Hi, I have Hashimotos for over 10 years and PA for 4 managed by self injecting. In the last month due to quite sudden onset of fatigue, dizziness, and jitteriness with like an internal tremor (which was a key symptom before Low B12 was diagnosed) I presumed my B12 had dropped off suddenly. Had the tingling in legs, though worse than usual, and some vague chest/heart symptoms. Did loading injections again as I had been slack and it had been a few months, which seemed to help fatigue a bit but nothing else.
Saw Dr and got results yesterday and diagnosed as Stage 3 chronic kidney disease-shocking!! 😱 and scary. Seeing dr tomorrow to discuss what this all means.
But wondering if anyone else had similar or any connections to kidney disease? I have 2 autoimmune gifts already, could this be a third?
I have also been following a low carb way of eating and doing more weights for exercise, and though these aappear to be not recommended for kidney disease (higher protein and creatinine) they do not seem to be linked as a main cause, especially so quickly. I came across something about. MMA and kidneys as well as homocysteine links possibly and this made me wonder re B12 connections.
I need to get heart checked as well as this is a family connection.
Any thoughts or links really welcome, as need to be prepped for the doc tomorrow in case any other tests to ask for. Or any autoimmune things to point out/query.
Gutted and have told no one yet until I know more but at 58 and starting to be fitter and healthier, I thought!, than ever, this is really upsetting. Fed up with my damn body throwing a third thing at me😢
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CeiliGal65
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sorry for slow reply, struggling a bit. My levels were 360 before injections and I had a positive for IF antibodies. so little anywhere re kidneys. But at least doc is taking seriously and having lots of tests.
Having Googled - on rare occasions thyroid issues can cause kidney problems. I wouldn't have thought it were anything to do with your B12, but dont quote me.
What a blow and so sudden it must be hard for you to get your head around. I cant understand why it wasn't picked up on before now. I hope your Dr acts promptly in getting your heart checked out as I know there are long waiting times - my cardiac scans are two years behind !
What a battle we are having with our health and can only hope your visit to the Gp was informative. Big hugs hun. 💐
ah thank you so much, and the doc is taking seriously at least so no battle needed! I have a scan next week and en each in June so not bad. And repeat bloods already. At least something is in motion.
I have been battling the gastro issues for over 4yrs, I even went to A&E twice ! It has taken over a year to get an appointment to be seen by a consultant which I had to battle to get changed from a phone consultation to a face to face. Only now does my Dr agree that not only do I have a hiatus hernia I also have an epigastric one. Lets hope I dont have to wait too long for the ultra scan as it would help to have the results when seen. 🤞
Hi I have PA and congenital heart disease and my kidney function is not great. Don’t know whether my kidney function is heart related or otherwise. I’ve had to reduce my SI regime . I must stress though, that I don’t believe the Hydroxocobalamin is causing my kidneys to not function as well as they should be , my Creatinine and eGFR readings were poorer straight after my heart surgery and before I was diagnosed with PA and eventually started SI. I think the EOD Hydroxo was merely making my kidneys work a bit harder peeing out excess B12. I’m reducing my SI to every 4 days and hope to do weekly. It’s a catch 22 situation. I need the SI as the two monthly I get from GP is nowhere near enough as many in here find. Yet my kidneys don’t like it if I try EOD . Hope this helps
this is really really helpful thank you. My kidney function was fine before SI, from records, but maybe something else has caused the kidney problem and then too much SI could exacerbate. I stopped SI since first bloods and had others yesterday so will be good to see if any difference. It of course, as you say, it may be totally unrelated. I think I will post in the thyroid forum too, may be links with that. I just like to be informed and well armed!! I don’t think this will be simple so research head on. Thanks again and sorry for delay. Away with work and just trying to keep going.
Sorry to hear about your latest issue. I have no experience of kidney issues and am wondering whether your symptoms are due to kidneys or whether it is coincidence.
I was starting to get similar symptoms to low b12 despite SI every 2 to 4 days and have been for a couple of years. With the help of a private practitioner I found I was deficient in selenium and started an oral supplement which worked quickly to reverse the symptoms pins and needles, tiredness and no stamina etc. This might be worth considering.
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