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Pernicious Anaemia Society

32,099 members • 23,252 posts

All posts for May 2023

Oral absorption of B12

Do we have any well-run research which has established the relative absorption of the various forms of B12 when taken orally? methyl- hydroxo- cyano-...

Do we have any well-run research which has established the relative absorption o...

helvella

•1 year ago

13 Replies

Leg pain

I've had pernicious anemia for a long time and all has been going fairly well. For the past week I've been having bone pain in both legs and one arm at night...

I've had pernicious anemia for a long time and all has been going fairly well. ...

Jcilom

•1 year ago

9 Replies

Please give me strength.....

I feel as if I am dealing with complete and utter idiots. I have been waiting well over a year to be seen in gastrollogy. One of the consultants refered me...

I feel as if I am dealing with complete and utter idiots. I have been waiting w...

Jillymo

•1 year ago

20 Replies

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Antibodies Negative

Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins and needles etc and my b12 came back pretty low (167) started injections but now...

Hi, Im pretty new to this all. I was feeling extremely weak lethargic, pins an...

Stepp

•1 year ago

13 Replies

Has anyone tested MMA recently please?

Hi, am wondering if anyone has tested MMA recently please? On previous occasions I went through Viapath, St Thomas Hosp, and could have blood drawn at GPS and...

Hi, am wondering if anyone has tested MMA recently please? On previous occasions...

Jo5454

•1 year ago

5 Replies

DNA synthesis

Hi all. I recall reading somewhere that PA affects DNA synthesis. I've read the scientific explanation of what this involves but not much wiser. Can anyone...

Hi all. I recall reading somewhere that PA affects DNA synthesis. I've read the ...

doityourself

•1 year ago

21 Replies

Daily Mail Doctor speaks on PA!

https://www.dailymail.co.uk/health/article-12086427/DR-MARTIN-SCURR-Did-switching-B12-vitamin-jab-pills-anaemia.html Not often I stand behind Mail articles on...

https://www.dailymail.co.uk/health/article-12086427/DR-MARTIN-SCURR-Did-switchin...

Espeegee

•1 year ago

30 Replies

Stiff person's disease and pernicious anemia connection - Celine Dion

I was just watching a news piece on Celine Dion where she announces that she can't do her 2023 tour because she's been suffering for a very long time with...

I was just watching a news piece on Celine Dion where she announces that she can...

EllaNore

•1 year ago

37 Replies

Importing ampoules after Brexit

In the days before Brexit I used to buy B-12 ampoules from Versandapo, MyCare, Bodfeld, etc. I got a big supply of B-12 to see me through the Covid pandemic,...

In the days before Brexit I used to buy B-12 ampoules from Versandapo, MyCare, B...

Cetus

•1 year ago

8 Replies

Specialist in B12 deficiency / prescribing EOD injections

Has anyone found a specialist/ consultant that has correctly prescribed EOD injections till no further improvement? I was talking to my GP yesterday, about my...

Has anyone found a specialist/ consultant that has correctly prescribed EOD inje...

Lincsangel1

•1 year ago

9 Replies

Stupid Question alert. Serum B12 or Active B12. What are the Uk ?normal ranges.

So usually when test are done, NHS and BlueHorizon results for B12 are measured as serum B12. Had last test by Monitor My Health, their result listed...

So usually when test are done, NHS and BlueHorizon results for B12 are measur...

Polo22

•1 year ago

15 Replies

Gut Health with PA

Hi all… After years of neglect by NHS, I was in a sorry state and went private. Tests showed I had PA plus SIBO, lots of gut damage and dysfunction. Having...

Hi all… After years of neglect by NHS, I was in a sorry state and went private....

Zac2022

•1 year ago

34 Replies

Age of onset of using up B12

I was wondering if anyone else had early onset of using up B12 prior to DX. When I was 3.5 my father graduated from college so I can remember that day and...

I was wondering if anyone else had early onset of using up B12 prior to DX. Wh...

WIZARD6787

•1 year ago

5 Replies

B12 Ampoules

Hi All I'm sure you are sick of this question. I want some more ampoules and I have seen Havert on versandapo but I wondered if there was more elsewhere? I...

Hi All I'm sure you are sick of this question. I want some more ampoules and I h...

Sunshine1932

•1 year ago

15 Replies

What type of consultant/consultant East Anglia?

Hi I'm looking to try to get to the bottom of my problem(s). I had typical low b12 symptoms for many years, got very sick. I started b12 SI in mid Feb and had...

Hi I'm looking to try to get to the bottom of my problem(s). I had typical low b...

Uluru72

•1 year ago

5 Replies

Omeprazole

Just trying to self diagnose myself as my GP is not very helpful. I got a high blood pressure reading at a routine check earlier in the week. I’ve had ti I...

Just trying to self diagnose myself as my GP is not very helpful. I got a high b...

Bumblebetty

•1 year ago

24 Replies

Active B12 . . . & related tests, UK: quality, availability, . . . & £££s ! 😊

Hi ALL ! 😊 Active B12 test [?HoloTC] together with MMA & homocysteine, are recommended by those 'in the know' re. this fascinating B12 biology, including...

