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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for May 2023

Needles

What the shortest needle you can use to self inject ur b12I use green for vile and orange to inject but would prefer smaller needle

What the shortest needle you can use to self inject ur b12I use green for vile a...

Mozza127

•1 year ago

6 Replies

Reminder - posts offering injectable B12

Please note that it is illegal to supply injectable B12 for medical purposes without a prescription in the UK. As a result posts attempting to do this will...

Please note that it is illegal to supply injectable B12 for medical purposes wit...

Gambit62

Administrator•1 year ago

2 Replies

Atrophic Gastritis

I was in conversation with a member in California who posted under the name of Rexz ..he was very knowledgeable but now seems to have gone off the radar…does...

I was in conversation with a member in California who posted under the name of ...

davina70

•1 year ago

4 Replies

Want to take advantage of all our features? Just log in!

Y'all did it again. Thank you!

So I was DX with chronic swimmers ear and told all I could do was treat with alcohol and vinegar. I read here about blocked Eustachian tubes and did some...

So I was DX with chronic swimmers ear and told all I could do was treat with alc...

WIZARD6787

•1 year ago

7 Replies

MMA results - supplements or further test?

Can I ask for your advice please? I have Hashmito’s. Since learning that this can influence the absorption of nutrients, I have been to the doctor’s to request...

Can I ask for your advice please? I have Hashmito’s. Since learning that this ca...

Dandelions

•1 year ago

16 Replies

B12 injection info.

Hi...I have PA for which I have had IM injections for the last 15 years approx. by the nurse at my GP surgery. I am now at a different surgery and have...

Hi...I have PA for which I have had IM injections for the last 15 years approx. ...

Fisylvia

•1 year ago

11 Replies

which comes first.........and are they related

I am trying to work out whether the continuing awful constipation caused the anaemia OR whether the anaemia caused the awful constipation......... I have...

I am trying to work out whether the continuing awful constipation caused the ana...

Ktomoph_

•1 year ago

21 Replies

b12 injections after spinal cord surgery

I thought this might be of interest. A bonus effect of treating my pernicious anaemia. I had an appointment today with my neurologist, I’m three weeks post op...

I thought this might be of interest. A bonus effect of treating my pernicious an...

Scott-rock

•1 year ago

5 Replies

bradycardia

Hi, I am newly diagnosed with PA and have noticed that along with other symptoms to my pulse is quite low 52 , to 55. I first noticed it a few weeks ago and...

Hi, I am newly diagnosed with PA and have noticed that along with other symptoms...

brenanddave

•1 year ago

15 Replies

Blood test results. Part 2 thread.

I am adding a link to my previous thread ...

Milsean

•1 year ago

2 Replies

Transcobalamin receptor gene polymorphisms and mutation in an elderly population

This sounds very interesting (the paper isn't only of interest to the elderly!). Has anyone had a TCblR (CD320) gene test? Specifically, rs2232780. (My very...

This sounds very interesting (the paper isn't only of interest to the elderly!)....

helvella

•1 year ago

7 Replies

PMing . . . members on HU - having probs recently ??!

Is anyone else UNABLE to send personal messages (PMs) . . . as of last night ??! This is rather . . . inconvenient ! 😕❗ AtB Sid 😑 Tues 23 May 2023 . . ....

Is anyone else UNABLE to send personal messages (PMs) . . . as of last night ??!...

Sid_Arthur

•1 year ago

5 Replies

Some might find this of interest - Dr Axe ?

It's one I hadn't read before so thought I would post. https://draxe.com/nutrition/vitamin-b12-overdose-symptoms/ P.s I am injecting daily. 💉 🤔...

It's one I hadn't read before so thought I would post. https://draxe.com/nutrit...

Jillymo

•1 year ago

46 Replies

B12 help

hello everybody, please can I have some advice. I've been on self injections for almost 6 years and I use Panpharma brand hydroxy. I did really well and I...

hello everybody, please can I have some advice. I've been on self injection...

Antstarr

•1 year ago

17 Replies

retraction of diagnosis for PA and uncertainty over what to do about it

Was 20 when i was diagnosed by a blood specialist (haematologist?) with pernicious anaemia. got the intrinsic factor test and all before starting treatment,...

Was 20 when i was diagnosed by a blood specialist (haematologist?) with pernicio...

Dandeli0nsroar

•1 year ago

13 Replies

Leaky Gut and neurodegeneration connection

I thought this was an interesting breakthrough - Nottingham Trent Uni scientists have found evidence of leaky gut in the form of endotoxins leaking through the...

I thought this was an interesting breakthrough - Nottingham Trent Uni scientists...

Pickle500

•1 year ago

1 Reply

Finding hydroxocobalamin

Hi, anyone had any recent success buying hydroxocobalamin from Europe? I find the German pharmacies no longer ship to the UK and I'm nervous about taking the...

Hi, anyone had any recent success buying hydroxocobalamin from Europe? I find th...

