6 Week SI Update : Good morning lovely... - Pernicious Anaemi...

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6 Week SI Update

Aymelss profile image
6 Replies

Good morning lovely people I hope you have a lovely weekend planned!

I thought I would pop on here and update on how things have shifted since I started SI, it’s been 6 weeks now and I have been doing them IM EOD with hydroxocobalamin.

Previous to this I was having them done with my GP every 3 months for the past 7(?)ish years and I was feeling very unwell with this.

I did put a couple of posts on here asking what to expect starting these because I was sceptical that anything would actually change as I had felt so poorly for so long and I think I was trying to manage my expectations.

So much has shifted I can’t quite believe it to be honest 😂 It’s funny because I did and am still definitely experiencing the whole worsening before improvement, my body feels like it’s on fire a lot of the time, it feels inflamed and almost swollen, and I am quite sore most of the time, mobility is not fantastic and I feel quite weak a lot of the time. But it’s weird because these symptoms don’t feel to me like a bad thing and I have this intuitive feeling that it’s all very positive and it feels like deep healing. When I had these symptoms previously it did not feel like a productive process and it felt like my body was just struggling. So that is interesting 😂

but separate to all of that I can not get over the huge change in my emotional and mental health and this is really echoing in lots of places in my life. There was some underlying depression and anxiety previously and that has just melted away, leaving what I consider to be my true self which is inherently very optimistic and positive.

I have so much more motivation to do things, I started a course and have handed in my first assignment (I feel like it’s going well) and I am comfortably taking on more work with my business. My house is very organised and clean and I’ve been wearing makeup and nice clothes every day for the past few weeks. My relationships are much more improved and I have the mental energy to engage more with my friends and family whereas before there were times where I would avoid my phone.

Despite my body being sore, I have so much more energy and motivation. I used to need at least 10 hours sleep a night to feel good and now I only need 7/8, I wake up in the mornings actually feeling refreshed which is mind blowing for me 😂

What really sold it to me was a couple of weeks ago, I took my 4yo daughter to the pools and there is this big water slide there with lots of steps, she loves it but previously I could only manage to go on it a few times with her until my partner would have to take over. But that day I must have got on it about 30 times with her 😭 I even went on it more times than my able bodied partner who was knackered 😂 It brought me so much joy to be able to be that mum I wanted to be for my little girl and she was so happy. I did pay for it over the next couple of days physically but I did not care because I was so happy.

Physically and with issues like brain fog, numbness and clumsiness there is a lot of progress to make, I’m looking forward to the time where my body doesn’t feel quite so inflamed, but honestly with the changes only in these last 6 weeks, I am so happy and excited! I’d like to say for anyone reading this and thinking about starting SI for yourself, it can be a little rough for the first few weeks but once you come to the other side of that, it really does all feel worth it!

Thank you all so much for the time you took to advise me when I was about to start this, I’m so grateful to you all and honestly look to you like angels who gave me my life back! 😭💖💖💖💖

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Aymelss profile image
Aymelss
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6 Replies
Nackapan profile image
Nackapan

So glad to hear .Getting your brighter mind back and motivation will get you through the healing struggles.

Then it's finding your maintenence .

Thanks for posting this .

Pepperpots302 profile image
Pepperpots302

thank you - I really needed to hear this today! C xx

Wheat profile image
Wheat

Oh Aymelss I am so pleased for you. After a long struggle you are starting to be the person and mother you always wanted to be. Best wishes,

Orchard33 profile image
Orchard33

What a lovely account of your road to recovery. Your transformation is wonderful and so possible for so many other sufferers. If only the medics would listen😩

MorningMist profile image
MorningMist in reply to Orchard33

I really don’t think many of them are interested in hearing.

Cherylclaire profile image
CherylclaireForum Support

Really overjoyed for you and your family !

I remember being delighted that I could finally feel when the nurse gave me an injection. Not that it hurt at all, just that I didn't need to ask "Have you finished yet ?" ...because I knew she had !

23rd Dec 2016 - an early Christmas present. It had taken three months of 2 injections a week to get there, but I knew something had at last changed for me.

Wishing you well, .... and more well !

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