Hi ALL ! 😊 Active B12 test [?HoloTC] together with MMA & homocysteine, are re...

Sid_Arthur

•1 year ago

7 Replies

SI supplies for Aussie

I can’t work out how to search just this group, so I hope you don’t mind me asking. I am in Australia and am wondering about sourcing B12 for SI. I also seem...

I can’t work out how to search just this group, so I hope you don’t mind me aski...

kushami36

•1 year ago

16 Replies

What supplements with b12 injections?

Hi I started SI in mid Feb and experienced good improvement after about 10 days. I had been injecting cyanocobalamin every other day. I was very sick when I...

Hi I started SI in mid Feb and experienced good improvement after about 10 days...

Uluru72

•1 year ago

21 Replies

Really Interesting Study showing Functional B12 Deficiency in Austism and Relation to Functional B2 Deficiency

Hi everyone, https://www.walshmedicalmedia.com/open-access/functional-vitamin-b12-deficiency-in-autism-111564.html I'm one of those who have to inject B12...

Hi everyone, https://www.walshmedicalmedia.com/open-access/functional-vitamin-b1...

VellBlue

•1 year ago

17 Replies

illnesses

if you have pernicious anemia can it take longer for you to get over an illness

if you have pernicious anemia can it take longer for you to get over an illness ...

Becca2023

•1 year ago

9 Replies

B12 deficiency and Raynauds anyone ?

To my ever growing list of conditions I have been diagnosed with Raynauds - Oh joy. My Gp who was rather pleasant ( I hadn't met him previously ) also...

To my ever growing list of conditions I have been diagnosed with Raynauds - Oh j...

Jillymo

•1 year ago

51 Replies

Anyone found any hydroxocobalamin to order recently?

Need to order more but can only seem to find cyano, I'm already a complete wimp about SI and put it off for as long as possible each time so don't fancy trying...

Need to order more but can only seem to find cyano, I'm already a complete wimp ...

Clare184

•1 year ago

11 Replies

Any links - PA and Kidney disease?

Hi, I have Hashimotos for over 10 years and PA for 4 managed by self injecting. In the last month due to quite sudden onset of fatigue, dizziness, and...

Hi, I have Hashimotos for over 10 years and PA for 4 managed by self injecting. ...

CeiliGal65

•1 year ago

9 Replies

General advice

Hi everyone I would appreciate any advice anyone can offer. Diagnosed with PA some years ago and have B12 shots every 8 weeks. End of last year noticed I was...

Hi everyone I would appreciate any advice anyone can offer. Diagnosed with PA so...

Mullers26

•1 year ago

14 Replies

Test results for Intrinsic factor antibody level

Hi all, My GP has asked for the above test to be done as it does not say on records I have pernicious anemia. Bearing in mind I have had it since my early...

Hi all, My GP has asked for the above test to be done as it does not say on rec...

Milsean

•1 year ago

50 Replies

Sell by date of B12

Hello Everyone I hope you are all doing well and making progress. I was wondering with regards to B12 ampules:- When the expiry date, for example, says...

Hello Everyone I hope you are all doing well and making progress. I was wonder...

WorkingProgress

•1 year ago

8 Replies

After 3 years of B12 injections I suddenly need them more frequently?

Hi all, wondering if anyone else has experienced this or knows what may be causing it. I’ve been self injecting with rotexmedica hydroxy every 48 hours for...

Hi all, wondering if anyone else has experienced this or knows what may be causi...

Hedgehog235

•1 year ago

4 Replies

Top of Range Active B12

Hello I had a test at end of April and my results were >150 pmol/L for Active B12. The Medichecks doctor wrote that this was not an issue, but that my...

Hello I had a test at end of April and my results were >150 pmol/L for Active B...

FancyPants54

•1 year ago

23 Replies

Advice on folic acid

I was diagnosed with pernicious anaemia in nov last year . I am 65 years old and also have hashimotos thyroiditis for 30 + yrs. I had been under my gp for low...

I was diagnosed with pernicious anaemia in nov last year . I am 65 years old and...

Charlie27612

•1 year ago

14 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2023

Oral absorption of B12

Leg pain

Please give me strength.....

Antibodies Negative

Has anyone tested MMA recently please?

DNA synthesis

Daily Mail Doctor speaks on PA!

Stiff person's disease and pernicious anemia connection - Celine Dion

Importing ampoules after Brexit

Specialist in B12 deficiency / prescribing EOD injections

Stupid Question alert. Serum B12 or Active B12. What are the Uk ?normal ranges.

Gut Health with PA

Age of onset of using up B12

B12 Ampoules

What type of consultant/consultant East Anglia?

Omeprazole

Active B12 . . . & related tests, UK: quality, availability, . . . & £££s ! 😊

SI supplies for Aussie

What supplements with b12 injections?

Really Interesting Study showing Functional B12 Deficiency in Austism and Relation to Functional B2 Deficiency

illnesses

B12 deficiency and Raynauds anyone ?

Anyone found any hydroxocobalamin to order recently?

Any links - PA and Kidney disease?

General advice

Test results for Intrinsic factor antibody level

Sell by date of B12

After 3 years of B12 injections I suddenly need them more frequently?

Top of Range Active B12

Advice on folic acid

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive