months (so at the beginning of August). MMA was normal but my Gastric Parietal cell antibodies are positive.

Any help/advice really appreciated.

Kim

[Narwhal10]

Hi Kim,

Welcome here. You really need to learn about this illness because it is totally bizarre. Become a member of the Pernicious Anaemia Society

pernicious-anaemia-society.org

You do not need to have an exact diagnosis, you can be involved in research and they are the only organisation that can produce statistics. Please know the misdiagnoses too :-

b12info.com/misdiagnosis/

Fourth from the bottom is fibromyalgia. Many of the community report that they have initially been diagnosed with this.

Plus, buy or download Dr Joseph Chandy and Hugo Minney (PhD)’s book Vitamin B12 Deficiency in Practice.

b12d.org/book

GPs do not know about it because they have so many other diseases to learn. Plus the bureaucracy.

There are lots of myths and misconceptions about this disease/condition. Please get hard copies of your blood results especially Gastric Parietal cell antibodies are positive. Please note the range and the cut-off levels for B12, ferritin, vitamin D and folate in your area. You do have another disease illness to contend with.

Please do not allow your B12 levels to be re-checked once treatment has commenced. It is futile. Keep a symptoms diary to monitor your own progress. I do not know where you are in the world. In the U.K., standard treatment is 6 loading doses are Every Other Day (EOD) for 2 weeks. Then we are moved onto injections Every 3 months. Most of self treat (SI) because we cannot survive on 3 monthly. We have heard from medics that we are addicts and it is toxic. All rubbish.

Cofion cynnes

[Kma123 in reply to Narwhal10]

Thanks Narwhal10, really appreciate your reply