MamaRun5

•1 year ago

10 Replies

diff between serum holotranscobalamin conc and serum vit B13

Morning all, what’s the difference between Serum Holotranscobalamin conc Serum vit B12 in simple terms 😂 I’m arguing (politely) with the Drs and need to be...

Morning all, what’s the difference between Serum Holotranscobalamin conc Serum...

Bumblebee02

•1 year ago

16 Replies

PA members help

I'm trying to read information on the leaflets loaded. Writing tiny. How does anyone that's s member access this please. Cant seem to enlarge text

I'm trying to read information on the leaflets loaded. Writing tiny. How does an...

Nackapan

•1 year ago

13 Replies

Finest needle for B12 and fragrant swabs

Simple Qs: 1. What is the finest needle I can use for subcutaneous B12 injections? 2. Does anyone know of a swab that doesn’t have that hospital smell...

Simple Qs: 1. What is the finest needle I can use for subcutaneous B12 injectio...

Wwwdot

•1 year ago

20 Replies

injections

is it possible to si in your arm, or do yyou always have tto bunch the skin?

Myanna23

•1 year ago

17 Replies

omeprazole and Lansoprazole

Do these types of treatment have any efficacy for PA patients with gastritis. ? I understood that with pernicious anaemia we had very little gastric acid....

Do these types of treatment have any efficacy for PA patients with gastritis. ? ...

Yingtong22

•1 year ago

30 Replies

Feeling like I've plateaued

Hi I need reassurance, I was diagnosed with PA privately in nov last year after over a year of frequent 'not low enough for treatment on nhs' blood tests. I...

Hi I need reassurance, I was diagnosed with PA privately in nov last year after ...

Charlie27612

•1 year ago

5 Replies

Questions regarding my B12 case (IF, veganism, oral sublingual, and other blood results)

Hi all, My case seems to be a little murky. In 2018 I found out that I had very low B12. I was a vegetarian at that time and for the last 2 years have been...

Hi all, My case seems to be a little murky. In 2018 I found out that I had very ...

Greeneyecolor

•1 year ago

28 Replies

Questions about TSH and other test results

In the spring of 2021 I had been having periods of fatigue that would put me in bed for two or three days at a time, and then suddenly things would be better...

In the spring of 2021 I had been having periods of fatigue that would put me in ...

WiscGuy

•1 year ago

10 Replies

symptoms of several autoimmun diseases, how to differ them……?

I started B12 injections in october 2022, continueing EOD since. Just having another autoimmun disease diagnosed; primary biliary cholangitis! When reading...

I started B12 injections in october 2022, continueing EOD since. Just having an...

Annaunge

•1 year ago

17 Replies

b12 vials multiuse

my doctor prescribed my b12 as multiuse vials and I’m having trouble not bending the needle as I stick it in. I use insulin needles since I injection...

my doctor prescribed my b12 as multiuse vials and I’m having trouble not bending...

Purplegirl2

•1 year ago

17 Replies

How to fight for treatment?

I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6 loading doses. I went back at their request and was told my B12 levels were...

I felt awful last oct and blood test showed B12 was at 21.6pmol/l so was given 6...

Bumblebee02

•1 year ago

23 Replies

Not tolerating loading doses

Hi everyone, I’m new to my b12 journey, really I’m very lost in it all! I had a lot of symptoms - hair loss, severe palpitations but honestly primarily...

Hi everyone, I’m new to my b12 journey, really I’m very lost in it all! I had ...

sophie89

•1 year ago

15 Replies

Auto injector advice please

I SI B12, but my daughter is needle phobic so I have to do her injections regularly for her. She would like to try an auto injector... Where do I begin? Any...

I SI B12, but my daughter is needle phobic so I have to do her injections regula...

Hidden

•1 year ago

10 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All posts(76)

All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2023

Needles

Reminder - posts offering injectable B12

Atrophic Gastritis

Y'all did it again. Thank you!

MMA results - supplements or further test?

B12 injection info.

which comes first.........and are they related

b12 injections after spinal cord surgery

bradycardia

Blood test results. Part 2 thread.

Transcobalamin receptor gene polymorphisms and mutation in an elderly population

PMing . . . members on HU - having probs recently ??!

Some might find this of interest - Dr Axe ?

B12 help

retraction of diagnosis for PA and uncertainty over what to do about it

Leaky Gut and neurodegeneration connection

Finding hydroxocobalamin

diff between serum holotranscobalamin conc and serum vit B13

PA members help

Finest needle for B12 and fragrant swabs

injections

omeprazole and Lansoprazole

Feeling like I've plateaued

Questions regarding my B12 case (IF, veganism, oral sublingual, and other blood results)

Questions about TSH and other test results

symptoms of several autoimmun diseases, how to differ them……?

b12 vials multiuse

How to fight for treatment?

Not tolerating loading doses

Auto injector advice please

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive